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Being disabled does not mean I want you to save me, im not some helpless creature. My life is worth living.
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Happy Death Day, Year 14
If you don’t know me, I celebrate a birthday in February the worst month, and a death day in November. Both are equally important days to me, even if I tend to forget which exact day my Death Day is. Anyways, every year I talk about the things I'm happy for, the little bit of advice I can give, and fuck it I'm making it an actual thing.
Are you…Dead? No, I am not dead. Wouldn’t it be ironic if November 23rd/24th ends up being my official death day though? I wouldn’t put it past the universe.
No, see at the age of 20, it really looked like the universe was trying to decide whether or not I should be alive. I ended up in the hospital multiple times due to an incurable autoimmune disease, and then a car accident landed me in ICU for a month. That happened to be the week before Thanksgiving through days before Christmas (if I remember correctly) and I’ve been celebrating it ever since. For those who weren’t there, I’ll spare you the graphic details, but I went from “she won’t likely survive the night” to “she might survive, but she’ll never walk” to “she’ll walk, but never unassisted,” to “okay but you have to wait another month because we are mostly afraid you’ll break your arm again.”
Note: They were right to fear this last one. I literally fell my first tennis match back during WARM UPS. Didn’t break my arm again. Did gain a killer backhand knowing people would target the scar.
People nearly die every day. Why celebrate this? I don’t think I am a pessimist by nature, but I do genuinely appreciate an anniversary to remind me about all the things I am truly thankful for, especially an anniversary without the added side effects of familial trauma, colonizer guilt, and forced cheer. No, instead I reflect on the things that keep me alive now, fourteen years after my death day. And when you add in the growing political unease and two years past the beginning date of a pandemic, I personally need to be reminded to take a minute and be thankful. The date represents a hard year, and a reminder to myself that while I now have a healthy relationship with the concept of me dying, I’m still so glad I’m here. So no, I don’t mentally calculate all the days I nearly died (every day I drive on the highway, let’s be real). But I do take a minute every November to compose my thoughts on life.
How are you celebrating this year? Well, I’ve started my morning with three cats using my bed to play “the floor is lava.” I’ll see my wonderful mom and two of my amazing siblings and grandmother for Thanksgiving lunch, then hanging out with Redd once he gets up from his super late shift last night. I’ll be in contact with those I love through out the day because we all will be navigating family. Maybe for fifteen I’ll throw a party or something. Fifteen extra years with me — you’re welcome (no really I’m so sorry.)
What new items are on your thankful list? First, I am thankful to the scientist out there working on “orphan diseases.” A new medication came out this year that could potentially put me in remission, get me off steroids, and potentially get me off my chemotherapy med. How amazing is that? I’ve spent the majority of the last two years fighting off the depression that comes with hearing a world constantly talk about how you aren’t important because you are sick. Or that you are less important because you are sick. The universe disagrees, bud, but I digress. I’ve been thinking about how thankful I am I didn’t give up on podcasting. Last year, especially this time of year, was incredibly rough and I did not consider podcasting a fun escape anymore. I had made the mistake of who I chose to cohost podcast with, I had men belittle my intelligence and tell me I was dramatic. I knew I was done hosting, being in front of a mic, but I was ready to move behind it permanently, into a writing position if I was lucky. Fortunately, I didn’t do any of that. I started up a podcast idea that was all consuming, I put myself on a time table that ended up requiring me to be in front of the mic again, and I’ve had to come face to face with some real repercussions and consequences of what had happened in 2021. Because of that, I have so many new people I adore working with, I have new friends I can’t imagine how I got this far without them in my life, and a genuinely great team to help push it forward. And it’s in the finals for some awards — look I know I throw myself into something when I cannot cope, and I’m glad this time it’s been a healthy project. One that has changed me for the better. I am also thankful that I’ve gained strength to stand up for myself more. I’m still working to gain back my confidence and self-worth, and I have made great strides forward in setting boundaries of who is allowed in my life and why. I also adopted two cats this year — a very outgoing part dog named Tempo, and a trained rogue who will steal your heart named Astrid. Along with Inanna, they keep our apartment loved, cozy, and chatty actually.
But again, none of this could be accomplished on my own. I have a support system of an amazing mom and step dad who may not always understand me but will support me (through the teasing). I have 3 siblings that just mean the world to me and inspire me to be a better person by watching them grow. I have Keira, who has only shown me kindness, friendship, and love, reminding me again that family is never just blood. I have four amazing best friends that are just as willing to talk me through the anxiety attack as they are to tell me when I am the problem. I never expected “Am I being dramatic or…” to be the way I orient myself in life, but I am so thankful they don’t judge it. I am thankful for the group of doctors and nurses I need to live. Not only that they all help keep me alive (and sane!) but because I’ve somehow found doctors that listen and work with me, rather than talk down to me.
What advice would you give someone post 14 years after nearly dying? I feel like I should put a caveat on my advice: most of this is advice I have to give myself regularly.
Stop trying to find the meaning of life. Just live. Don’t live to work, live for life. If that’s family, if it’s creating, if it’s traveling, cool! Find work/life balance and find it early. I didn’t have it at 20; I really didn’t have it until 33/34. It is life changing. If there is a secret to the universe, a “reason to be here” then I have figured out what my reason is, and what the universe’s reason might be. I don’t love the second, but I can only control the first.
Down time is healthy. Doing “nothing” is healthy. Producing something at all times is not healthy.
You can only control you, and that fucking sucks. Let me be clear — it’s a good thing I can’t control other people or how they react, and it’s even better no one can control me! Does that mean I like it? Absolutely not! Humans are unpredictable and you have to learn to roll with it.
Giving 100% and spoon theory actually overlap, and it took me way too long to realize that.
Notebooks don’t buy happiness. But an e-ink tablet is coming very close.
Teaching your cat to play fetch (or to “bring me the toy so I’ll play with you”) is a great idea in theory, ruins bathroom time quite frequently.
Know your worth. And you are worth it.
#happy death day#advice#advice 14 years removed#immunosupressed#orphan disease#near death tw#idk#thanks#thanksgiving#this day isn't always thanksgiving#but it's nice excuse to hug my mom#and my youngest siblings
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#once upon a monster of the week#reddington#welcome to reddington#actual play podcast#actual play#twitch show#ttrpg#dnd#monster of the week#audio ficiton#audio drama#audiodrama#horror comedy
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God it fucking sucks to see my dad doing a father daughter dance at my step sisters wedding.
It fucking sucks that no one finds it weird Caitlin and I aren't there.
It fucking sucks that I have to keep reminding myself that he is legit a shitty dad to me
It fucking sucks how much my brain still says "but what did I do wrong"
#my dad forgot a third of my birthdays#he had my mom thrown in jail for shady bull shit#he didnt attend my college graduation#he called me from my sisters' high school graduation that he didnt invite me#to ask me if he could stay at my place in nyc#he told me to never marry a black person. and that hes not racist
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It's kind of fucked up how many people are on game shows...not for fun frivolous things like "oh I want to go on vacation" but instead it's "oh I really want to help my kid not go into debt after college" or "oh my two older brothers are both disabled and I'd love to help them out" like
what the fuck
I mean this is Hunger Games right
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We are live! We are playing Urban Shadows with Brian from Dungeons and Pop!! This episode is already so great!!
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#animorphs#andalite#andalites#Aximili-Esgarrouth-Isthill#Aximili-Esgarrouth-Isthill x Marco#ax x marco#not my art#pinup#andalite pinup#andalite pin up#pin up#monster fucker
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Literally everything is making me burst into tears.
I think it's time to admit I'm in a bad depressive episode.
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Listen
There has been a discussion on how hot Raz's voice is since he's appeared
It's good to find a picture for him?
Dropping our two new genders
Our two new tumblr men?
Our two terrifying blorbos
Two of the confirmed NPC supes on the show?
#not thinking about his future stuff#once upon a monster of the week#haunted doll#haunted doll watch#RazBarry#haunted doll wife#wife#Mercy Finnigan#Welcome to Reddington#Reddington#Lauren Tucker#Razhadonk#Isaiah Rothstein#tumblr crush#two genders#ttrpg#dnd5e#monster of the week#audio drama#podcast#audio fiction#ttrpg character#demon#wonder which circle of hell he's from
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So earlier my bestie texted me: Dean Pelton is the Hooty of the Community world
And I was deep into the Chris Evans puppies video just loving life and enjoying a happy cute moment (that man loves dogs and it's perfect)
And now I am starting to process it
And I am so angry that I think he's like 90% right?
Like my only argument is that I think of Hooty as an aro ace GOD
And Dean Pelton is his own sexuality
Which I GUESS IS ALSO AN ARGUMENT FOR THEM BEING THE SAME?
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Back to doing what I love to do, which is talk about this amazing cast while you get to see and meet them a little!
RHPS has a new episode out this week – I haven’t listened to it yet, but I can 100% guarantee it’ll make you laugh so hard you cry in the best way. Also, it stars Emily C. A. Snyder as CiCi! Emily 1) can keep a character secret SO WELL 2) is so amazingly talented as all forms of CiCi 3) Is also such a sweetheart and one of the nicest and coolest people behind the scenes. Emily’s character portrayal leaves so many of us jealous that we cannot shape shift!
I love all the cast members and groups, but there is something about the ADHD duckling nature of the RHPS group that makes them so much fun to talk about!
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There are many new friends on the archive, and many are young and have only known social media, which is why I wanted to say something!
Ao3 does not have an algorithm! It isn't a social media site, it's an archive.
Posting fics on Tumblr isn't the same as posting fics on Ao3
Ao3 is like a giant virtual bookshelf, and everyone is able to add their own stories to the bookshelf, all stored with different tags and different fandoms. Works are automatically sorted by newest to oldest, but filters, looking at bookmarks, and using the search function can change that.
Certain works are not pushed to the top like social media posts. More kudos and reads don't push a single work to more viewers by some algorithm. Unless otherwise filtered, works will be at the top of the page based on how recent it was posted.
Smaller fandoms get less views, less kudos, less bookmarks, and larger fandoms get more simply because of the number of people inside the fandom.
Ao3 is a giant virtual bookshelf- there is no algorithm, and there is no man behind the shelf pushing certain books forward.
Happy reading, and if you'd like to have more people notice a fic, why not share it with them! Send a dm to a fandom friend and it might turn into one of their favorite fics!
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Is it me or does Jupiter in this also look like calcifer from howls moving castle
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this kid’s post and his replies to people’s questions are so pure I’m sobbing
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argyle is the person you want on your team in an apocalypse
LOOK AT THIS LOOK AT THIS:
WOODWORKING skills
COOKING skills
TRACKING skills
FORAGING SKILLS??!
GUYS????? argyle needs to and will hopefully become an integral, ESSENTIAL member of the big kids gang. he knows so much and this is only addressing his survival skills
in THIS HOUSE, we love argyle!!!
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If Amazon successfully buys the Roomba company then they will own one product that lets them spy on your front door and another product which creates scans of the inside of your house. Probably nothing to worry about
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