bibliocharlie

[bibliocharlie]

November is all about taking afternoon naps and waking up disoriented from the realities

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[bibliocharlie]

chase for @ragingtidalwaves

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Why do so many people make tiktoks while they're clearly driving. What the fuck. Stop that shit, you're gonna kill someone.

[bibliocharlie]

For those people who need to hear it, there is nothing wrong with going back into the closet for your own safety. You aren't less queer because you can't be queer publicly. You aren't less trans because you have to act like you're not trans.

If you need to start going by your old pronouns or quietly go back into the closet to be safe - you are allowed to do that. Please do that if it means you're alive.

Your safety is important.

You are important.

And if you know someone who has to do this, don't push them. Don't out them. Follow their lead. People's safety is more important that grandstanding.

[bibliocharlie]

sifting through my notes on military cultures and waiting for inspiration to strike this essay season

[bibliocharlie]

things that have helped me manage my chronic pain:

frying myself with a heating pad/hot water bottle

drinking hot tea

sleeping with a maternity pillow

using a shower seat

massage balls

grabby reacher claw thing (to pick stuff up off the floor so i don't have to bend)

single-use disposable toothbrushes (to brush my teeth in bed when i don't have the spoons to get the sink involved)

baby wipes and dry shampoo (see above)

meal replacement drinks (to drink when i don't have the spoons to prepare and/or eat a meal)

drinking straws (to drink when i don't have the spoons to lift my head and drink as i normally do)

mobility aids

sitting instead of standing while doing errands, where possible

using a lift/escalator instead of the stairs, where possible

things that have not helped me manage my chronic pain:

one single fucking doctor

[bibliocharlie]

Seasonal affective disorder havers how are we all coping

[ID: Two versions of the cat screaming at food bowl meme. The first has a clock showing 4pm and is captioned "WHY IS IT NIGHTTIME". The second has a November calendar and is captioned "WHY IS IT TEMPERATURES".]

[bibliocharlie]

But the way we perceive health and ability is truly problematic. No, eating protein shakes, avoiding ultra processed food, training everyday, running on the treadmill, etc. don’t put you out of the “dangers” of disability and illness (if we want to call it that).

No one is immune to illness, bad genes, accidents or old age. And becoming disabled or ill isn’t synonym of failure or “bad behaviours”.

Our bodies are fragile. Human beings are fragile. That’s why disability needs to be taken into account more seriously and considered as a social issue. For you, your loved ones and all the people you don’t know of but who deserve to be treated with dignity and respect no matter the state of their health and abilities.

I didn’t get sick at one year of age because I deserved it or because I was morally corrupt. How could I be? I was 1. It just happened. It was an autoimmune disease. That’s it.

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Really 🤎

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Even though no one is talking about it, disabled people will be the group that sufferers tremendously (if not the most) compared to other marginalized groups due to this US election outcome.

If Trump repeals the ACA, insurance won’t cover our medical treatments, aids, or procedures. It’s likely that SSDI (many people’s only source of income) will be taken away, other benefits will have a work requirement that is impossible for most disabled people to meet, educational protections will be removed for disabled students, prices of medication (that we need to live) will go up, the list goes on.

Many of us will die, become extremely ill, and/or become homeless due to even just the repeal of the ACA and removal of some SS/SSDI (many people’s only form of income). It’s uncertain what exactly is going to happen and when, but disabled Americans are going to suffer. Please be aware of what’s happening to us these next 4 years, try to advocate as much as you can, and support your disabled and chronically ill community members (since the federal government obviously will not).

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Glacier National Park, Montana, USA by Justin Krompier

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[bibliocharlie]

I feel like most able bodied people see wheelchairs as the worst thing that could happen to a person. When I discuss my want to have a wheelchair for various reasons, most peoples first reaction is to be surprised that I could voluntarily consider that.

But what they fail to consider is that, unlike them, I very much hate walking. It causes me pain and fatigue, it is a miserable experience.

So to any able bodied person reading this, yes some wheelchair users like walking, some want to gain that ability back, but that does not invalidate the feelings of wheelchair users who absolutely hate walking.

[bibliocharlie]

Anyway, able bodied people need to stop blaming people’s chronic pain on their diets.

Like no mom, my hips aren’t in excruciating pain because I ate a couple cookies last night.

[bibliocharlie]