livingwithnystagmus

[livingwithnystagmus]

I- I had tp go back and read that first post three times to realise what it actually said…. I just got new glasses ffs I just had an eye exam in the last month.

as an optimist i dream of a beautiful world where people are fucking normal about aromanticism

[livingwithnystagmus]

So I’m working on an essay due Tuesday for ‘making of the 20th century’ and my choice of questions is how effective international law has been in out lawing genocide. Two pages to just note down each genocide since 1946 not even denoting how the international community reacted years after the fact. Before my conclusion of the ineffectiveness I plan to cover what’s currently happening in Palestine. And the current reaction from the international community and Israel’s response to the ICJ

[livingwithnystagmus]

As someone who volunteers at a historic site we hate the room names cos they were given to the rooms 400 years ago and are arbitrary at best. Pillar in the middle of a room? Pillar parlour admittedly was used as a parlour in the 1800’s, mistaken suns for stars on the light blue ceiling? STAR CHAMBER.

We have fun arguing with the audio tours too. It confuses the paintings of kings David and Solomon ffs. Solomon is depicted young while David is an old man but both have clues in the paint, Solomon’s chair has a carving of the two mothers and the baby while David has a cartouche of him fighting Goliath on his cape!

Historical house tours are so confusing. They’ll be like, “When we head upstairs, pay special attention to the Blue Room, where Colonel Thomas J. Shmoshington carved a suggestive message on the bedpost.”

And you’ll walk into a room with bright blue walls and be like, “Oh, I guess this is the Blue Room?”

And they’ll be like, “NO! This is the Red Room! It’s called the Red Room because of the red velvet curtains and canopy bed!” Then they take you into a white room with yellow floral wallpaper trim and go, “THIS is the Blue Room!”

And when you humbly ask why it’s called the Blue Room, they’ll scoff at you like you were born yesterday (rather than in 1789) and be like, “It’s called the Blue Room because it USED TO BE blue! The entire mansion is painstakingly restored to its appearance in the year 1812, which happens to fall during the two-year span in in which Abigail Shmaddison redid the room in white and yellow in a flight of fancy. After spending some time away in a sanitarium, she regained her senses and changed it back to blue. An archaeologist found an original scrap of the yellow wallpaper beneath 13 layers of paint and we were able to match it perfectly with this pattern, which was of course developed by Q.B. Zippitydoo & Sons in London and available for purchase only in 1812. Any more questions?”

So you hold your tongue until you enter a big green room that is so incredibly green that it can’t possibly be anything but the Green Room. It has acid green walls. It has bright green curtains. It has forest green tablecloths. There are ivy motifs carved in the ceiling. Cautiously, you venture, “So this is the Green Room?”

And they say, “NO! This is the parlor!”

[livingwithnystagmus]

First semester at uni is almost over just one last week to survive. Got one last piece of work to do by the 20th and then I’ve got exams to prepare for which I find out my accommodations for then on Tuesday.

Hope you’re all having a wonderful December and are looking forward to a wonderful Christmas.

[livingwithnystagmus]

Hi all

New meds for my nausea are making my appetite go bye bye. Really don’t know how a nausea pill can cause that but oh well

I could have a partial answer to my health issues just waiting on repeat blood tests because the result on last set was a ‘weak positive’ the test this was on mixed with gallbladder has me super paranoid but it’s just a waiting game

I have back to back submissions of essays between now and end of the semester mid December. Stacked deadlines are the worst with eyes that don’t function).

Hope you’re all feeling well and if your not you’re getting better and seeking help

[livingwithnystagmus]

So not posted due to my health going to pot and deadlines for my first few pieces of coursework

Gallbladder is causing nausea on a wait list to have it out but that won’t be until late next year

Endometriosis is doing a number on me pain wise

Migraines are a constant

Eye strain sucks when mixed with other things.

Ear infections suck.

And thanks to storm babet I found out I’m allergic to the cold. Started experiencing hives Friday, waited out the weekend trying to focus on an essay and struggled due to the irritation of the hives, almost passed out in lecture so skipped the next on Monday, went to pharmacy Tuesday was told I needed prescription strength antihistamines, tried to get seen by my gp office- gp pharmacist wouldn’t sign off, triage wouldn’t see me due to being seen by pharmacist, on call wasn’t in so I went about my day not even finishing at gp til a lecture had started so just going to the next one where as I was walking in I got a text from on call to be seen in person so I went back to gp post lecture and was told tough luck, called 111 for help cos wtf do you do in this situation, waited a few hours for a clinician to tell me to see the walk in or travel to another city for the only A&E that hadn’t been closed in the immediate area. Waited an hour and 3/4 at walk in for the doctor to look at my hands and immediately prescribing the prescription strength meds AND a steroid cream to ease the hives. He wasn’t impressed by my gp office. My legs are nothing but massive hives even with these meds

Storm babet also flooded my town severely. Worst hit town in England one road only opened again Tuesday Wednesday this week after closing Friday. We’re built over several rivers. The a617 at hornsbridge always floods when it rains heavily, 2019 biblical rain had the town gridlocked but this time there was no access to the town at all.

Had to get an extension on my first essay but had it in for the second deadline.

I wish you all well in your lives

[livingwithnystagmus]

I have a long list of dead people I have beef with

being a history / literature / philosophy nerd is so mad bro, like you are just having literal beef with dead people

[livingwithnystagmus]

Why is asking for accommodations to be accessible so difficult?

I had to have a back and forth over several days with the one disabled accommodation member of my university’s accommodation service just for a ‘talking hob’ and the ability to add little tactile stickers to the hob, cooker and other alliances as well as the ability to access the flat without stairs impeding my movements. They aren’t well marked out.

[livingwithnystagmus]

Hi let me introduce myself

I’m Abi

I’m 23.

I live in the uk.

I have congenital nystagmus (from birth, involuntary movement of the eyes).

I got the official paperwork done when I was 7 but have been wearing glasses since I was 10 months old (I have the hospital records of that eye test).

I am going into first year having done a foundation year last year.

I use a symbol cane not a long cane and people constantly confuse it for a long cane or ignore it. One lady where I volunteer thought it was a pointer .

When I’m able I volunteer with English heritage at a local site

Unlike HIV living in an actual genuine person(if you want a deep dive on that mess, well there’s YouTube videos on the topic)

I’m in and out of different doctors offices for different things some where I’m attending uni and some where I grew up cos I’m fairly local but moved into dorms for independence.