newlowbattery

[newlowbattery]

i hate when i, a completely healthy person (very chronically ill), get sick (flare up) for no reason at all (i exerted myself way past my limit just cuz i didn’t wanna be “annoying”)

[newlowbattery]

Fibromyalgia is such a stupid condition because literally every symptom is also a symptom of something that could kill you so you go to the doctor or Google your symptoms and you’re like “am I dying?” and they’re like “no it’s just your Ouch I Hurt All Over Disease again”

[newlowbattery]

guy who has chronic pain and fatigue: man why can't i do more stuff

[newlowbattery]

stuck in the time loop but i just use it as a free day off. im not even trying to get out. i am teaching myself to knit. i am crocheting. i am cooking. not even doing anything crazy. just escaping capitalism for a week. day 375 and im not sure what lesson it's trying to teach but i've taught myself to hand make lace so all is well

[newlowbattery]

One of the most life-changing things I ever learned came from Mythbusters, where they tested and proved (with cognitive testing puzzles and reaction time tests) that lying down and resting with the intention to sleep STILL provided significant mental benefits over just staying awake, even if a person couldn’t fall asleep in the amount of time they had. 

It helps me to actually sleep to know that just lying down with my eyes closed is still doing me some good, and helps me to not freak out/beat myself up when I stay up later than intended. Any amount of rest is better than no rest!

So if you didn’t know that…now you do

[newlowbattery]

[newlowbattery]

[newlowbattery]

one major thing ive had to learn about my pain and fatigue is that overexertion does NOT result in more sleep. a healthy person might have a busy, physically active day and then have a really good sleep as a result. When I do this, I can’t fall asleep at all, and i’m often in terrible pain. So I end up being miserable twice, first when I pushed myself past my limits, and second from the resulting pain and insomnia. So here’s my message to you, chronically fatigued person: don’t push yourself when you don’t have to.

[newlowbattery]

Just one day out sends me to bed for three days of recovery.

[newlowbattery]

I am not a failure for being unable to do a thing when fatigued I am not a failure for being unable to do a thing when fatigued I am not a failure for being unable to do a thing when fatigued

[newlowbattery]

Sorry, I haven’t done my work, yeah, I’m in spoon jail. Yeah, I was in really bad spoon debt, and I stopped paying my spoon taxes. Yeah, I can’t do anything until I gather enough spoons to pay my spoon bail.

[newlowbattery]

Bringing this back just to say that this guy HAS LOST MY ECHO RESULTS???? There's just no evidence that this imaging even happened except that the fact it got charged to Medicare. No evidence at the clinic. No evidence sent to my doctor.

Just totally missing and I can't even get another one done without having to fork out hundreds of dollars.

Medical imaging techs need to learn to shut the fuck up

tits out, covered in ultrasound goo, laying on a medical bed and this asshole is talking to me about how my gp should give me meds to lower my heart rate

GEE WHY HADNT I THOUGHT OF THAT. YOU DONT THINK THE FACT THAT IM LAYING ON THSI TABLE WHILE YOU ULTRASOUND MY HEART INDICATES THAT IM SEEING A DOCTOR???? ABOUT MY HEART????

Not to mention talking to me about getting a fit bit like yeah, okay, and are you the one that's gonna give me $300?

Shut the fuck up you random man

[newlowbattery]

[newlowbattery]

does anyone else feel weird & not good or is it just me

[newlowbattery]

I think I'm a better person because of my disability, I have a perspective that I wouldn't have gotten as an able bodied person and I've met a lot of people along the way who taught me a lot of things.

However, if an able bodied person told me "everything happens for a reason! You learned so much from it!" I think I'd fight them to the death.

[newlowbattery]

your time is worthwhile if your disability means you have to rest most of the time. if you can only do a few events a month, or a year, that's alright. if you need to sleep a lot, lie down a lot, that time isn't wasted. it doesn't make your experiences any less meaningful. feeling like you're missing out on different activities doesn't make the ones you do any less worthwhile. being disabled and restricted in activities doesn't make you boring or diminish your worth. there's no threshold for things you have to do to "really experience life" - you experience it by being alive. and every disabled life is a life that's worthwhile

[newlowbattery]

Medical imaging techs need to learn to shut the fuck up

tits out, covered in ultrasound goo, laying on a medical bed and this asshole is talking to me about how my gp should give me meds to lower my heart rate

GEE WHY HADNT I THOUGHT OF THAT. YOU DONT THINK THE FACT THAT IM LAYING ON THSI TABLE WHILE YOU ULTRASOUND MY HEART INDICATES THAT IM SEEING A DOCTOR???? ABOUT MY HEART????

Not to mention talking to me about getting a fit bit like yeah, okay, and are you the one that's gonna give me $300?

Shut the fuck up you random man