cripplepunk-salad

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Let's talk about what I like to call ranch bottle inaccessibility (inspired by wrestling with a ranch bottle to get the seal off) (please tell me there's a real name for this) which is inaccessibility with packaging. Ten thousand rubber bands on toy packages, freshness seals that are impossible to get off, water bottle caps (fuck water bottle caps). They're so hard for disabled people (and children at that, why can't kids open their own toys without help?). It's pissing me off. Having to have help opening water bottles, using can openers, destroying my teeth since I was little to open toys and candy packages.

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Staring and considering sending this to my sister.

EXCUSE ME TUMBLR HELLO WHERE THE FUCK DOD THE POST I WAS ABOUT TO REBLOG GO?!?!

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Saw a new physiotherapist yesterday and I just have to say that it renews some of my faith in humanity to meet someone who just GENUINELY wants to give the best care and doesn’t view himself as smarter than you and THIS GUY IS A PRACTICING PHYSIOTHERAPIST DESPITE BEING WAY OVER QUALIFIED!!! He’s a qualified scientist with a PHD and I believe he’s also a qualified doctor?! And despite being the most overqualified person on my medical team I have worked with he treats me more like an equal than anyone else!!!

He explained EVERYTHING in depth while going through exercises/consultation. I’m autistic and a very literal thinker- And after just ONE session he’s helped me achieve understanding of what I’m supposed to be doing more than anyone else. AND he emails me notes reviewing everything from the appointment-

And he doesn’t try to oversell his skills and “comfort” me that it’ll get better. He’s real about it. ‘No you can’t be fixed but let’s strengthen your muscles because they need to work harder to stabilize your joints. Let’s work on exercises to teach you how to properly walk and move without damaging your joints’ he’s on the same level as me. No pity, no false hope and rose coloured glasses, but not allowing me to give up either, exactly what I look for.

It’s almost too bad that I’m only at this hospital for one more month because this guy is amazing. I’m definitely going to be making the most out of this month. We’re going to go over everything with my hands and writing/drawing and all that stuff next week :D so hopefully I can draw without causing lots of pain.

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Guess who went fucking ROCK CLIMBING yesterday. I think I may be bedridden.

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It's strange how, after a while of living with fibromyalgia, I have to regularly remind myself of what healthy actually feels like.

I have to remind myself that most people don't experience pain every day.

I have to remind myself that going to the park for an hour is not a big outing.

I have to remind myself that most people don't have to decide between cooking and showering.

I have to remind myself that most people can achieve more than one thing a day.

After 5 years, what I see as my baseline has distorted. It's so easy to slip back into old patterns, to try to do more than I have the capacity for, to get angry at myself, to push myself too hard.

So I have to remind myself to be gentle and patient, to pace myself, to set boundaries, and to ask for help.

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Fucking real 😭 I just start crying from it sometimes even if it’s just a low pain day

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If I say "my distress is from physical symptoms", my distress is from physical symptoms.

If I say "I don't need to see my psychiatrist, I need to see a doctor" I don't need to see my fucking psychiatrist.

If I say "I'm crying from pain", it means I'm crying from pain.

Just because I am mentally ill does NOT mean you can blame my physical disabilities on my mental ones.

THIS POST IS ABOUT PHYSICAL DISABILITIES. DO NOT FUCKING DERAIL. [pt: This post is about physical disabilities. Do not fucking derail.]

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disability advocacy went wrong when it became about inspiration porn and “differently abled” and savants. its incredible that that guy with no legs did a triathlon but your sister with no legs will not and she doesnt need prosthetics or five hour training days to deserve respect and compassion and accommodations. its incredible that that autistic guy can look at a city from a helicopter for an hour and then draw the entire detailed skyline from memory when he lands but your autistic friend cannot and they dont need to have a special Autism Power to deserve respect and compassion and accommodations. 

activism framed around “we are just as CAPABLE” means that when people genuinely are less capable they are left behind. activism framed around “we are just as WORTHY” is fundamental to radical compassion.

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Holy fucking shit this post hit me HARD. Fuck.

You know what? It’s fucking hard trying to get better. It’s exhausting managing doctors appointments, doing daily PT exercises, eating better, trying to exercise, trying to meditate, and doing ADL’s. I have had a bad crash per week trying to juggle and do all of the above.

It’s easier and less acutely painful to just coast and not actively work on ‘getting better’. Is the work worth it? I don’t know yet.

But to people who’ve tried and given up, to those who don’t even bother - you still deserve care and compassion.

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Being neurodivergent and chronically ill is crazy because you already have issues with executive functions and then your body hinders you even more. AND your sensory issues are heightened by the pain you feel.

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what if ablebodied people believed disabled people when they said stuff exhausts/hurts them, even if said ablebodied people didnt understand or couldnt relate. lol

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I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.

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Well. Seeing as they tried to shut down one disabled person- @cishetlessfashion I am physically disabled and also agreeing that cripple punk is NOT an aesthetic and you as an able bodied person saying cripple, a slur, is indeed ableist.

I understand how you brushed it of when talking one person, but rest assured there are more of us.

You should probably apologize but I can’t control you

Don't you love it when ableists show their true colors the instant they find a disabled person they disagree with?

Cripplepunk is not an aesthetic. There is no one cripplepunk look. Disabled liberation being made into an aesthetic is a death rattle for us all.

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so you're a little person with did, scolosis, lung cancer, npd, paraplegia, brain damage, vEDS, blindness, deafness and ''many more'' but you're somehow able to type coherently and use social media, attend school and survive this long. yeah, okay, sure jan. i'm sensing another hiv-living type of pretending in the works, and that's not even touching on the transfem intersex poly muslim lesbian stuff. get a job.

yk i shouldnt really be answering this because youre obviously just wanting my attention but whatever your logic is dumb as hell 1. im not in school anymore. i actually had to get out because of my disabilties and a personal situation happening. i also had accomodations BECAUSE IM DISABLED. 2. you can.. have multiple disabilities. idk if you knew that.. but mental illness and physical disabilities are common with eachother. also, many genetic conditions run in my family, both my parents are disabled. the conditions i have cause other conditions. or the injuries i had caused multiple effects. 3. ive said this many times on my blog but i dont.. talk coherently? my caregiver helps me type and communicate because shes also my interepter. i sign to her, she types what i signed. also, i have multiple ways to help me nagivate my disability online. i have cochelar implants that allow me to hear my screenreader, allowing me to know what others are saying. i also use a braille keyboard (i dont use it often though because yk, my caregiver often types for me) 4. ive also mentioned this several times in my blog, but im not expected to live long?? like... i am dying. youre acting like im not. i was born with vEDS, i was diagnosed with cancer later in life. 5. ah yes you cant be all those things at once. it isnt like that doesnt make sense. yes... you can be intersex. and polyamorous. and a lesbian. and transfem. and muslim. my religion, gender, and identity are not things you can just say im lying about LMAO??? like ohh noo you have too many labels you cant have that many youre faking like literally nobody in the real world really cares. i have partners who love me very much! which if youre so miserable to go ask a disabled people and fakeclaim them for literally no reason, then... thats on you! anyway, this is really fucking stupid. stop fakeclaiming disabled people, if you seriously have a problem with my blog just block me and move on. it isnt my job to cater to you fuckface. you dont know my life and i dont know you, so shut the fuck up? "get a job" i think you forgot to realize im disabled, im physically unable to work. im under full care of two caregivers for a reason? i cant do a lot, honestly. its why im on social media so often because its something i can do, even if i do need help to use it. leave me tf alone, just because im disabled doesnt mean i dont have a life and feelings and thoughts. theres a reason i say "many more" because i dont want to be fakeclaimed just because im disabled and i have a lot of problems. im severely disabled, if you cant handle that, then leave.

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I started using a wheelchair months before getting a diagnosis.

That wheelchair gave me my freedom back. And I didn’t wait for a doctor to sign off on it when I already needed it. When I already knew it would make my quality of life so much better.

Do your research and figure out what’s best for you. Doctors are professionals and you should listen to them, but you know your body and your limits.

Be kind on yourself, no matter whether you’re disabled or not, it is ok to accommodate yourself.

friendly reminder that you don't need any diagnosis or disorder to adapt your routine to accommodate you! sit down in the shower. brush your teeth and wash your face in the shower. bring a chair to the kitchen while you cook. use unscented products. your routine should be built for you.

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Anyone have any suggestions for a physically disabled person who is an adrenaline junkie??? I just want something exciting and thrilling to do its been WAY too long

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Chronic pain is a fuckass. Everything hurts and I am so so tired. It’s hard to fucking open my mouth without painfully sublocating my jaw. My head is heavy and I’m using immense energy to keep my head over my shoulders. My knees hurt my hip hurts my spine hurts my jaw hurts my fingers wrists and ankles HURT. I am so so so done with this I hate being hypermobile and I just want a doctor to give me any fucking medication or treatment for the pain. Tylenol and Advil don’t fucking work.