arentiinpain

[arentiinpain]

Long time no see.

Anyways I sure wish my body would stop half menstruating already. So many nearly stained underwear with all the pain from endo plus the bloating and cramps? Nah

[arentiinpain]

Me: wow I can’t believe I’m so disabled. I can’t do the kinds of sporty outdoorsy things I used to do I’m not good at much other than--

Me: (makes a kickin bbq chicken from scratch)

Me: nevermind I just had to cook again

[arentiinpain]

Can my body just. Chill for a while. And not chill as in “shake as if you’re chilly even though you’re not” chill I mean start acting like most other bodies work. I don’t know if I over exerted myself doing basically NOTHING today or what but boy howdy have I been puny and completely off for all of today

[arentiinpain]

First post who dis

So this is where I’ll scream into the void about health issues. I have plenty.

Currently diagnosed with CPTSD, BPD, PCOS, endometriosis, hypothyroidism, NAFLD, gastritis, GERD, several vitamin deficiencies, and a temporary diagnosis of both orthostatic hypotension and some kind of autoimmune issue. The current theory is I have either dysautonomia and/or hypermobile ehlers danlos syndrome. I’ve been waiting to see a specialist for the eds idea for over a year now because there’s a single doctor in my region who specializes in it.

I’m also quite queer (genderfluid trans, they/he) and luckily on HRT (testosterone). I finally got a consultation with the single plastic surgeon in my region who does top surgery, but by they time our meeting comes around I’m not going to have health insurance that would cover it. So I’m trying to find a job with health insurance so that meeting that I’ve been waiting over a year for doesn’t end up being cancelled. Of course, I cannot personally fund this surgery because I’m unemployed in my mid-twenties in the US and am also chronically ill and disabled. I’m wanting to apply for disability in my state (at least to shove it to future employers) until I get further diagnoses to figure out why I’m fainting so often and I’m generally always in joint pain. So. That’s been fun.

So far I’ve had to leave 2 jobs (one of which was a dream job) because of my health, one of which (said dream job) I got fired for. Since I wasn’t legally disabled I couldn’t do anything about it. Yay USA.

So if listening to a man man’s ravings about being an afab disabled chronically ill queer in a red, mainly rural state in the US is your thing I’m sure I’ll be dropping occasional updates/vents/screamings. The main reason why I’m moving to tumblr to do this is because I no longer want to overshare and vent to my friends on our personal screaming chats. If you’re one of these friends, you’re free to follow me here btw.

Now I’m off to get my heating pad and an ice pack. Wahoo.