sweetkiwidog

[sweetkiwidog]

[sweetkiwidog]

you dont need ibuprofen you need me to kiss U

[sweetkiwidog]

i wanna be covered in lipstick marks so bad

[sweetkiwidog]

it is legit bizarre to me how hard video game creators and film directors and showrunners try to pretend that fat people don't exist. can you think of the last time you saw a fat person in a lead role? god forbid a fat woman? i can walk down the street or go into a shop or restaurant and see fat people everywhere but then i switch on the tv and suddenly it's like a glimpse into an alternate universe where no one has a bmi over 24. insidious and weird

[sweetkiwidog]

When I was a child, there were many times when I'd find myself being yelled at by multiple people ganging up on me because apparently I did something rude, or maybe they just thought I did because they didn't care if they were misinterpreting.

And if I asked how what I did was rude, they took that as arguing and became even more aggressive. Even if I just sat there silently because I was stunned by how quickly and viciously they were attacking me, they took that as an argument too, especially if I "rolled my eyes" (which I don't even know what that means or what it looks like).

Then, I went to school and was taught that chewing with your mouth open or talking with your mouth full is rude. And since it always annoyed me when people did that, it felt good knowing that finally for once something that bothers me is considered rude.

Then, when my family chewed with their mouth open and talked with their mouth full, I just went off and yelled at them. After all, that's what I was taught that you're supposed to do when someone does something rude. And they were all dumbfounded. They still to this day don't know why I did that. They've suspected OCD.

I've since realized that they were never trying to logically inform me of what it means to be rude. They only wanted a monopoly on deciding what's rude.

When you're autistic and you lash out at people, everyone wonders why, even though it's a pretty much inevitable consequence of how you're treated. But no one notices when it's done to you. They only notice when you start doing it.

[sweetkiwidog]

In case anyone needs a reminder…

Being transgender does not make you intersex.

Going through HRT does not make you intersex. Surgery cannot make you intersex.

Intersex people are born with atypical variations of physical, biological sex characteristics. That is what makes someone intersex.

Perisex trans people (especially on Reddit) have been recently insisting that just being transgender makes you intersex, and therefore able to speak over intersex people on issues that specifically affect us, especially when it comes to dangerous and offensive terminology. This is not true.

Also the idea that you can somehow “make yourself intersex” is untrue. You can make your body more androgynous through things like hormone treatment and surgery, but that does not make you intersex.

Falsely claiming intersex identity based on these things isn’t *always* malicious (though it is often done to speak over us) but it is always harmful.

[sweetkiwidog]

"You're always so chipper and excited even though you're in pain, I could never."

Bethany, if I wasn't chipper and excited about the most mundane things like bees and dice, then I would literally be bedrotting all day every day, sobbing because my entire life is falling apart because I have no answers or relief to pain that doctors think is fake. So I will take joy in my trinkets and rollerskating while my body allows because one day I won't be able to.

[sweetkiwidog]

It's so funny to be diagnosed with "Pain We Can't Find The Source Of Disorder" or "Brain is Physically Fucked and we Don't Know Why Disorder" or "We Don't Know Why You Have Seizures Disorder" and instead of more research, tests, etc being performed, you're told to get Cognitive Behavioral Therapy. Bonus points if your diagnosis of Exclusion was the 1st-3rd conclusion your doctor came to.

[sweetkiwidog]

As a chronically ill person, I’m not resting because I want to. I’m resting to avoid getting worse and because my body has given me no choice.

[sweetkiwidog]

Anyway, able bodied people need to stop blaming people’s chronic pain on their diets.

Like no mom, my hips aren’t in excruciating pain because I ate a couple cookies last night.

[sweetkiwidog]

Uh-oh, coming down with a case of “what-if-a-bunch-of-other-people-experience-these-symptoms-as-bad-as-I-do-but-they-suck-it-up-and-work-anyway-and-I’m-just-being-a-little-bitch”-itis

[sweetkiwidog]

I need this

[sweetkiwidog]

When abled people are involved, the concept of "doing it once in a while for a few seconds doesn't mean you can do it consistently on command like it's nothing" is easily understood.

For example, if someone is able to walk outside without a jacket in the cold to get the mail, everyone would easily understand that they'd still need a jacket if they were outside for a prolonged period of time. If someone is able to hold their breath underwater for a few seconds, everyone would easily understand that they'd still need an oxygen tank in order to stay underwater indefinitely.

But when disabled people are involved, that concept is somehow forgotten. You can stand for a few seconds? You must not actually need that wheelchair. You can socialize once in a long while if the conditions are exactly right? You must not actually struggle to socialize and any struggle you think you have is just fear and negativity. You can be physically active for an hour on a good day? You must not actually be too disabled to work. You have a lot of knowledge on a topic because it's a special interest of yours? You must be "smart" and any bad grades you get are because you're lazy.

[sweetkiwidog]

Fatigue feels like you have sandbags tied to your feet while trying to walk. It feels like you haven’t slept in weeks. It feels like gravity is pulling you down. It feels like cotton balls are in your head, clouding everything.

Fatigue is NOT the equivalent to being tired.

[sweetkiwidog]

Nick Marinkovich

[sweetkiwidog]

hi hello if you play video games as a way to distract yourself from your chronic pain please know that I understand and that even though to others it may just look like "wasting time" giving your brain a solid distraction from pain is a very necessary thing sometimes! my partner and I play stardew valley in the evenings and it is so nice to disconnect from my body and focus on the game. if that is the best way you have found to rest while also being distracted, then that is great! I am glad you have something that works for you. please don't feel bad about that.

[sweetkiwidog]

Sometimes I have to remind myself that's it's ok to have days in bed

It's okay to not want to speak because it takes too much energy or hurts too much

It's okay to be upset that you're missing out of things because you're unwell

It's okay to need help

It's okay to accept help

It's okay to let yourself be in pain or exhausted and to stop pushing through things and just rest