chronicdivergent

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JOINTS IS PAIN

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In case anyone finds it helpful because mobility aids are horrifically expensive and inaccessible…

And for those people who have access to mobility devices but might benefit from a second chair they can abuse without risking expensive damage…

Erik Kondo has made a website, Open Source Innovations, that details plans for DIY wheelchairs. These wheelchairs can be made from common materials like wood, plastic, and pvc. They are lightweight and can be custom fit to the user allowing from the same degree of movement you would get from a custom chair. And they are durable and easily repairable. (he has been stress testing his latest design by dropping it down stairs, dropping it out of a car, launching it across a driveway, and throwing it off a deck). Its 12lbs and I think he said its was in the $200 ish range for parts.

He also is working on cheap, open source, accessible designs for beach chairs, off road chairs, motorized attachments (think smart drive), and so on. Plus he skateboards in his wheelchair. Cool dude, helpful info, pass it on.

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joints will see you taking a step & be like "i bet i could improve on this with my Cool New Trick." & theyre wrong

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So I reblogged that “vaccines cause adults” post from @copperbadge and predictably my inbox has gone to shit with a handful of people asking me how I can “trust” vaccines and if you’re looking for me validate your fear mongering over vaccines causing autism, I’m afraid you’re in the wrong place.

I’m the bitch that has anaphylactic reactions to vaccines due to my mast cell disorder and still turn up for my Covid booster shots with my epi pen in one hand and a fistful of Benadryl in the other.

I had reactions to all my MMR boosters and every other booster I’ve ever needed and I still show up because I look at the choices and I prefer the risk of potential immediate death over potentially getting shit like measles and spreading it to the wider community.

The only one I don’t get is the flu shot because the speed at which I react is terrifying and it’s in my file that I’m not allowed it anymore. Doctors made that decision for me, I didn’t.

My MCAS might make me a crunchy hippy dippy bitch against my will, but I’m a science based crunchy hippy dippy bitch and vaccines do not cause autism.

Measles will fucking kill your kid though.

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Wild concept that shouldn’t be wild and the coldest take ever: disabled adults are *adults* and not just children trapped in adult bodies

Disabled adults have sex

Disabled adults do drugs

Disabled adults curse

Disabled adults get piercings and tattoos

Disabled adults can make adult decisions and act and behave like adults because we are adults

It’s just so weird for people to constantly infantilize me all because of my mobility aids when I’m not a child!!!

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A disabled person being able to do something does not mean:

They can always do it under any circumstances.

They’re not really disabled.

Anyone else with the same disability can also do it.

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it’s so frustrating when you mention something related to your disability and then someone takes it as a joke, but when you tell them you’re serious they go from seeing it as funny to seeing it as weird

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uh oh.

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What they don’t tell you about DID is that your brain will force you against your will to become both the city of omelas and the child whose perpetual misery allows everyone else to be happy. It’s totally possible to free the child and have everyone else be okay btw but your doctor doesn’t believe that ‘omelas child’ is a real condition.

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from @.mprnews on Instagram.

Not sure how many of y'all saw this, but the combined misogyny-ableism-transphobia was off the charts. I am glad that he did get his top surgery, has support, and that its pursuing it's goals to advocate for other disabled + trans people.

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people with tooth decay aren't bad people. they aren't lazy either. neither are they unclean or irresponsible. tooth decay doesn't make you a bad person. you don't deserve mockery, judgement, or tooth pain for having any. the only thing people with tooth decay deserve is healthcare.

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itt ergonomic keyboard

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I don't care what your perception of the female body has been warped into by the media and advertising prevalent in culture. eat some goddamn carbs

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disability advocacy went wrong when it became about inspiration porn and “differently abled” and savants. its incredible that that guy with no legs did a triathlon but your sister with no legs will not and she doesnt need prosthetics or five hour training days to deserve respect and compassion and accommodations. its incredible that that autistic guy can look at a city from a helicopter for an hour and then draw the entire detailed skyline from memory when he lands but your autistic friend cannot and they dont need to have a special Autism Power to deserve respect and compassion and accommodations. 

activism framed around “we are just as CAPABLE” means that when people genuinely are less capable they are left behind. activism framed around “we are just as WORTHY” is fundamental to radical compassion.

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If You’re Gonna Make Something Wheelchair Accessible, Don’t Make it a Thing

Here’s some examples awkward accessibility being a thing:

Your at a hotel that has a lift to get you from one sub-floor to another, but the lift can only be unlocked and operated by one specific person that the hotel now has to go find. Sure, they’ve made the entrance to the sub-floor is accessible, but now it’s a thing.

The buses are wheelchair accessible but the driver has to stop the bus, take 30 seconds to lower the goddamn ramp, move passengers out of their seats, hook up the straps and then secure you in the bus. Sure, they’ve made the busses accessible but now it’s a thing.

The restaurant has an accessible entrance, but it’s past the trash room and through the kitchen. Sure, the restaurant is accessible, but now it’s an insulting thing.

Here’s some great examples of accessibility not being a thing:

The train to the airport pulls up flush with the platform. I board with everyone else and sit wherever the fuck I want. Riding the train is accessible and not a thing.

In Portland, I press a button the side of the streetcar and a ramp automatically extends at the same time the door opens. I board in the same amount of time as everyone else. This is not a thing.

I get that it is difficult to design for wheelchair accessibility, but folks need to start considering the overall quality of the experience versus just thinking about meeting the minimum requirements.

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one of the most enlightening realizations ive had was finding out that non-24 hour circadian rhythm people were a pretty large group and most of us have oddly similar cycles of usually around 28hr internal "days" and this masquerades as "insomnia" but if allowed to sleep and wake naturally we will just advance forward through time an extra 2-4 hours a day at a relatively stable pace. we can't go to school or jobs or even run errands on normal schedules without massive pharmacological and behavioral intervention. most of the people who have been diagnosed or figured it out themselves will report horrific, life-ruining disruption in their professional lives and terrible health from accrued lack of sleep. this disorder is most common in vision-impaired people which seems to suggest it's related to light cues. anyway just thinking about this as extremely loud yard work woke me up at 8am for the second day in a row