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being plural means a headmate pulling you into headspace to cuddle with you and help you go to sleep because of your& insomnia

being plural means smiling and laughing at a joke one of your headmates made, or having witty banter with them as you make a meal that you'll both be able to enjoy

being plural means a headmate going "its okay, you don't have to do this, i can do it" and you thanking them because yeah, you cant do that, and thats okay

being plural means thinking about your headmates when buying new clothes, or seeing a shirt or pair of pants for sale and going "they'd love that !!"

being plural means making one of your headmate's simplyplural profile, and spending lots of time perfecting it so that it fits them to a T

being plural means knowing you aren't alone

being plural means knowing that your headmates, your friends, your family, are always there for you

being plural means love.

THIS POST IS INCLUSIVE OF SYSTEMS OF ALL ORIGINS !!! DO NOT BRING SYSCOURSE ONTO THIS POST.

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“protect children” <- reactionary drivel basically every time

“be kind to children” <-radical thinking that causes way more arguments than you would ever imagine

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Disability Pride Month 07-31-20: finale

July has finished but we have not. Here’s some advice to take with you into the future!

[image description below cut]

Keep reading

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It is kinda fucked how being ace or aro pretty much automatically means you’re isolated, even from your queer peers.

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A new mode of production arises out of the newly networked masses.

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This is so wholesome

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The most terrifying part of having memory issues is when you can feel something from 5 seconds ago be thrown out the window and there's an empty hole where it once was. You remember that you forgot something.

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I would love to see a fantasy novel where the lore that the reader / protagonist learns at first is not true

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Day 10 and 11: Nothing

Nothing happened all weekend. I was too sore and tired to think. Too tired to rest well too.

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Do you realize how much I need you too

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Day 8 and 9: 0 words

Day 6 was chaos. Day 7 left me no chance to rest, instead life got more intense. Day 8 Fox was disappointed I didn't have my normal energy levels. Day 9 Fox and I finally had a day of recovery.

I'm still in recovery mode. If I'm lucky, I get to write today(day 10) stress-free.

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Day 6 and 7: 0 words, one page planning

Life is hard sometimes...

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Day 5: 380 words, 2 pages planning

Oh goodness I'm writing again!!! It's not much but it's something which is an enormeous improvement over nothing. The characters are being quirky in ways I haven't planned and I'm so so excited to see them come alive. It's cheesy and silly but who cares... it's a start!

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MYALGIC ENCEPHALOMYELITIS:

Myalgic Encephalomyelitis (ME) is a neurological disease characterized by complex, multi-system dysfunction. It is also known as Chronic Fatigue Syndrome (CFS) or ME/CFS. Prominent features include pathological dysregulation of the nervous, immune, and endocrine systems, impaired cellular energy metabolism and ion transport, as well as cardiovascular abnormalities.

Mild ME: Even mild ME patients are gravely ill. Only 25% of ME patients can work with great difficulty. Mild patients have lost at least 50% of their functionality.

Moderate ME: Moderate ME patients are mostly housebound and often require a wheelchair outside of their homes. Daily tasks like bathing and cooking are a struggle.

Severe ME: 25% of ME patients are severe or very severe. Severe patients are completely housebound and often bedridden. Most are extremely sensitive to sound and light.

Very severe ME: Very severe patients are completely bedridden, experience extreme pain, and are often tube-fed, and many suffer from periodic paralysis. Some even pass away or choose euthanasia.

30 million patients globally

less than 6% recover

We've documented, as have others, that the level of functional impairment in people who suffer CFS (ME) is comparable to MS, AIDS, end-stage renal failure and chronic obstructive pulmonary disease. - Dr. William Reeves, former CDC chief of viral disease branch.

90% are undiagnosed

Four times as common as MS

Post-exertional malaise (PEM): ME has more than 60 symptoms. PEM is the hallmark symptom of ME. It refers to the worsening of symptoms following even minor physical, mental or emotional exertion, with symptoms typically worsening 12-72 hours after activity and lasting for days, weeks, months or even years.

Myalgic Encephalomyelitis (ME) is a neurological disease characterized by complex, multi-system dsyfunction. It is also known as Chronic Fatigue Syndrom (CFS) or ME/CFS. Prominent features include pathological dysregulation of the nervous, ummune, and endocrine systems, impairsed cellular energy metabolism and ion transport, as well as cardiovascular abnormalities.

Created by ME patient Chantelle Spies from Chronically Rising

source

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every six months someone posts a study on here and is like LONG COVID CURED and that's not what the study says and it's probably not even what the shitty health journo coverage says and 'long covid' is a lot of different etiologies grouped together by sharing a symptom cluster and pretty much any acute infection can and does cause chronic illness in a subset of patients and we still don't know why and we can't cure them and many cases of long covid present as clinically indistinguishable from me/cfs which is also a symptoms diagnosis and is also a post-infection syndrome in a great many cases and we don't understand it and can't cure it and anybody claiming to have solved or cured anything off a single study is misinformed or lying in the first place. the study just posted had a sample size of 3 btw