indiana-james - Tumblr blog

[indiana-james]

This heat is ridiculous. It shuts me down. When I get hot, I feel drunk. Uhh, some days are worse than others.

[indiana-james]

I love landscape photography. You can see for miles when the fields are out.

[indiana-james]

Today, August 26,2024

18:38

I wanted to start whatever this is or will turn into. So that my family will have something to look at and remember who I was before the disease took over. So prepare yourself for the good, the bad, and the ugly.

In late 2018, I was diagnosed with multiple sclerosis. In between now and then, a whole bunch of not so great things happened. There have been some really great times as well. Regardless, we won't dwell in that space for now.

So, bringing everyone up to speed on life events. Yesterday was my 49th birthday. I just had my 14th infusion of my twice a year treatment. 🙄 I'm grateful for modern medicine. 30 years ago, I'd probably already be in a wheelchair. One must come to the understanding that everything is a tradeoff. Western medicine looks at many things through a very narrow view. Diagnose and treat with medicine. One medicine to stop the MS from progressing. Meanwhile, they are destroying half of your immune system. Moving forward.. I can rant for days about how much I loath the system.

My aging parents help me with my stuff. It takes a lot to humble yourself and accept help when you need it. I also don't think they are kind of lost and just doing what they know to help out. I am so forever grateful to my parents. Without them, I would probably not be alive.

There will be a variety of things posted here. Buckle up and join me.

Picture is a couple of days old. Had to document the beard. 😁

I'm sitting here pumping some tunes. I wish I had someone to actually share time with. Maybe one day before the end.

Today was super hot outside. So I stayed inside and did some chores. I am always grateful when I can gather the strength to anything at this point. FATIGUE is real.. 🙄

I guess I'll try and find something to eat. Today was an ok day. I got depressed earlier. Managed to move past it for now. Everything happens in waves. The emotions can be very hard to restrain. And they can be triggered by the strangest things. Thankfully, they are mostly just bouts of extreme sadness. Anger is an easy go-to. One I do my best to avoid. It's still a work in progress.