#''omg you really ARE related!!!'' after they saw our fucked up overy bendy joints | Explore Tumblr posts and blogs

nabaath-areng · 5 months ago

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It's funny how my psychiatrist and psych nurses are all so supportive about my as of yet undiagnosed physical issues and do their best to keep those in mind when we discuss my care. Meanwhile GP and qualified doctors either tell me to "not compare my googling to their medical degree" or go all "yeah EDS sounds quite likely actually but there's no point diagnosing that since it cannot be cured anyway"

#the fact that eds + pots + fibromyalgia ALL run in the family doesnt matter apparently #throwback to last year when visiting that side and someone not even related who was there took ONE look at me and sibling and went #''omg you really ARE related!!!'' after they saw our fucked up overy bendy joints #i guess i have to pay for having unusually good psychiatric care compared to most lmaoooo #would have been lovely to know whats wrong though before the painful surgeries #im incoherent cause my pulse started racing to the point i couldnt form words or even stand #its calmed down now but i feel so distraught over recovering from psychosis finally #only for my body to break down even more #i dont know how to not feel despair and hopelessness #im so tired of the pain and exhaustion and not being able to do even basic things #so tired of staring at my ceiling so often because i cant even lift my head #i should make a specific whining tag because i should shut up about this but i cant #idk what itd be thougy im too sad and upset rn #im sorry #silvi talks #<- can at least block that if tired of my yapping #im open for tag name suggestions #maybe ''silvi is crying screaming throwing up'' lol #idk

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