#((I already took some medicine to try and keep the itching and hives down but I had to take the one hand cream that works on my hands and i

[viviskull]

My immune system every time I go to put some hand cream on my dry ass knuckles:

[lovemeleo]

Please write one were Asher has an allergic reaction and Sirius and Remus freak

Um so hi, surprise. I finally wrote something again. This prompt has been sitting in my ask box for god knows how long and I finally wrote it. Sorry it took so long, anon, but I hope you all enjoy. The SW world and it's characters belong to always fantastic @lumosinlove!

If you haven't read the rest of my Asher series, here's the link for tumblr and AO3!

cw: allergic reactions, talk of medicines, IVs, and hospitals

It started as a normal day, as most days tend to do. Remus got up first, doing some yoga in the living room before turning on the coffee maker to run while he was in the shower. He had this routine down pat so of course, he was ready with Sirius’s cup of coffee when the taller man came up behind him, nuzzling into his neck.

“Morning, mon loup.” Sirius mumbled, his voice still rough with sleep as his arms wrapped around Remus’s waist.

A soft smile spread across Remus’s face as he pressed the steaming cup of coffee into his fiancé's hand, “Good morning, Pads. I can get Ash ready for Lily’s if you want a shower before practice.” Remus said quietly, already hearing movement from the toddler’s bedroom.

Sirius answered with a kiss to his shoulder, looking up at him with a grin, “You’re the best, babe,” He said as he pulled away, cheekily slapping Remus’s butt before making his way to their bathroom. Shaking his head fondly, Remus turned to start getting Asher’s breakfast ready, the oatmeal cooking on the stove.

Just as he was about to go check Asher was awake, a small pair of arms wrapped around his legs from the side. Asher rested his head on his Papa’s hip, letting out a loud yawn. Remus couldn’t help the chuckle he let out, their son so much like his daddy, it was ridiculous.

“G’Morning, Papa.” Asher murmured, rubbing his eyes as he tried to wake up.

Remus picked him up, resting the toddler on his hip as he finished up his breakfast, “Good morning, mon chou. Sleep well?” He asked as he put the oatmeal into a bowl, topping it off with some berries before getting him set up at the table.

The little boy hummed happily, sipping his milk as he waited for the hot cereal to cool down, “Yep! I had a dream that Harry and I were wizards and we got to battle a bunch of bad guys and we won of course and it was so cool.”

Remus chuckled, sipping his coffee as he listened to his son’s dramatic retelling of his dream, “Of course, you won. Most powerful wizards ever, obviously.”

Nodding happily, Asher started in on his breakfast as he continued to fill his Papa in on the wizarding world from his dream. He had quite the imagination and it definitely came through his dreams.

When he had finished, Remus helped him wash up and get dressed before Sirius came in with his bag for the Potter’s house. Lily always watched Asher during their practices, letting him and Harry tire themselves out together. They were the best of friends, constantly attached at the hip. When they pulled up to the Potter’s house, Lily and Harry were already waiting on the front porch, the boy already jumping excitedly as he saw their car pull up.

As soon as Asher was released from his booster seat, he was running as fast as his little legs would take him. And Harry, not one to be outdone in the dramatics department, met him halfway and slammed him into a hug.

Lily laughed, coming down off the porch to give the two men a hug, “Sorry, I’m not gonna sprint up to you two,” She said, giving them both a tight squeeze.

“Wow, I see how much our friendship means to you!” Remus teased, his arm wrapped around her shoulders. “Now, where’s that husband of yours? Still doing his hair?”

A loud laugh came from the doorway, James appearing with his bag thrown over his shoulder, “Yeah, you know me. Very much worried about my hair when I’m putting a helmet on.” He said, throwing his bag into their car before giving Lily and Harry a kiss goodbye.

After saying goodbye to their own little munchkin, the three men were off to practice. Today consisted of some dry land training for warm-ups before moving on to some drills. They were about an hour into their drills when Coach Weasley blew the whistle from the sidelines.

“Black! Lupin! You’ve got a call!” He yelled across the ice, his eyebrows furrowed as he held out the phone.

Knowing that calls weren’t allowed during practice unless there was an emergency, the two men were to the bench in seconds, Remus quickly grabbing the phone, “Hello?”

Lily’s frantic voice was on the other side of the phone, already talking, “Remus, I’m sorry, I literally looked away for a second, and then he was screaming. I didn’t even see-”

“Lily, take a deep breath. What’s going on? What happened?” Remus said, trying to keep his voice calm.

A shaky breath came through the speaker before she continued, “I took the boys to the park across the street like I always do, and they were on the playground. It was fine then all of a sudden, Ash let out a really loud scream. I got over there as soon as I could, but he had already hives. Harry said he had a bee on his arm and got stung. I called an ambulance, and we’re at Gryffindor hospital now in the ER. I’m so sorry, I didn’t even know he was allergic.”

Remus was already unlacing his skates, the phone held between his shoulder and ear, “It’s not your fault, Lils. We didn’t know he was allergic either. We’ll be there soon.” Quickly handing the phone back to their coach, Remus and Sirius ran back to the locker room.

In less than 5 minutes, the two men were back in their car, racing towards the hospital. “Fucking bees,” Sirius muttered, quickly pulling into the parking lot.

As soon as they were parked, both of them quickly ran into the ER, their hearts pounding in their chest as they reached the front desk, “W-We’re here for Asher Lupin-Black.” Remus said to the receptionist.

She pointed them down the hall and they were off, seeing Lily waiting in the hallway outside of the room. Lily met them halfway, Harry on her hip sniffling quietly, “The doctor is in with him right now. God, I’m so sorry. I had just gone to grab my phone to take a picture of them, Harry said they were chasing the bee. I didn’t even realize there was one by them.”

Sirius pressed a kiss to the top of her head, “Lily, it’s not your fault. He’s a kid, these things are going to happen. You got him here as soon as you could and got him help, and we’re so so thankful.”

Sniffling softly, Lily wiped at her face, “I was so scared, all I heard was him screaming. The hives spread so quickly.”

The door opened as they stood talking, a doctor coming out of Asher’s room. His eyes widened at the sight of the two hockey players, probably realizing who’s child he had been working on before giving them a small smile, “Hi there, I’m Dr. Johannis. You must be Asher’s dads.”

“Yes, how’s he doing? Is he ok?” Remus asked as he stepped forward, already itching to get into the room and see his son.

Dr. Johannis was nodding before Remus had even finished, “Asher is doing fine. He came in with anaphylaxis from what appears to be a bee sting. Luckily, due to your friend’s quick actions, we were able to get him in the ambulance and give him a shot of epinephrine. He’s doing much better already, the hives have begun to fade. We do have him on oxygen at the moment as a precaution.”

Remus and Sirius both let out a breath as if a weight had been lifted directly off their shoulders. Asher was okay.

“Can we see him?” Sirius asked, his eyes flickering to the closed door behind the doctor.

Smiling, Dr. Johannis nodded, “Yes, of course. My nurse is just in there, double-checking his vitals. We want to keep him for a little bit longer to keep an eye on him but you should be able to take him home tonight.”

After thanking the doctor, Lily urged them on without her, “Go on, he was asking for you both. I’ll text Coach so he can let the team know. I’m sure they’re all worried.” Nodding, the two of them quickly made their way into the room. Asher looked so small on the hospital bed, an oxygen mask covering his nose and mouth as he watched the nurse fiddle with the monitor. He quickly turned to the door as soon as it opened, eyes quickly filling with tears when he saw his dads.

“I’m sorry!” Asher cried, his voice muffled from the mask. Remus and Sirius were next to him in seconds, pulling him as close as they could without tugging any wires or IVs out.

Running a hand gently through his hair, Sirius pressed a kiss to the top of his head, “Oh mon chou, it’s okay. You didn’t know that was going to happen.”

“We’re just glad you’re okay, bub.” Remus said, running his hand gently over the little boy’s back.

Sniffling quietly, Asher rested his head on his Daddy’s side, “We thought it was a bumblebee, and Uncle James said those are fluffy and they don’t sting and they’re nice. But it wasn’t fluffy and it was not nice.” He huffed, wiping at his face.

Sirius couldn’t help but chuckle, pulling Asher closer, “Well now you know which ones to stay away from, right?” He asked, feeling the toddler nod before he let out a loud yawn.

“Sorry to interrupt but I just wanted to give you a heads-up. The medicine we gave him through the IV might make him sleepy,” The nurse said from next to them, as he headed to the door. “Let us know if you need anything.”

Remus nodded, pulling the blanket over Asher’s legs as the little boy began to doze off, “Of course, thank you so much.”

Then it was just the three of them, the only noises coming from the monitor and Ash’s soft snores.

“Well. That was fucking scary.” Remus whispered, leaning over to rest his head on his fiancé's shoulder.

Sirius snorted, his head falling onto Remus’s, “Yeah, that’s an understatement. Thought my heart was gonna fall out of my ass when Coach said we had a call.” Remus nodded in agreement, remembering the moment he heard Lily on the other side of the line.

“The team is gonna spoil the shit out of him. Like he isn’t going to have to walk anywhere for months,” Sirius continued, his hand moving to run through Asher’s soft curls.

Rolling his eyes, Remus glanced over at Sirius, “You act as though they don’t already spoil the shit out of him. Leo carried him on his back all around New York last month. Nado sneaks him treats constantly. And if Dumo brings him one more toy, we’re going to have to move to a bigger house.”

Sirius couldn’t help the large smile that spread on his face because Remus wasn’t wrong. Asher was spoiled. The team loved him, and he loved them all right back. They were so lucky to have such a supportive chosen family, and Sirius didn’t really believe in God but shit, he was grateful to whatever deity gave him this life. He had a loving fiancé, a fantastic son, and the best damn family a man could ever ask for. There was nothing better.

And when their entire house was filled with hundreds of “Get Well Soon” balloons and an entire hockey team when they got home that night, all of the worry was entirely worth it to see their little boy’s face light up the room.

[rosepetalmark]

flowers in your hair

↬ Johnny Suh x Reader ↬1.8k Words ↬Your allergies and creating art are two things Johnny holds dear to his heart

You hated the outdoors. Anything to do with bugs, dirt, and even plants made you itch and sneeze and scared that you’ll get some rare unknown disease and die because the innocent looking flower you picked by the bench turned out to be poisonous. 

Johnny on the other hand, enjoyed nature and embraced it to its fullest. Every day he’d make time to bask in the grass, and soak up all the sun while working on his latest art inspiration. 

Today, he decided that sitting in a field full of sunflowers would be ideal for his newest project, and what would make it more worthwhile and perfect was if you, his girlfriend  were with him to occupy his time and add further enjoyment to his favourite hobby. 

Horrible idea on his part because you’re allergic to flowers, and tall fields of grass would most likely break you out into hives and have you coughing up a lung. Johnny wouldn’t bat an eye though, because despite loving you with all his heart, he had a knack for making fun of you and the simplest inconveniences that occurred within your life. 

He always says you’re over dramatic when it comes to your “spring allergies” and that nothing like some water and the fresh air will clear your mind and nasal passages. 

He’s a dumbass, and he really will be the reason you die one day. 

But Johnny didn’t care, because as long he had you, a bottle of allergy medicine for your sneezing and itching, and his paintbrushes, he was content, even if you spent a great amount of your time in this damn sunflower field teary eyed and stuffy nosed. 

“Johnny, please tell me we can leave soon, I'm itching way more now than I did when i had the chickenpox as a kid,” you whine, rubbing your hands across your bare arms to provide you with any relief as you watched the bees swarm past you in their search for some nectar in the flowers nearby.  

“Mhm,” he whispers, continuing to stroke the paintbrush across the now detailed page, completely oblivious to the words that just left your mouth. 

This always happened. Whenever he took you somewhere new, he’d completely block out the world, yourself included, in order to capture the essence of life whether it be through his camera or canvas. 

Of course there was silence, why wouldn’t there be. Every time Johnny asks you to accompany him anywhere outdoors, you always think you’re going to explore and embrace nature, and every single time you are wrong, because the second you find something beautiful to look at, he sets his small backpack down and busts out either his camera or painting utensils to capture it. 

You’d say it pissed you off at times, but art is his passion, and you’d never do anything to get in the way he feels so alive and free whenever he consumes himself with something as minuscule and simple as a paperclip. He finds the beauty in anything and everything, never ceasing to amaze you with the wonderful creations he illustrates. 

“Johnny,” you say a little louder, unamused with the silence you receive, and the continuous strokes he continues to make on the page. 

You call his name again, and again, and again, and it’s only the third time when you yell out his full name, that he finally drops the brush on his palette and focuses his attention on you. 

“Were you not listening to me?” You question, seriously surprised that out of all the times you’ve called his name, he either completely ignored you or has gone def within his 25 years of life. 

“Oh, I was listening,” he hums, raising his eyebrows whilst providing you with his staple cheeky grin, one he always does when he wants to get on your nerves. 

Always a cocky one that guy, and how you manage to stay dating him truly blows your mind. 

Sighing, you focus your gaze away from the way he picks up his paintbrush again and gently strokes baby blue across the page, looking towards the tall stocks of sunflowers gently breezing in the wind a few feet away from you.

“You’re such a crappy boyfriend,” you chuckle, picking up one of the untouched pastel crayons and examining its fluorescent blue hue.  “You never pay attention to me.” 

“I never pay attention to you, hm?” He asks, causing you to stare back at his now stoic stature, face still focusing on his notebook and nowhere on you, but more contoured and rigid this time.

“Well, you’re speaking to me now yet your attention is never on me, always on whatever you’re painting or drawing,” your tone slightly angered. 

Obviously you were lying. Johnny was the most attentive boyfriend you could ever ask for, always checking in on you and ensuring your day goes smoothly, always hanging out with you when he’d rather be napping or out painting or doing photography, and almost always is down to make out with you whenever the opportunity arises. 

You just like to pull his leg most of the time because it’s funny seeing how riled up he gets when he believes that you think he’d rather focus on his hobbies over having conversations with you. 

“Here,” he signals, shoving his book in your direction, encouraging you to look through the worn out leather book he kept hidden for months, wanting you to see what he has been working on secretly whenever you were together.

Confused, you run your fingers along the enclosed ribbon on the cover of the sketchbook, hesitant to allow yourself in the work he’s immersed himself in for hours whenever the beauty in nature took over his attention span away from you.

Raising his eyebrows, he nods in a manner that demands you open the book. “If I don’t pay any attention to you, look through the book.”

Untying the string , you decide that whatever is in this book isn’t a secret anymore, because it wouldn’t even be in your hands if Johnny didn’t practically throw it at you to shut you and your curiosity up. 

The first few pages are beautiful, really. He has a way with his sketches, always seeming so simple yet so realistic you’d think they were actual pictures edited just to appear more striking to the eye. 

“Nature really is what inspires you hm?,” you ask, more of a rhetorical question because you already know the answer that’ll come from his mouth.

Chuckling, he brings his body closer to yours so his chin is resting on your shoulder, watching as you delicately turn the pages of his book. “Yeah, but there’s something more encapsulating that ends up being my muse, just keeping looking through.”

Golden sunflowers, vibrant pink sunsets, the giant pumpkin you both visited at the fall fair last year, everything you two experienced together when hanging out was documented in this book and reinvented through his drawings or paintings of them. 

And then you saw a sketch of yourself. At first you thought it was cute, because he’d always draw you and all your other friends whenever he got bored. But four pages later all you found were several pages filled with you, ranging from when when he placed different coloured tulips in your hair that one time you went on a walk in the new community garden not far from your favourite ice cream shop, or when you experimented with makeup and put glitter all over your eyebrows. 

Every moment you deemed minuscule and fun was captured so deeply in Johnny’s eyes, that he decided to relive it all again through the many strokes and colours that seamlessly came together to create something so beautiful. 

Your breath was absolutely taken away.

You always thought nature is what captured Johnny’s attention the most, but turns out it’s always been you. 

“I’m. Wait Johnny this is so-,” you begin to say, but your words become jumbled and your emotions a tangled mess, leaving you with tears in your eyes and so much more love for him in your heart than you’d ever had before, all because he drew some pictures of you. 

“Do you like them?” he questions, raising his eyebrows, awaiting your answer of approval, his question only promoting the waterworks to begin and your head to aggressively nod. 

You place the notebook gently on the blanket you two were sitting on, and crawl into his lap, pressing your body closer to his as you wrap your arms around his neck. 

They were absolutely perfect. He was perfect. 

Everything Johnny Suh says and does is absolutely incredible and you’re so incredibly lucky to be dating the cheesiest, most loving goofball the earth has to offer. Even if he’s a giant pain in your ass 97% of the time. 

Pecking his cheek, you stare into his gleaming brown orbs. “I absolutely love them, Mr. Johnny Suh, and I love you a million times more.”

Tightening your arms around his neck, you couldn’t help but embrace this moment for much longer. You don’t care that you’re five seconds away from bursting into hives and that your throat feels like it’s closing up. Holding on to your very sweet, thoughtful boyfriend for as long as you could right in this moment was all that mattered to you. 

“I was joking by the way, I know you care about me alot and pay more attention than most boyfriends would and I appreciate you tremendously.” You could start to feel the tears well up in the corners of your eyes, because you honestly don’t know what you’d do without Johnny. 

He was your best friend, and has been such an uplifting, inspiring person ever since he entered your life your freshman year of college, the thought of him not being in your life one day was a scary thought you never wanted to come true. 

“I love you always.”

“I know babe”, he whispered, kissing your cheek and running his fingers delicately through your hair, trying to calm you down as he could sense you were feeling rather overwhelmed. 

“I wouldn’t keep dragging you to places you hated if I knew you didn’t love me,” he exclaimed, bursting out into a loud, body shaking laugh that provided you with the comfort to let your tears go, and laugh in unison with him. 

Lifting you off his lap, Johnny grabs his art supplies and gently places them in his bag, grabbing your hand and pulling you up from the dry, matted grass you were both sitting on. 

“Where are you dragging me?” 

“Back to my place.” He winks, quickly pecking your lips before intertwining his fingers with yours, pulling you into the direction of his car. 

“It wouldn’t be romantic to be making out with my girlfriend that I love very much in a sunflower field if she kept sneezing in my face, wouldn’t it?”

[ace-in-a-shopping-cart]

for your bad things happen bingo, could you do allergic reaction with logicality? only if you want to! -💫

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Patton hummed to the music as he baked. He was working on his third batch of cookies, having already made plain chocolate chip cookies and peanut butter cookies. Not paying much attention to his surroundings, he failed to hear when Logan walked into the room and picked up a cookie.

Turning to the side to lay the batter out, he caught Logan out of the corner of his eye and nearly dropped the bowl. “Logan, put that down!” He almost shrieked as he set the bowl on the counter and started rummaging for medicine in the cabinet.

Logan just looked at him weird. “Why would I put down a perfectly good cookie?”

“Because you picked up a peanut butter cookie, you know, one that could kill you!”

Logan dropped the cookie. “Patton, why do we even keep peanut butter in the house?!” Logan’s voice took on a frantic edge as he joined Patton in his search of the cabinets.

“Because I like it!! Besides, I didn’t know you were home!”

“Why would I not be home on a Friday afternoon? I’m always home at this time!”

Patton shrugged even as he smacked Logan’s hand from scratching at the hives cropping up on Logan’s neck. Taking a deep breath, he tried to keep calm. “Logan, how are you feeling? Is there any tightening, itching, or tingling on your mouth or throat?”

Logan nodded, his fingers rubbing over the skin on his neck in attempts to sooth it. “Tightening of the throat and itching mouth.” He responded.

“Okay, go ahead and run the hand that touched the cookie under some water. Hopefully, that will help.”

“How is it going to help?” Even as he asked, he did as he was told, following the registered nurse’s instructions.

“It should get rid of any residue on the hand. I’m hoping the reaction will lessen in intensity.”

“Uh, Patton, my hand is swelling.”

Patton swore as he ran out of the room. He ran into the bedroom and grabbed a book off his shelf, flipping through it so quickly he was only using the page numbers as a guide. When he found the page he wanted, he paused to read over it before swearing again and dropping the book on the desk.

Running back into the room, he shoved Logan’s shoes into his dry hand. “Put these on, we need to get to the hospital.”

Logan had a brief look of panic flash across his face before he covered it in his usual mask of calm. “Is everything alright, Patton?”

“You need medicine that we don’t have in the house. “He glared at the traitorously empty cabinets.

Logan nodded as he shoved his foot into a shoe, trying to dry his hand at the same time. Patton slipped into his shoes, grabbing his keys and holding the door open for Logan.

“It’s nothing to worry about, Logan.” Patton reassured even as his heart was racing in fear. He’d never had to deal with something like this in a situation where medication was not readily available. They made it to the hospital in record time due to Patton taking back roads and shortcuts to avoid the stoplights. He rushed him in and soon Logan was being pulled into a back room while Patton paced in the waiting room, unable to do anything.

Later, he would be told Logan was fine with no side effects. Later, they would go home and Patton would put the peanut butter away and store the cookies away from the others. He would be glad that he had only been stirring batter and they hadn’t burnt their house down. But that was later. For now, he waited for news. He waited as his anxiety crept up like vines around his legs and in his lungs, taking a hold if he paused for even a second. For now, he wondered if he had just accidentally killed someone.

[koolforlife]

Having lupus changed my life

Having Lupus changed my life.

It was a beautiful summer day, at the time I was living in Queens with my Great Grandmother. I remember playing outside and one day I just broke out into hives all over my face. I remember my grandmother calling my grandfather and telling him that I wasn't doing well. Before she could take me to the emergency room the hives went away, we thought everything was good but that was far from the truth. As time progress throughout the entire time of of my tenth year on this earth my face started to break out with a rash, I started getting red spots all over my face and those red spots started to get crusty and it looked like I was sick. People use to just stere at me for no reason, I remember my Aunt getting into arguments with people while we   were on the train because they would just watch me for the entire ride. Come to think about it my lupus started effecting me when I found out that I was moving to Brooklyn to live with my Grandfather and is daughter which is my Aunt. My Great Grandmother was an older women when she took me in, she was already in her late 60's. So at 70 she couldn't handle a hyper active child that didn't listen and was always getting into trouble. My grandmother also felt like I needed a male figure in my life so I moved to Brooklyn and I didn't want to. I had my own room in Queens, we had a backyard and all my friends lived in Queens but I didn't have a choice. I learned later in life that my lupus was activated by stress and anxiety. So when I moved to Brooklyn and my face continued to break out my grandfather took me to the doctor around the corner from my apartment and the doctor diagnosed me with wing worm. So I begin using the medication I was prescribed and nothing got better. So after a few months my Grandfather decided to take me to a specialist at NY Presbytarian in Manhattan. After the proper test were done I found out that I had skin lupus. I was told by the doctor that I could not be in the sun in the summer because it could make me extremely sick, I was also told that i should always wear a hat and sun screen. Well that didn't work out well for me. It's very hard to tell a Black person that gets his power and energy from the sun that I couldn't go outside and enjoy it. But for the next 3 to 4 years I did everything that the doctor said and eventually my lupus went into remission. It didn't come out of remission until I was 22 years old.

When my lupus came out of remission my grandfather had just had three strokes and had been diagnosed with dementia. My grandfather was my father figure and because of the strokes he lost his short term memory. So basically he could only remember the day during that particular day. If you would ask him the next day what happened he couldn't tell you. He was a very educated man before he had the strokes so he would still try to tell you what happened but he was just making it up as he went along. Taking care of my grandfather and watching him go through his adversity really saddened me. This was one of the factors that lead to my lupus coming out of remission. The otherfactor was that I stop listening to the doctor and I decided to live life like a regular person. I went outside when I wanted, I didn't wear sunscreen and I end up getting sick. The only difference this time was I started getting the symptoms of a person that had a different type of lupus. Before I finish that thought let me give you an idea of what lupus is. It is defined as a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can effect many different body systems-including your joints, skin, kidney, blood cells, brain, heart, and lungs. Their are four types of Lupus, they are: Systematic Lupus erythematosus, also known as SLE. The second type of lupus is called Discoid Lupus which is what I was diagnosed with. The third type of lupus is called Subacute cutaneous erythematosus. The forth type of lupus is called Neonatal Lupus. So I will not give you all the definitions of lupus but you can look them up after you read this article. So back to finishing my thought when my lupus came back I started to get the symptoms of a person that had Systematic lupus and Subacute cutaneous lupus. This means that before 22 the only symptoms I dealt with were getting a rash on my face and by body would always itch. When the Lupus came out of remission it came back with a force. I started to get cold flashes, I loss all my energy, I felt weak and I felt like my whole body was fighting against itself. It wasn't a good feeling, when I would go to the doctor they could see that I had lupus in my blood but they couldn't see what was causing the pain and making me sick. My theory is that everything comes with a consequence in life and that consequence could be good or bad. So since I decided to not listen to the doctors and live my life as I pleased the consequence was that my lupus had evolved and I was able to go outside and live my life but whenever my lupus would come out of remission It would come back with a vengeance. So I started taking my medication and I found peace with my grandfather being sick, I promised to stand by his side until he passed away. My grandfather passed away on August 3rd 2013. When he passed away my lupus came back out of remission. Another reason my lupus keeps coming out of remission is because I would never stay on the medication the doctors would prescribe me. I would use it as long as it took me for me to get my body back under control. The medication that I have to use does help me deal with my lupus. The downside is if I stay on it long enough it will break my bones down and I will start losing my eye sight. So you can see why I stop taking the medication. I also hate hospitals and all man made medications. I feel like modern medicine's only incentive is to keep you sick so that the system can make money off of your sickness. So when it is physically possible I stay away from hospitals and any type of medication.

I decided that I didn't want to deal with Lupus anymore and that I would do what was needed to get rid of it. So in order to do that I started researching where most diseases come from and how my body worked. So I started doing research on lupus, I saw that stress and anxiety were the leading factors of why most people get diagnosed with lupus. The other factor is that people with lupus have to maintain a particular type of diet. If you have lupus most of your food intake should be plant base foods, fruits and a lot of water. People with lupus shouldn't eat meat, eating meat will only agitate your lupus and lead to you getting more sick. While researching what caused most disease I came across another finding. All disease is derived from the mucus that you have in your body. When you start understanding your biology you will start to realize that our DNA carries all the germs of every disease that is on this planet. How that particular disease is activated is based on how you live and the things you are exposed to in society. For example car pollution can be a trigger, smoking cigarettes can be a trigger, drinking alcohol can be a trigger, unless you go to a doctor and do a full scan of your DNA you will never no what's your trigger, most people find out the hard way and that's through experience. These particular diseases live within the mucus that exist within your body. Mucus is created from eating meat, dairy products and artificial food. The only milk you should be drinking is the milk that is created in the body of the mother that created that baby. Human beings are the only other species that drinks other animals milk. When you start to research how milk is being massed produced you will find that it doesn't carry any nutritional value, the only thing it will do is make you sick, it doesn't matter if you have lupus or not. The human body was also not made to consume meat, it doesn't fully digest through our digestive system and the meat in our body eventually turns into maggots and those maggots in your body eventually turns into mucus that will eventually turn into some type of disease. In this warning I will include eggs and cheese, we should not eat process cheese or eggs. Another thing to keep in mind is that food is not produced how it use to be produced. It is mass produced and a lot of the meat that we eat now has been genetically modified and we will not know the effects to the food we are eating now until later down the line.

As a person that has been living with lupus my whole life I would tell you that if you let your lupus take control it will take over and you might not be able to fight it off. Having lupus is like always having to fight a different version of yourself. Now imagine fighting yourself, you know everything about yourself, so it can be a very hard to win the fight. Experience has taught me that I don't have to fight my lupus. I have to eat healthy, I have to stay balanced and work out on a regular basis. I should only be eating plant base foods and if I do eat meat I need to make sure that it is organic. When I was younger and the doctor told me all the things that I couldn't do and I felt trapped, I felt like I couldn't live my life the way I wanted and I didn't like that, as I got to learn and understand my body I see that my lupus doesn't control me, I control my lupus. I told my body that I wanted to live and I wanted to enjoy the beautiful planet that God created. Although I have had my moments for most of my life I have been able to live my life like a regular person. I have been able to go outside in the sun, enjoy myself and I was able to do so because of my will to want to live. I do have to take care of myself and I can't eat how people around me are eating, but I'm also very healthy and that is a blessing. I don't get colds, I haven't broken any bones. All my organs are working well and I have 20/20 vision. My body has been great to me and I am extremely grateful. my message to anybody that has lupus is that you have to stay grounded and balanced for the rest of your life. Not pursuing your dreams and living life to it's fullest potential can really kill you and make you sick. Speak and live your truth always. Pain and anger for us is our achilles hill. We must never hold on to pain and anger because it will make you sick. Also if you live in the city make sure you take trips into nature at least four times a month, living in the city with all the people and pollution can lead to you getting sick long term as well. You might not be able to relate to everything I am saying but I just wanted to share my story so that if you have lupus and don't understand what your dealing with that you have a better understanding after you read this article. To be honest weather you have lupus or any other type of disease, I think the human race should relook at how we consume food and what we are doing to our body and our planet. Food is suppose be used as a energy source not something you should indulge in. Everything that taste good is not good for you, pay attention to what you are putting in your body because a lot of the stuff we consume is not even food anyways. Please learn your biology and do your research on everything you put in your body. I love you and I share my truth so that I can inspireyou to be better. if you have lupus and this article didn't help you please feel free to fill out the sheet on my hotline which is located on the top of the home page on koolforlife.com. Put in your information and I will get back to you with the answer to your question. 

I end this by saying the best medication is filling your body with love and eating healthy and working out on a consistent basis. I pray for everybody that is reading this and just know that you can beat this thing called lupus. I am grateful for my lupus and I use to hate it because it made me so different, but now I have grown into the fact that I am different. I understand that my lupus has forced me to find inner peace and really create a better world for the entire human race. It has help me appreciate having and maintaining good health. Having lupus has made me love harder, give more and be a better person. I use my lupus as a tool and as I continue evolving one day I will be finish with that tool called lupus and It will finally be gone for good. Namaste to all, remember that your body is more important then your bank account, so treat it like a temple and not just a vessel. I specifically wrote this blog for people that are living with Lupus, but I think we all can learn how to take better care of ourselves inside and out. Good health is about being well balanced physically, mentally and spiritually. When you master those three things you will come to see that good health is a way of living , and that you should take care of your body until the day you leave this earth and it goes back to whence it came.

[relientkitten-blog]

History, Part 1

The story begins in September 2016. I had a sinus infection. Well, I thought it was a sinus infection. Really it was just a headache and an earache in my left ear. But the headache was up in the forehead sinus region so we all assumed it was a sinus infection. That and my ears did have some inflammation. So blood tests were drawn and antibiotics were thrown at it. Three different antibiotics, in fact.

Oh, and steroids. That was the fault of my allergist. We knew I was allergic to prednisone but it was decided we’d try an extremely mild dose of methylprednisolone to lower that ear inflammation. It was less than 24 hours before the pain started. Sigh. I was taken off of my nasal sprays, too, since those have small amounts of steroids. Fuck, I have to avoid tumeric now, too. Oh how I miss you, saag.

And then the itching began! Suddenly my whole body was itching like crazy. We thought it was the vicoden that I’d be given to counter the pain of the steroid reaction so I was taken off of that and stuck on a moderate dose of hydroxizine. The hydroxizine took the edge off of the itching but it never got rid of it.

And then there was the day that I went to get my allergy shot and did not realize that the fuchsia patch on my leg was hives and not spilled juice until *after* I had gotten my shot... which triggered an allergic reaction. And they couldn’t give me steroids. But they stuck me with an Epi-Pen. Twice! And the ER just gave me a double dose of Benadryl and sent me home.

The allergist called the allergy reactions “idiopathic urticaria”, which translates to “we don’t know why you’re itching and breaking out in fuchsia patches.”

But the pain in my head and left ear never went away. My PA had a CT scan done of my sinuses and it came back clear--the ENT said *maybe* eustachian tube issues, but guess what they treat that with? Yep, steroids. Fuck. He sent me to my dentist on the off chance that it was my wisdom teeth causing problems. My dentist said it was the equivalent of a 1% chance but he referred me to an oral surgeon, who was also skeptical, but a removal date was set.

During all of this my inflammation markers and my WBC were staying pretty consistently elevated. But no one could tell me why. And fuck if my ear and head didn’t hurt like crazy most of the time.

My mood finally dropped, and it dropped hard. I had suicidal ideations and freaked my spouse out to the point that he locked up all of my medicines and was the one who gave me my daily doses. I eventually came out of it and contacted my PA (who is amazing, btw) and she urged me to reach out to my psychiatrist (who I hate, btw.)

My psych decided to bump my lamotrigine from 200mg/day to 300mg/day. After over two weeks of borderline mania, I realized what was going on and gave her a call. She told me to go back down to 200mg/day. Five days later, she dropped me to 150mg/day.

At this point we still didn’t have an answer for why my WBC and inflammation was still high, nor for why my head and ear were still killing me (other than the minuscule chance of it being wisdom teeth.) My PA referred me out to Infectious Disease.

A week and a half later, I had gotten up from my computer chair to head upstairs for bed when I noticed that I felt... woozy. Drunk even. My legs were wobbly and I was swaying a lot. I chalked it up to being tired, even though it was right at my normal bedtime, and just went to bed.

The next morning I felt worse. I couldn’t stand for long without feeling really tired and off-balance. I was seeing my PA for labs that day anyhow so I told her about it and she gave me some Anti-Vert.

The weekend followed and things got... worse. We realized on Sunday that it wasn’t vertigo--it was weakness. My PA sent me a message that my labs had come in and my glucose level at the lab time had clocked in really high, which was odd considering my eating pattern right before the lab was taken. We kept an eye on blood sugars for the rest of the weekend and while they were a smidge high at times, they were not terribly out of whack.

As the days followed, my weakness kept getting worse. It wasn’t just in my legs--my arms were affected too, just not quite as badly. I couldn’t walk for very long. My balance was awful. I was using my spouse to get back and forth anywhere (and that was basically the bathroom and nowhere else.) And the pain, oh gods the pain. Electrical pains, stabbing pains, aching pains. I itched like crazy one minute and the next minute my feet were pins-and-needling and then numb.

I was laying in bed while my spouse took our son Trick-or-Treating. I missed my favorite holiday of the year.

By the time my ID appointment rolled around, I could barely walks 15 feet, even with help. I could not hold myself up for any length of time. Navigating the hallways to get to the office from the parking garage was almost unbearable--but we made it.

The ID PA said none of it sounded like anything infectious and she referred me to rheumatology, taking some initial labs for them. I already had an appointment lined up with my neurology team for the next day and she stressed that I should keep it. The office was kind enough to lend us a wheelchair to get me back to the car.

We celebrated my spouse’s birthday laying in bed, eating key lime pie.

The next day, Thursday, November 3rd, 2016, I could barely move. I got to the car and that was all of my energy. All of it. My spouse got a loaner wheelchair from the neurology office and took me upstairs.

My condition was apparently concerning to my neurology NP (whom I love)--I was extremely weak, my speech was slow, I was missing reflexes in both arms and one of my legs, and I was showing signs of neuropathy. That was on top of the other symptoms we explained regarding the electrical pains, extremity numbness, pins and needles, and muscle spasms. She called in my doctor, who was working in the hospital next door. He came in and checked me over as well. I was sent over to the hospital for admission with the scary name “Guillain-Barré” echoing through my brain.

(Part 2 to follow.)