#4. wanting to hurt yourself isn't a deciding factor of depression. sometimes you just feel... tired. like a cloud over your heart. for years
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May I add: living with chronic anything.
Sometimes people with chronic conditions do everything they can to avoid making symptoms worse, or to manage their existing pain. Creams, meds, long medical treatments, etc. Sometimes it's long and monotonous, and people are still in pain afterwards. Sometimes it's more manageable.
Sometimes, people with chronic conditions might not want to do that. Sometimes they just want to carry on as they are. Maybe it's health risks, or monetary reasons, or it's just not worth it. Sometimes people just don't want to do it, full stop.
Chronic conditions are chronic for one reason: even if they come and go in bouts, even if they're "not that bad"... they don't go away. Sometimes they remain forever, sometimes they may go away. But either way, you will have them for a significant portion of time.
Some people have cures and medicine that helps them to live as uninterrupted as possible, some don't- whether it's access to funds to get it, or because there literally just isn't something like that out there in the world, or maybe it's too risky. Sometimes you can be cured of one thing and it causes another, or it can come back, or, even if your main symptoms are gone, you may be left permanently affected by what the condition did to your body.
Some people have low pain or needs- this doesn't mean they're "overreacting" or "being too dramatic". Pain, even on a low scale, can be absolutely debilitating over a prolonged period of time. Sometimes, medical specialists can get very temperamental over this- personally, my conditions always get missed on 95% tests even if the markers to indicate I have them are there, so the specialists are very reluctant to give me help at first because they don't understand how much my pain affects my life until I prove to them that that help supports me to try to carry on as best as possible. This meme pretty much sums it up (for those who are confused, π, or, pi, is a number that never ends- the calculation for it has been going on for hundreds upon hundreds of years and we're still nowhere near the end seemingly):
On the other hand, some people experience extremely high pain levels and/or are severely affected by their chronic conditions, so much so that it limits them from doing a majority, if not all, of their daily life activities. Some can manage with a carer or assistant, some cannot. That doesn't make them "useless" or "unworthy" or "lazy". They are valuable as all humans are to each other, no matter whether or not they can work "like everyone else" to fulfill that cruel, uncaring, devaluing shitshow of modern expectations of an adult or not. Human decency and care for each other shouldn't ever be associated in the slightest with output or ability.
Sometimes, people's conditions are "intrusive" and/or affect other people's lives (e.g. family becoming carers or assistants, needing more support, being unable to control impulses or body functions) and whilst, yes, sometimes they can take effort to deal with by people on the outside, the person themselves is not incontrol of their condition and complaining 24/7 about it to them will just make them feel like crap. Contrary to popular belief, many people with chronic conditions are actually extremely aware of the effect of their condition on themselves and especially others, and are constantly overcompensating for it and putting so much effort into dampening it down just to make it more "palatable" for others. You don't need to tell them what they already know- if something's really affecting you, maybe come up with a realistic way to help before you ream off about how much something they're having to deal with is annoying you.
Please, don't expect someone to move mountains if you're not going to give them the rope.
And the final point I'm going to make is... please, for the love of your own compassion, sometimes there are people who are tired of having to constantly have to avoid triggers or irritants (e.g. with skin conditions), and want to allow themselves some semblance of being able to live like fully non-chronically affected (i.e. not living with a chronic condition) people for a while.
Concern is a lovely thing to have, but sometimes, people just want to have a bit of a break, y'know? I understand if there's concern about someone continually, severely harming themselves with their actions (i.e. eating an allergen they're highly allergic to, or something that could seriously harm them long-term)- of course, speak to them or try to empathise with them and then bring up your concerns, or come up with something alternative for them.
But if it's a short-term thing? Just let me have this one thing, please- my mental health needs it too. Don't judge me for wanting to have one long night out even if I'm chronically exhausted or easily get overwhelmed. Don't judge me if I have chronic skin conditions but want to have one nice perfume or pretty bath even though I'll be barely able to tolerate clothes in the morning. Don't tell someone they're dumb because they want to take a walk even if they may not be able to keep moving for long. I, and they, can regulate ourselves- we know the risk vs. the reward and sometimes you just want to do "normal" things for once.
Just... please. We're not defined by our conditions, but it doesn't mean we're not constantly affected by them too. They're a part of us, they're not always a welcome part of us, but they're there and we have to deal with them. Just please don't forget: just because we seem happy or fine, doesn't mean we can't be in pain.
when u go to write a mentally ill person in ur story you are presented two options. the first option is to write your mental illness realistically as you actually experience it with all the ups and downs and people who are like you will resonate with it and feel seen. except every person who reads instagram infographics on mental health that uses the phrase narcicisst for anyone who does anything that crosses them and unironically call themself a dark empath will call you scary and tell you that youre demonizing mentally ill people
the second option is to lie and write inspiration porn for those people to get hard to
#stuff im nervous to write: a list.#1. autism/ocd tics. whenever it's mentioned irl ppl say “you don't have tourette's(!!)���...no i dont! I'm talking about AUTISM/OCD tics 🫠#2. “High-functioning” (for lack of better term) characters that can't/don't want to mask. irl I'm scolded for “acting more autistic”#2. and it hurts. first bc im not “acting” it's just trying to let my body carry out all the random little impulses i get and also bc “more#2. autistic“ (which isn't a great term anyway) is fucking cruel to use an insult. the people you think of as ”more autistic“ are people.#2. they gave thoughts and feeling too BC they're HUMAN. regardless of whether people know you're insulting them doesn't change what the#2. underlying message you're trying to say with that “more autistic” line.#3. autistics who react to stimuli in different ways. some ppl flap theur hands some dont. some vocalise but can control it some dont. some#3. have meltdowns and shutdowns and some dont. pls dont come to me and say “wait why couldn't [character] just say beforehand that”#3. they needed space or time out?“ is an example. it's okay to be curious- good even. but framing your questions in a way as to#3. blame someone for their actions especially when sometimes things happen sudden or without warning.#4. long-term chronic things. e.g. depression- ppl say you must wanna not be here to be depressed.#4. well no actually depression can also be when you feel empty or like everything is shallow or you can't comtrol anything.#4. wanting to hurt yourself isn't a deciding factor of depression. sometimes you just feel... tired. like a cloud over your heart. for years#4. skin issues- irl ppl acting up when i use something that i know is going to irritate my skin. not bc they care it will hurt. but bc it's#4. their moral mighty high ground. i know it's obvious to avoid irritants. but sometimes idc bc I've gone over a decade without and i would#like to indulge myself in something as simple as a bubble bath or a nice fabric for ny clothes thank you very much.#4. chronic migraines- ppl when i tell them i have a headache: “again!?!? ffs just take some meds” me- “thanks 👍🏼”#4. chronic anything tbh. sometimes when you've lived with something for long enough you want to have something nice once in a while#chronic illness#chronic pain#long post#chronic condition
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