kateeandchronicillness

[kateeandchronicillness]

exactly.

[kateeandchronicillness]

[kateeandchronicillness]

[kateeandchronicillness]

My friend explained the spoon theory to our DM and he was like “ohhh so it’s like when you’re out of spell slots and you need to take a long rest to regain them all” and now I keep thinking of myself as being out of spell slots instead of out of spoons

[kateeandchronicillness]

who needs friends when you can be constantly accompanied by your chronic pain???? ha ha hah…

[kateeandchronicillness]

Bad news: your body feels like shit

Good news: it isn’t as bad as it was during that one week back in December

[kateeandchronicillness]

Wow, so this is a HUGE resource for spoonie job-hunters that we’re hoping will take off.

We heard about this through Kathy Reagan Young of FUMSnow, who’s got some more neat stuff in the works… we’ll keep you posted on that one!

[kateeandchronicillness]

[kateeandchronicillness]

How chronic pain affects the senses

When you need to put captions on the tv, and cant hear what people are saying because the pain is “too loud”

When you need to close your eyes, or look away because it physically hurts to see, or youre too tired to use your eyes right now. Or the pain is “too bright”.

When you cant be touched, brushed against, wear clothes or blankets because the pain makes you too sensitive, and “even air can hurt”

When you cant enjoy eating or the taste of things because you cant ignore the pain and fatigue that comes with chewing/swallowing/after affects of eating/picking up and putting down utensils. So pain literally makes food “hard to taste/hard to eat”

When smelling things immediately make you sick, migraine, make the pain worse because inhaling and exhaling are actually too much and the smell makes you overstimulated and thus makes it so “youre in too much pain to handle that smell”

We need to talk more about how pain affects our senses, these arent anything to be ashamed of. If you suffer from this, im sorry but i want you to know what youre going through isnt fake, it is very very real. And it sucks.

Your valid, your struggle is valid, i believe you and i believe in you.

[kateeandchronicillness]

hello friends, i know i’m pretty much never here these days but if you could please take the time to at least click the link or just read what i have to say?

i feel like anyone who follows me knows how much i love my dog, he’s my heart, he’s my whole world. i’m a chronically ill woman who, nine years ago, desperately needed a reason to live when i learned that i was likely never going to be healthy again. i was not only sick but lost and scared and downright angry sometimes, i needed something to live for, something to love and care for, something to get me out of bed each day. enter digby, who picked me out and crawled right into my lap when i sat down in the kennel of puppies.

he became everything to me that day and for the next (nearly) nine years. now, though, he needs surgery. for the last six weeks, he’s had a rather large cyst on the left ankle of his hind left leg that’s made it near impossible for him to get much use out of it. he’s gone through blood work ups, x-rays, a culture on the cyst, and finally we met with an orthopedic specialist last week who has told us amputation and a biopsy on the limb is the best bet for digby to lead a happy and full life. seeing him in this much pain as he has been and knowing he won’t be able to do the things he loves as long as he’s in it has broken not only my heart but my family and friends’ as well.

no one likes asking for money and this is truly humbling for me but there’s no way we can afford the $5000 that was estimated. so, i’m asking for some assistance from the kind people on the internet. please help me and my family help the dog who saved my life. if you can manage to donate, even a dollar, i don’t think i’d ever be able to thank anyone enough. to anyone who shares this, even if you can’t afford to help, thank you from the bottom of my heart. any help would mean the world to me.

[kateeandchronicillness]

Being Optimistic with chronic illness like:

[kateeandchronicillness]

hello friends, i know i’m pretty much never here these days but if you could please take the time to at least click the link or just read what i have to say?

i feel like anyone who follows me knows how much i love my dog, he’s my heart, he’s my whole world. i’m a chronically ill woman who, nine years ago, desperately needed a reason to live when i learned that i was likely never going to be healthy again. i was not only sick but lost and scared and downright angry sometimes, i needed something to live for, something to love and care for, something to get me out of bed each day. enter digby, who picked me out and crawled right into my lap when i sat down in the kennel of puppies.

he became everything to me that day and for the next (nearly) nine years. now, though, he needs surgery. for the last six weeks, he’s had a rather large cyst on the left ankle of his hind left leg that’s made it near impossible for him to get much use out of it. he’s gone through blood work ups, x-rays, a culture on the cyst, and finally we met with an orthopedic specialist last week who has told us amputation and a biopsy on the limb is the best bet for digby to lead a happy and full life. seeing him in this much pain as he has been and knowing he won’t be able to do the things he loves as long as he’s in it has broken not only my heart but my family and friends’ as well.

no one likes asking for money and this is truly humbling for me but there’s no way we can afford the $5000 that was estimated. so, i’m asking for some assistance from the kind people on the internet. please help me and my family help the dog who saved my life. if you can manage to donate, even a dollar, i don’t think i’d ever be able to thank anyone enough. to anyone who shares this, even if you can’t afford to help, thank you from the bottom of my heart. any help would mean the world to me.

[kateeandchronicillness]

Am I diagnosed? Nope, I’m a sexy little medical mystery babyyyyy!

[kateeandchronicillness]

Here is your friendly reminder that pain is a fucking asshole. So take care of yourself! Because your body sure won’t care to do it for you.

[kateeandchronicillness]

My chronically ill ass: *does something that pushes my body’s limits*

Able bodied person: haha you’re gonna sleep well tonight!

Me: haha yeah

My body: haha NOPE

[kateeandchronicillness]

Stop using “it has been worse before” to invalidate your struggles. If you are struggling with a particular symptom more than usual it is okay to find it difficult to bear. There are many other variables affecting how your brain and body feel. It can still suck, even if it was worse before.

[kateeandchronicillness]

my disability holds me back and that’s okay. i can’t walk long distances/long periods, i can’t shower standing up, i can’t work, i dropped out of school. i miss out on a lot of things. my disability hinders me and that’s okay because it doesn’t make me any less of a person.