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scremsofpaim · 7 months ago

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This is a super long rant I wrote with dyslexia and a migraine, grammar and spelling is for the weak./hj

This is so true, Let me explain the saga of how my health was wrecked my whole high school career. I missed over a year of school total because of everything down below.

Disclaimer, I have severe hypermobility. I'm trying to get tested for EDS, but I have switched insurance 3 times, and in the US, you have to have 6 weeks of consecutive physical therapy in oder for your insurance, which approves you to go anywhere. But I keep switching insurances, and because of that, I have not been able to be in PT for 6 weeks at a time. Total though, I have been in PT for over a year, so this is really frustrating.

I got really close to getting an EDS diagnosis last year. I had my first sublux in my left hip and got PT for over 6 months, but I got in a really bad car accident that snapped my pelvis in half. I was stuck in my house for 4 weeks. Then it turned out I needed sugrey when the break first happened, and they didn't give me sugrey. So, 6 weeks in my pelvis had not healed at all, and it was too sollowen. My surgeon was too scared to operate on it. Another 6 weeks, and I felt a lot better. My surgeon said that it healed well enough and that it didn't need to be corrected. (It still looks F'd) but tomato tamto, I continued on with trying to walk again.

Every single step I have taken since I gave gotten out of that wheelchair had been pure angoy. I kept saying that it was going to get better, and it kinda did... but not really. Anyhow, I started to walk with a cane 80% of the time (I used a cane before, but I only used it after my hip would sublux, and everything would get really swollen) I have weird nerve shit going on in my leg. Btw I broke my pelvis on the side that my hip subluxes the most, and my now my left hip will sublux close to daily. Also my lower back is fucked because of all this. Pelvis problems will turn into lower back problems.

On top of that, I started having GI issues this January. It turns out it was a nerve problem. I am now on a nerve med. I can not spell it but it starts with an A. I have also inherented the horrid migraines (thank you mom).

As you can imagine, I miss a metric shit ton of school. I got t-boned by that car and never got better. It's been over a year since the accident and over two years since I started to have severe joint pain. There are days where if I walk more than 200 feet without rest, I will begin balling my eyes out. By the afternoon I have to take a Zofran otherwise I'm too Nauseous to drive my self home, sometimes I can't drive my self home. If I eat during the day, then I am doomed to spend the rest of the day in nausea and pain. On top of all of that, my biggest migraine trigger is stress. My migraine arua makes it impossible to drive. I am scared to leave my house, I am scared to leave my bed on the really bad days. All of my teachers expect for like 2 of them are like, "you have to try harder, if you can't be here everyday I can't see you as a rebalble person." And the best one "have you talked to a doctor about this?"

YES YES I HAVE TALKED WITH SO MANY FUCKING DOCTORS, I HAVE TALKED WITH SO MANY DOCTORS I MIGHT AS WELL BE ONE. and then they say

"Then it should be fixed soon then?"

NO EVERYSINGLE DOCTOR I SPEAK TO HAS SAID. "Have you tired PT?" YES, YES, I HAVE TIRED MORE PT THAN I HAVE TALKED TO DOCTORS, WHICH SAYS ALOT!

"Well if it can't be fixed then I think your making it up."

One day, I will snap./hj

But yeah, some people have health problems that can not be fixed or that won't be fixed for a VERY long time. This makes it really hard to be present in class, and the second the special education department says that "disabled students can have crappy attendance." Will be the day I know peace.

When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”

I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.

Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”

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liltaz-asatreat · 3 years ago

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oooh i wanna ask like. all of these slkdfjsdlf uh how about specifically 7, 10, 16, and 17???

Askin me all the hard ones ldslfhldhsfl /hj

7. What do you think are the characteristics of your personal writing style? Would others agree?

I honestly don’t know lkshdlfhd Like, I’ve always had a hard time describing and figuring out exactly what is meant by people’s writing and art styles? Like, I get the concept, I just don’t get it in practice if that makes sense? You’d think as someone who has written stories since as far back as they can remember and was an incessant bookworm, I’d be able to figure that out lol Some people’s art and writing styles stick with me if I find a memorable pattern or something in particular sticks out to me or if I’ve seen/read a lot of their work, but I couldn’t describe what it is that makes it stand out to me :/ (if you or anyone could give me examples of what writing style and stuff is supposed to mean btw you would be a saint 🙏🏽) But anyway, I mostly rely on what people tell me that they’ve picked up about my style. Ise once told me that my writing style is loud but in a good way, and I don’t necessarily know what that means, but I think it probably tracks because when I’m confident and more at ease and able to be myself without holding back, I tend to be a very loud /pos individual lol

10. How would you describe your writing process?

Depends on what I’m working on. For most of my ficlets that I write now, I make a rough bullet point outline of the main things that are going to happen or what I want to include before I write it. Then I’ll read it over a couple of times to try and catch any obvious grammatical/spelling/other errors and fix those before I post and eventually find more errors when I go back and reread it more that I feel like is too late to correct sldkfjsdljf. For the Julia Survived AU (the only long fic that I’ve had an idea for and am actually attempting to write), I mostly have an outline already because it’s just Balance but she lived and is adventuring with them lol I have a few ideas on other scenes and stuff outside of what’s heard in the podcast that I have percolating in my brain, some of which I’ve written down as disconnected scenes, but I’m also trying to figure out how her being there would actually change what happened and still curb it to keep with the same overall outcome of the podcast which is really hard because I’ve never written something that is going up against all of what canonically happens in a piece of media before?? Like, I daydream, yeah, but a lot of the scenes in my daydreams don’t actually carry weight, and I’m trying to change that in the actual product of this fic. Also, trying to figure out how to make Julia her own character especially when we know so little about her, I’m going to have to look at a post about character/character arc creation that I saved in my drafts on my main blog to figure THAT out and WOW am I rambling and strayed so far away from the actual topic of the question lol

TLDR: I mostly plan a minimal amount, then write, then edit a minimal amount, then post and hope people actually like it lol

16. Tried anything new with your writing lately? (style, POV, genre, fandom?)

I forgot this was one of the questions lol I rambled so long in the previous one, I basically answered this one too. It’s the Julia Survived Ravens Roost AU. Never written something going one to one with canon before. Very intimidating. Still working at it. I Want To Make That Work^TM lol

17. Do you think readers perceive your work - or you - differently to you? What do you think would surprise your readers about your writing or your motivations?

I don’t know, I mean, people say they like my writing and think I’m a good writer, and all of the comments and tags reacting to my writing make my entire day because you’re all so sweet and kind and I eat the comments and tags freaking out over an emotional work for power /j lol And I also like most of my writing and think I’m a pretty good writer, and even the works that I’m not too fond of I at least feel okay about, so that all matches up. I don’t know if people perceive my work as a vent, particularly the really sad and angsty and whump ones and all that, but I’m usually pretty explicitly clear in the tags when something is a vent, so it really shouldn’t be all that surprising lol Another thing that I don’t think is too surprising but might be worth mentioning because it’s an interesting/fun fact, I really like trying to subvert what people might expect to happen with prompts or character pairings or things when I can and really play in the space. Also matching up characters that we didn’t get to see paired off much in canon. Like with On Edge (the one where Magnus finds Davenport on the railing of the Starblaster), I wanted to write about a character who would have been seen as really strong and carrying the team and feeling like that’s how they see themselves, being in a moment of vulnerability and great amounts of pain and letting that show (very much a vent fic lol), and I couldn’t decide if I wanted that person to be Magnus or Davenport, then I figured why couldn’t both be in the fic because that’s also a pairing we saw almost none of, and Davenport seemed like the least likely choice to be put in that position but simultaneously, in canon, would probably have been the most realistic choice

#Thanks for sending this in Reese!!#I didn't mean to take as long as I did answering this; but I had to make dinner too at some point lol #Also rambled WAAAAYYYYY too much but I don't feel like condensing any of it so sorry 🤷🏽‍♂️#This is going up way late; but you're probably going to be the only one to see it anyway lol #answering the asks #Gab gabs

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