ardently-queer

[ardently-queer]

Meeting Isobel with Durge is always fun, both for the fact that Durge's first impulse is to declare their desire to vivisect and cannibalise her and for the fact that I just know this scenario is Ketheric's worst nightmare. Like if you asked him whether he'd rather have Isobel in a room alone with Aylin or Durge he'd have a hell of a time deciding which he hates more.

[ardently-queer]

y'all.... did you know that if you're not scared of everything all the time, you can just flirt with your friends??????? this fuckin rules. You can like, make out with them and give them head and stuff. A+ shit right here. ocd meds ftw.

[ardently-queer]

saw an opinion i disagreed with and didn’t say anything about it. +350XP

[ardently-queer]

"Imagine still posting fanart a whole year after the game came out" brother what are you talking about

[ardently-queer]

Shower your affection, let it rain on me

Pull down the mountain, drag your cities to the sea

[ardently-queer]

i think it's mostly that it just annoys me when people cite articles like "50 percent of americans can't read" and act like that article is talking about 14 year old twitter users who argue with you about yaoi and not like. people below the poverty line.

[ardently-queer]

"I believe that humanity is meant to thrive and flourish, and that doesn't happen without context. And the arts and the humanities? They are our vessel for context." - LeVar Burton

[ardently-queer]

playing science telephone

Hi folks. Let's play a fun game today called "unravelling bad science communication back to its source."

Journey with me.

Saw a comment going around on a tumblr thread that "sometimes the life expectancy of autism is cited in the 30s"

That number seemed..... strange. The commenter DID go on to say that that was "situational on people being awful and not… anything autism actually does", but you know what? Still a strange number. I feel compelled to fact check.

Quick Google "autism life expectancy" pulls up quite a few websites bandying around the number 39. Which is ~technically~ within the 30s, but already higher than the tumblr factoid would suggest. But, guess what. This number still sounds strange to me.

Most of the websites presenting this factoid present themselves as official autism resources and organizations (for parents, etc), and most of them vaguely wave towards "studies."

Ex: "Above And Beyond Therapy" has a whole article on "Does Autism Affect Life Expectancy" and states:

The link implies that it will take you to the "research studies" being referenced, but it in fact takes you to another random autism resource group called.... Songbird Care?

And on that website we find the factoid again:

Ooh, look. Now they've added the word "some". The average lifespan for SOME autistic people. Which the next group erased from the fact. The message shifts further.

And we have slightly more information about the study! (Which has also shifted from "studies" to a singular "study"). And we have another link!

Wonderfully, this link actually takes us to the actual peer-reviewed 2020 study being discussed. [x]

And here, just by reading the abstract, we find the most important information of all.

This study followed a cohort of adolescent and adult autistic people across a 20 year time period. Within that time period, 6.4% of the cohort died. Within that 6.4%, the average age of death was 39 years.

So this number is VERY MUCH not the average age of death for autistic people, or even the average age of death for the cohort of autistic people in that study. It is the average age of death IF you died young and within the 20 year period of the study (n=26), and also we don't even know the average starting age of participants without digging into earlier papers, except that it was 10 or older. (If you're curious, the researchers in the study suggested reduced self-sufficiency to be among the biggest risk factors for the early mortality group.)

But the number in the study has been removed from it's context, gradually modified and spread around the web, and modified some more, until it is pretty much a nonsense number that everyone is citing from everyone else.

There ARE two other numbers that pop up semi-frequently:

One cites the life expectancy at 58. I will leave finding the context for that number as an exercise for the audience, since none of the places I saw it gave a direct citation for where they were getting it.

And then, probably the best and most relevant number floating around out there (and the least frequently cited) draws from a 2023 study of over 17,000 UK people with an autism diagnosis, across 30 years. [x] This study estimated life expectancies between 70 and 77 years, varying with sex and presence/absence of a learning disability. (As compared to the UK 80-83 average for the population as a whole.)

This is a set of numbers that makes way more sense and is backed by way better data, but isn't quite as snappy a soundbite to pass around the internet. I'm gonna pass it around anyway, because I feel bad about how many scared internet people I stumbled across while doing this search.

People on quora like "I'm autistic, can I live past 38"-- honey, YES. omg.

---

tl;dr, when someone gives you a number out of context, consider that the context is probably important

also, make an amateur fact checker's life easier and CITE YOUR SOURCES

[ardently-queer]

it does still make me insane specifically how many queer people lovingly embrace astrology. I went to a poetry workshop yesterday that was genuinely quite good but also included an option to disclose astrology designations during introductions and so many people broke out some variation of "I'm a [x] sum but I have a [y] placement and it SHOWS" girl no it doesn't. that's meaningless correlation you completely invented the causation

[ardently-queer]

More of Matheo and Lily :) life is hard for a goth

[ardently-queer]

Just a couple of foxes, nothing out of the ordinary

💥  [Ko-fi | Redbubble | Twitter | Youtube | INPRNT] can be found in pinned post.  

[ardently-queer]

joints will see you taking a step & be like "i bet i could improve on this with my Cool New Trick." & theyre wrong

[ardently-queer]

what is the FUCKING POINT then???

[ardently-queer]

when you’re trying to write and your last two functioning brain cells start yelling at each other

[ardently-queer]

I notice sometimes in queer and feminist spaces the idea of "this group is generally given more leniency and privileges in wider society; it's okay for us to be critical or even a little nasty to them because anywhere else they'd be praised". and that's understandable, i think. when you have real issues with men and how men act, it's ok to express that and to mock mens behavior. cis men who are generally praised and celebrated in society should be able to take some mean jokes or criticisms and accept they're not always going to be lauded.

but since queer and feminist spaces are generally more accepting of trans people and the wider society is not, this is also projected on to trans men. "trans men are men" was an affirming statement to our validity, but that was interpreted as "since trans men are men, and men are celebrated by society, I get to be a little nasty to them because the rest of society worships men. they can take it."

but the rest of society doesn't have that same level of trans acceptance. they don't see trans men as men, they see trans men as mentally ill, broken, mutilated women. so it's absolutely aggravating when we turn to queer and feminist spaces for solidarity, we face the same reactive nastiness cis men get and are told "come on, trans men are men. you are celebrated in society. you can take it." and when we look at the rest of society there's no celebration. there's only more nastiness and cruelty. so how can we "take it" when we have no community that accepts us and treats us without mockery? we don't have the shelter of acceptance that cis men have in the status quo, and sometimes we can't find a small umbrella of acceptance in queer communities either.

to be honest, I think a lot of people view trans men as a safe punching bag to vent their frustrations with men. you can mistreat a trans man and he's probably not going to fight you back since he's already so beat down. you can feel like you put a man in his place, you can feel like you're resisting the patriarchy. but all you did was act cruel to a marginalized person. and you know if you treated a cis man like that you might be putting yourself in danger, cos he might not take it lying down and he might not care as much about your wellbeing!

trans men are men, but trans men are not cis men. cis men are lauded and celebrated in society as long as they conform to the gender roles that were placed on them at birth. and this privilege is extremely conditional and not equally spread between men of different sexualities, races, ethnicities, ability, age, etc; trans men and intersex men are thrown to the side completely. I understand needing to vent about men. trans men do it too. but a persistent attitude of resentment and cruelty towards all men, including trans men, is not activism. all you do is push marginalized men out of the only communities they belong

[ardently-queer]

Death of the author feels like such a white take tbh

[ardently-queer]

Less magic schools. More magic universities. Unlearn the simplified models of your secondary education. Discover how to reference scrolls written by a wizard possessed by a different wizard. Identify bias in the voices that whisper from beyond the veil. Have your institution be accused of promoting a Merlinist agenda. Become addicted to energy potions.