rarediseasedude

[rarediseasedude]

[rarediseasedude]

Oh my god, the "I need glasses so I'm disabled" people have found my post. If your vision is correctable to 20/20, you're REALLY stretching the definition of disabled

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it should be like prohibited for a chronically ill person to get a normal illness because wdym i have to go through a fucking cold when im already having to deal with all these symptoms everyday

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I always see those “you’ll get better”, “it won’t be like this forever”, “you will heal”, etc. positivity posts and like- some of us won’t. Some of us will never get better, some of us will never heal, and for some of us things will be like this forever. We need more positivity posts for those of us with life long conditions and problems.

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Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

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no i won't let myself rest today because i'm too stubborn with the tendency of self destruction

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shout out to every disabled person with a rare condition. to people who's condition doesn't have a Wikipedia page. people who have a condition so underresearched there's no developed treatment. someone i knew has a condition which has been recorded in fewer than 100 people worldwide. i don't even want to say the name of it because it's a privacy concern. and it's not limited to like this 1 guy i knew. it can be isolating having to keep quiet about your condition because it's so rare. it's isolating that no disability positivity posts has ever named your condition. or being considered a medical anomaly. it's especially important for the autonomy of these people that disabled people don't have to disclose all/any specific disabilities we have

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Save your prayers for people who ask for them. I am a disabled stranger in public, if you want to pray for me - whatever, but if you feel the need to tell me you're doing it? Weird behavior. Unhelpful. Do not want.

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Disability will have you thinking shit like “I’m not even that disabled. I can manage as long as I limit myself to very specific careers, never go shopping for more than an hour or two at a time, keep my plans open so I can cancel and stay in if need be, and only go out a few nights per week at the most”

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what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀

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The child athlete to chronically ill/disabled pipeline is NOT for the faint of heart

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collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

if you have even a dollar to spare, please consider donating to Alaikum's family.

they're a large family at only 10% of their goal to evacuate, and could use any help you can give!!

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I LOVE WHEN THINGS ARE ACCESSIBLE

I LOVE WHEN I DIDNT KNOW SOMETHING WAS INACCESSIBLE AND SOMEONE SHOWS ME HOW IT COULD BE SO I CAN MAKE IT THAT WAY

I WANT PREGNANCY TESTS WITH MORE THAN ONE INDICATOR FOR BLIND WOMEN! I WANT AUDIO DESCRIPTIONS JUST AS MUCH AS I WANT CAPTIONS! I WANT WIDER WALKWAYS IN PUBLIC SPACES! MORE WARNINGS ABOUT TRIGGERS IN MOVIES BOTH EMOTIONAL AND FOR THOSE WITH SEIZURE CONDITIONS! THERE’S SO MANY MORE THAT I CANT NAME BECAUSE I SIMPLY DONT KNOW THEM YET but i’ll be damned if someone asks “who even needs that” and gets away with it just because they think a change that someone else is willing to make and actually has nothing to do with them, is somehow a personal affront against them.

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I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.