nebulousboundsofthisworld

[nebulousboundsofthisworld]

You're obviously lying about being intersex. I saw that picture of your eyes and you look like a normal male. Attention seeker

I usually don't respond to anon hate but this one is really funny. Eyes?? Of all things??? There's no sexual dimorphism in the eyes 💀

[nebulousboundsofthisworld]

Southern queers are just a hypothetical thought exercise to liberals until they meet one. Then, I suddenly get transmisogynistic hate mail for saying that I am one of these people and I don't like being used as a checker piece by the Democrats who've left me to the wolves for my entire life because I'm in a "flyover" state and I don't matter come November.

[nebulousboundsofthisworld]

If you go on this site and say something like "I'm broke right now, I'll have rice instead of steak for dinner" then somebody will come into your notes with the most condescending tone possible and say "EXCUSE ME but rice is FAR more expensive than steak", and if you disagree with them then they'll be like "Fancy gourmet rice cooked for you by a professional chef is much more costly than if your parents give you the steak that they won in a raffle" and act like this is a reasonable reading of your original post and they've successfully corrected you

[nebulousboundsofthisworld]

Everyone gives Sherlock Holmes a hard time about being mean about Watson's writing, but honestly imagine you told your roommate "sure, you can write up an account of my work for the newspaper," thinking it would be like, about the murder, but then he publishes it and it's 90% about you, as a person, and it's a huge hit and now everyone in London knows that you hoard newspapers and do cocoaine when you're depressed. Because I think you'd be little miffed too.

[nebulousboundsofthisworld]

Src

[nebulousboundsofthisworld]

The worst thing is that there is so much potential for exploring the horror of psych wards from the angle of medical abuse, ableism, forced treatment/drugging, loss of autonomy, power imbalance, demonization, dehumanization, etc, and YET the horror genre keeps defaulting to "insane asylums and psych wards are scary because there are mentally ill people in there"

[nebulousboundsofthisworld]

Friendly reminder than the surgeries that 95% of all infants born with intersex traits receive to "correct" their bodies often leave them sterilized and unable to reproduce. Reproductive justice should always include intersex people but it never fucking does.

[nebulousboundsofthisworld]

Jesus fucking Christ I am so sorry that you are being treated this way!!! I hope you'll find a way to get discharged as safely as you can soon.

in my country there are "advice centers" (that's not the correct translation I'm sure, but I can't seem to find a better one rn) that are usually run by social workers etc. they typically have specific areas of expertise (for example patient advocacy not only for inpatient people, but for at home care as well). if you need to/ want to/ feel safe to tell me your approximate location I could try and find out if there may be someone useful for you in your area. (if you have already tried this or have had bad experiences with this, I understand & hope I didn't overstep here!!)

again, my heart is hurting for you. if there's anything I could help with, I will happily try my best to do so!! 🩵

do you need any patient advocacy help? im not in your area but if getting someone on the phone to encourage hospital staff to take basic care of you could help im sure folks would do it, me included

I love and have always loved the idea and am very grateful to anyone suggesting it

but I can't connect it to what it might practically accomplish like idk who would you even call at the hospital? to say what? they think they are providing appropriate care, or they pretend to think that. why would they listen to some random laymen about it?

they know people outside the hospital care and are expecting me to leave here alive and not needing to return immediately. they know because they won't fucking let me leave without proof of support at home so officially my roommate is my primary caregiver and my neighbors are helping. all for free

I'm not trying to shoot down offers of help. if someone can help me understand why it would actually be helpful I'm all ears

[nebulousboundsofthisworld]

my full-time job can basically be boiled down to patient advocacy, although i mostly help my clients with government agencies, not hospitals. I still thought I may be able to help here?

so, as for how a patient advocate may be able to help:

as far as I understand your current situation, you're in hospital and aren't receiving proper care/ experience medical neglect. and that's mostly due to you being denied proper nutrition/ hydration, right? and staff/doctors aren't listening to you or straight up ignore you?

a patient advocate may be able to talk to someone about your care and work out a way to make them take care of you properly. without more information about you (what country you're in, specifics about your needs and the care you receive etc.) I can't say how much could be achieved, but I do know that hospitals (just as government agencies) often rather listen to people on the outside than their patients. this is gross and bad and sucks, but you know that better than anyone.

I'd estimate that a patient advocate (and you, to an extent) would need about 1-2 hours to get everything in order/ prepare for the first phone call, everything after that depends on what they say etc.

the patient advocate needs to know their and (most importantly) your rights in this situation & they need to sound confident when calling the hospital. I can give a more detailed explanation of what you/ a patient advocate would need to prepare, what a patient advocate can say during the call, who needs to be called etc. and I could do some research from home (unfortunately I won't be home for another two-ish hours) if you want. as I don't think we're in the same country I unfortunately won't be able to call on your behalf though.

feel free to DM me if you want more detailed information/ help/ whatever, if there's anything I can do I would try my best to help!!

and above all else: I am so sorry you're living through this right now, I'm so sorry you're not receiving the care you need and deserve. 💔

(also I hope I don't come of as rude or arrogant, English is not my first language and i sometimes come across way differently than I want over text!!)

do you need any patient advocacy help? im not in your area but if getting someone on the phone to encourage hospital staff to take basic care of you could help im sure folks would do it, me included

I love and have always loved the idea and am very grateful to anyone suggesting it

but I can't connect it to what it might practically accomplish like idk who would you even call at the hospital? to say what? they think they are providing appropriate care, or they pretend to think that. why would they listen to some random laymen about it?

they know people outside the hospital care and are expecting me to leave here alive and not needing to return immediately. they know because they won't fucking let me leave without proof of support at home so officially my roommate is my primary caregiver and my neighbors are helping. all for free

I'm not trying to shoot down offers of help. if someone can help me understand why it would actually be helpful I'm all ears

[nebulousboundsofthisworld]

[nebulousboundsofthisworld]

I feel like if you're using a lot of disposable plastic bags in your day to day life, you've gotta do something sustainable to make up for it. Like using bamboo toilet paper or eco friendly cat litter or something, yknow

Honestly I exaggerate for comedic effect, while I DO routinely use ziplock bags to hold spaghetti I cook maybe once a month and the bag itself is usually for freezer storage. I actually throw out maybe one bag a week? I DO hate washing plates and tupperware and junk but that usually just means I eat sandwiches without a plate.

I agree though that needless waste should be avoided, and I do avoid it- biodegradable bags and recyclables, empty butter tubs used to store leftovers, etc.

This said, though, not applicable necessarily for myself but for a lot of others- I feel that it's importat to remember that there are many people who legitimately NEED things like plastic straws, or catheters, or pre-packaged foods

And the idea that that's a moral failing that individuals need to personally make up for when a single billionaire blows out more CO2 in a long weekend than I will in my whole life on a superjet meet-cute in the Bolivian rainforest between humvee drag races funded by the river-polluting textiles plants they planted in a third world country to avoid EPA laws and give an entire village stillbirths and stomach cancer is an idea that those very same bigwigs have spent a LOT of time and money investing in planting in the public psyche.

Like- Glass bottles are infinitely recyclable, so why are so many drinks in plastic now? Loads of drinks manufacturers used to buy them back and clean them for re-use, so why did they stop? If they chose to make something out of a limited and environmentally irresponsible material, why is it my failing to track down a correct process of disposal for them? What if there are none in my area? Do I lobby for more recycling plants in my area? Do I set aside some of my limited time outside the pain factory of my job- which I have more than one of, thanks to rising costs of things just like that drink I just emptied- to properly dispose of this company's waste FOR them?

Say coca-cola just rolled up to your town and started dumping millions of empty plastic bottles in the street, going, "wow, you should really think about building and staffing a recycling depot, it would be really shameful of you to just put these in the trash." When companies purposefully use materials with limited lifespans- because yes, even plastic can only be reused so many times- and tell you it's your own fault if it harms the environment- that's essentially what they're doing, just with more steps.

Yes, its important to be as environmentally concious as we can in our day to day life, but responsible sustainability is not catholicism. We don't get good boy points from our lord and savior Captain Planet every time the average low-income household gathers together to hold hands and repent for a single-use plastic that allows them to access something they need.

Entire families could eat trees and shit dead lithium batteries for years and still not do as much damage to the planet as an average dye plant or braindead celebrity does in a week just for fun, and I'm mad about it

...this went on longer than intended.

TL/DR: DO recycle and minimize waste, but don't beat yourself up over the little waste you can't avoid, and follow the money.

[nebulousboundsofthisworld]

the thing with, "if I stopped showing up/posting/participating in chat/going online, would anyone notice?"

is you have to realize that the only way for you to actually know this information is to ask.

if your goal is to see if anyone is going to reach out, which is not the same as someone noticing your disappearance or being worried about you, you have to be prepared for what happens if nobody reaches out. I am very serious about this. not every friend is going to reach out, and maybe nobody will. maybe they are trying to respect your space and privacy. maybe they think you are mad at them. maybe they are super busy. maybe they were too occupied with their own life to notice. you have literally no way of knowing unless you ask.

what do you plan on doing next if nobody reaches out? because it happened to me. I disappeared for weeks. rough stuff was happening. nobody reached out. I was crushed. I felt so alone. and then I moved on and became a stronger person with a better understanding that feeling bad in silence is the absolute worst way to try to get support from people.

if you want to be reassured by your friends, you have to talk to them. if your friends do not communicate with you in the way you want, you have to talk to them. do not play the disappearing game. nobody is telepathic. nobody can read your mind and guess what you want them to do if you disappear. you have to communicate or everyone fucking loses.

[nebulousboundsofthisworld]

People take the word ambulatory wheelchair user, and say it means exclusively part time wheelchair users and run with it.

I’m an ambulatory wheelchair user. But I’m not a part time wheelchair user. I use my wheelchair EVERY SINGLE day. That means that I’m not a part time wheelchair user, because I use it more than part time. A lot more than part time.

There seems to be this new rhetoric, that ambulatory = part time. And for most, this isn’t the case. Ambulatory does not mean part time, it simply means that you can walk.

I can walk around my room unassisted by any mobility aids. I cannot walk to the lunch room which is literally up the hall without a mobility aid. I’m almost a full time crutch user, and I’m an ambulatory wheelchair user.

I am not a part time mobility aid user, and I hate that people have come to the “agreement” that ambulatory means part time, when that is quite literally, not true.

[nebulousboundsofthisworld]

[nebulousboundsofthisworld]

i drunkenly scheduled a friendly brawl with an acquaintance of mine and we both completely forgot about it. that is until we were sitting next to each other in class and both of us get google calendar alert that reads VIOLENCE AGAINST LEW i about lost my fucking mind. what do you mean violence against me.

and then i fucking remembered i completely shitfaced told him to send me an invite to the brawl and even more that i insisted to type something into the notes of the meeting to make it look "less worse" and he opens the invite and it just says PREMEDITATED. most sinister calendar event ever created i laughed so hard i cried

[nebulousboundsofthisworld]

Me reaching what looks suspiciously to be the end of my rope: oobh i got plany off rope

[nebulousboundsofthisworld]

said this before and i will say it again but i think its a bit silly people expect transgender children to explain exactly what gender means to them using language and concepts that grown-up cis people are never expected to learn in their lifetime