aceshigh10987666

[aceshigh10987666]

[aceshigh10987666]

[aceshigh10987666]

i love being a girl because (insert action that any human being can do) this is girlhood girly girl i'm just a girl girl dinner girl math silly little girl job girl girl girl girl girl girl girl girl girl you're reinventing gender essentialism

[aceshigh10987666]

[aceshigh10987666]

Wait what's a buildings fire evacuation plan if you aren't supposed to use the elevator to get down

[aceshigh10987666]

I've been disabled for almost 29 years. Here's what I've learned.

Tablets sink and capsules float. Separate out your tablets and capsules when you go to take them. Tip your head down when taking capsules and up when taking tablets. Liquigels don't matter, they kinda stay in the middle of whatever liquid is in your mouth.

If your pill tastes bad, coat it with a bit of butter or margarine. I learned this from my mom, who learned it from a pharmacist.

Being in pain every day isn't normal. Average people experience pain during exceptional moments, like when they stub their toe or jam their finger in a door, not when they sit cross-legged.

Make a medical binder. Make multiple medical binders. I have a small one that comes with me to appointments and two big ones that stay at home, one with old stuff and one with more recent stuff.

Find your icons. Some of mine include Daya Betty (drag queen with diabetes), Stef Sanjati (influencer with Waardenburg syndrome and ADHD), and Hank Green (guy with ulcerative colitis who... does a bunch of stuff). They don't have to be disabled in the same way as you. They don't even have to be real people. Put their pictures up somewhere if you want; I've been meaning to decorate my medical binders with pictures of my icons.

Take a bin, box, bag, basket, whatever and fill it with items to cope with. This can be stuff for mentally coping like colouring books or play clay or stuff for physically coping like pain medicine or physio tape.

Decorate your shit! My cane for at home has a plushie backpack clip hanging from the end of the handle and my cane for going places is covered in stickers. All of my medical binders have fun scrapbooking paper on the outside. Sometimes, I put stickers and washi tape on my inhalers and pill bottles. I used my Cricut to decorate my coping bin with quotes from my icons, like "I've seen enough of Ba Sing Se" and "I need you to be angrier with that bell".

If a flare-up is making you unable to eat or keep food down, consider going to the ER. A pharmacist once told me that since my eye flares can make me so nauseous that I cannot eat, then I need to go to the hospital when that happens.

Cola works wonders for nausea. I have mini cans of Diet Pepsi in my coping bin.

Shortbread is one of the only things I can eat when nauseous. Giant Tiger sells individually-wrapped servings of shortbread around Christmas or the British import store sells them year-round. I also keep these in my coping bin.

Unless it violates a pain contract or something, don't be afraid to go behind your doctor's back to get something they are refusing you. I got my cardiologist referral by getting in with a different NP at my primary care clinic than who I usually saw. I switched from Seroquel to Abilify by visiting a walk-in.

If you have a condition affecting your abdomen in some way (GI issues, reproductive problems, y'know) then invest in track pants that are too big. I bought some for my laparoscopy over a year ago and they've been handy for pelvic pain days, too. I've also heard loose pants are good for after colonoscopies.

Do whatever works, even if it's weird. I've sat on the floor of the Eaton Centre to take my pills. I've shoved heating pads down my front waistband to reach my uterus.

High-top Converse are good for weak ankles. I almost exclusively wear them.

You can reuse your pill bottles for stuff. I use my jumbo ones to store makeup sponges and my long skinny ones to hold a travel-size amount of Q-Tips.

Just because your diagnostics come back with nothing, it doesn't mean nothing is wrong. Maybe you were checking the wrong thing, or the diagnostic tool wasn't sensitive enough. I have bradycardia episodes even though multiple cardiac tests caught nothing. I probably have endometriosis even though my gynecologist didn't see anything.

You can bring your comfort item to appointments, and it's generally a green flag when someone talks to you about it. I brought a Squishmallow turkey (named Ulana) to my laparoscopy and they had her wearing my mask when I woke up. I brought a Build-A-Bear cat (named Blinx) to another procedure and a nurse told me that everyone in the hall on the way to the procedure room saw him and were talking about how cute he was. Both of those ended up being positive experiences and every person who talked to me about my plushies was nice to me. If you don't feel comfortable having it visible to your provider during the appointment, you can hide it in your bag and just know it's there, or if you're in a video appointment, you can hold it below frame in your lap.

Get a small bucket, fill it with stuff, and stick it in your bed (if you have room for it). I filled a bucket with Ensure, juice boxes, oatmeal bars, lotion, my rescue inhaler, etc. in October 2023 in anticipation of my laparoscopy and I still have it in my bed as of January 2025.

If your disability impacts your impulse control (e.g. ADHD, bipolar disorder), you should consider setting limits around your spending -- no more than X dollars at a time, nothing online unless it's absolutely necessary, and so on. Or, run these purchases by someone you trust before committing to them; I use my BFF groupchat to help talk sense into myself when I buy stuff.

Feel free to add on what you've learned about disability!

[aceshigh10987666]

I've been disabled for almost 29 years. Here's what I've learned.

Tablets sink and capsules float. Separate out your tablets and capsules when you go to take them. Tip your head down when taking capsules and up when taking tablets. Liquigels don't matter, they kinda stay in the middle of whatever liquid is in your mouth.

If your pill tastes bad, coat it with a bit of butter or margarine. I learned this from my mom, who learned it from a pharmacist.

Being in pain every day isn't normal. Average people experience pain during exceptional moments, like when they stub their toe or jam their finger in a door, not when they sit cross-legged.

Make a medical binder. Make multiple medical binders. I have a small one that comes with me to appointments and two big ones that stay at home, one with old stuff and one with more recent stuff.

Find your icons. Some of mine include Daya Betty (drag queen with diabetes), Stef Sanjati (influencer with Waardenburg syndrome and ADHD), and Hank Green (guy with ulcerative colitis who... does a bunch of stuff). They don't have to be disabled in the same way as you. They don't even have to be real people. Put their pictures up somewhere if you want; I've been meaning to decorate my medical binders with pictures of my icons.

Take a bin, box, bag, basket, whatever and fill it with items to cope with. This can be stuff for mentally coping like colouring books or play clay or stuff for physically coping like pain medicine or physio tape.

Decorate your shit! My cane for at home has a plushie backpack clip hanging from the end of the handle and my cane for going places is covered in stickers. All of my medical binders have fun scrapbooking paper on the outside. Sometimes, I put stickers and washi tape on my inhalers and pill bottles. I used my Cricut to decorate my coping bin with quotes from my icons, like "I've seen enough of Ba Sing Se" and "I need you to be angrier with that bell".

If a flare-up is making you unable to eat or keep food down, consider going to the ER. A pharmacist once told me that since my eye flares can make me so nauseous that I cannot eat, then I need to go to the hospital when that happens.

Cola works wonders for nausea. I have mini cans of Diet Pepsi in my coping bin.

Shortbread is one of the only things I can eat when nauseous. Giant Tiger sells individually-wrapped servings of shortbread around Christmas or the British import store sells them year-round. I also keep these in my coping bin.

Unless it violates a pain contract or something, don't be afraid to go behind your doctor's back to get something they are refusing you. I got my cardiologist referral by getting in with a different NP at my primary care clinic than who I usually saw. I switched from Seroquel to Abilify by visiting a walk-in.

If you have a condition affecting your abdomen in some way (GI issues, reproductive problems, y'know) then invest in track pants that are too big. I bought some for my laparoscopy over a year ago and they've been handy for pelvic pain days, too. I've also heard loose pants are good for after colonoscopies.

Do whatever works, even if it's weird. I've sat on the floor of the Eaton Centre to take my pills. I've shoved heating pads down my front waistband to reach my uterus.

High-top Converse are good for weak ankles. I almost exclusively wear them.

You can reuse your pill bottles for stuff. I use my jumbo ones to store makeup sponges and my long skinny ones to hold a travel-size amount of Q-Tips.

Just because your diagnostics come back with nothing, it doesn't mean nothing is wrong. Maybe you were checking the wrong thing, or the diagnostic tool wasn't sensitive enough. I have bradycardia episodes even though multiple cardiac tests caught nothing. I probably have endometriosis even though my gynecologist didn't see anything.

You can bring your comfort item to appointments, and it's generally a green flag when someone talks to you about it. I brought a Squishmallow turkey (named Ulana) to my laparoscopy and they had her wearing my mask when I woke up. I brought a Build-A-Bear cat (named Blinx) to another procedure and a nurse told me that everyone in the hall on the way to the procedure room saw him and were talking about how cute he was. Both of those ended up being positive experiences and every person who talked to me about my plushies was nice to me. If you don't feel comfortable having it visible to your provider during the appointment, you can hide it in your bag and just know it's there, or if you're in a video appointment, you can hold it below frame in your lap.

Get a small bucket, fill it with stuff, and stick it in your bed (if you have room for it). I filled a bucket with Ensure, juice boxes, oatmeal bars, lotion, my rescue inhaler, etc. in October 2023 in anticipation of my laparoscopy and I still have it in my bed as of January 2025.

If your disability impacts your impulse control (e.g. ADHD, bipolar disorder), you should consider setting limits around your spending -- no more than X dollars at a time, nothing online unless it's absolutely necessary, and so on. Or, run these purchases by someone you trust before committing to them; I use my BFF groupchat to help talk sense into myself when I buy stuff.

Feel free to add on what you've learned about disability!

[aceshigh10987666]

I hate when there's stuff I want to talk about, especially important stuff I feel very strongly about or stuff that I really think needs to be talked about, and I just can't get the words out, written or spoken.

It's not even the case of trying too hard make everything perfect, or not being able to get it out at all (like writer's block or something). Words come out, but when I read/listen to them back they don't really convey what I meant. Rather ironically, I don't know how to explain it properly. I don't know if it's an autism or ADHD thing, a brain injury thing, a more general brain fog/communication difficulty or what, but it's very frustrating. I know more or less what I want to say, why can't I say it?

[aceshigh10987666]

if you have "cishet men dni" in your bio i, a trans man, will not touch you with a 10 foot pole. i should not be forced to out myself as a trans man just to interact with you. on top of that, cishet men are not inherently evil. stop trying to reinvent bioessentialism with your "girl good, boy bad!" mentality.

[aceshigh10987666]

There's nothing like seeing LSN Autistic people talk about the Autistic experience to make you realise that you do not belong here.

"Autistic people don’t miss social cues, we just don't care."

You guys can read social cues???? I didn't get that option when I signed up to my Autism subscription.

[aceshigh10987666]

You should be able to say “don’t touch me” to anyone ever in any context and not have it be considered in the realm of surprising or insulting imho if we ever needed to normalize something it’s this

[aceshigh10987666]

[aceshigh10987666]

Sometimes it's not worth it to "get better"-- let me explain.

If things like therapy or physical therapy, a lot of doctor appointments with specialists, medicines that you have no interest in trying are being pushed on you as a disabled person, you're under no obligation to try any of it. You owe it to no one. People care about you, yes. And it's hard for them to see you suffer. But sometimes putting you through this gauntlet of generic "help" doesn't actually improve anything. Sometimes it actually hurts your baseline. And if you feel like that's happening to you, if you're worried about it, if you need a break, or if you just don't want to; you don't have to. Bodily autonomy comes first, and it's always your choice. It's not irresponsible or selfish to coast for awhile, sometimes it's the healthy choice.

[aceshigh10987666]

One thing I wished more people grasped is that wheelchair use is a full spectrum rather than just ambulatory/nonambulatory (and some non wheelchair users can't even get that right!)

Some people need a wheelchair for isolated outings like Disney or the mall.

Some people need one to leave the house

Some people need one for a couple months at a time on and off but can get by without it most of the time

Some people can take a couple steps but that's it

Some people have to stay in their wheelchair and can't move to a couch or regular chair.

Some people need extra equipment like slings or transfer boards to get in and out of their wheelchair.

Some only need their wheelchair on bad days.

All of the situations I just described are based on real people I know (and me!) and I would bet money that all of us have dealt with bullshit from people who don't understand that it's a spectrum.

[aceshigh10987666]

If you didn’t know: The very first American paramedics were Black, born of necessity and survival, then stripped of their roles.

From TIME: “One 1972 study of 1,400 patients transported to area hospitals by Freedom House over two months found the paramedics delivered the correct care to critical patients 89% of the time. By contrast, the study found police and volunteer ambulance services delivered the right care only 38% and 13% of the time, respectively.”

[aceshigh10987666]

signal boost!

if you are on SSDI/Medicare, please contact the ACLU or an appropriate law firm to file a class action suit against the federal government for breach of privacy.

[image text: Attn: Treasury Secretary Scott Bressent granted representatives of the so-called Department of Government Efficiency full access to the federal payment system!

Response post: As a SSDI and Medicare client, I filed a request for a class-action breach of privacy lawsuit request with my state ACLU today. Please file in your state]

I will be contacting the Florida ACLU tomorrow but I also submitted a form to Morgan & Morgan, because the Morgans fuckin' hate Republicans, so it could work.

This is not just about your rights (though that's obviously the most important part), but about slowing down this fascist government. We need to be suing them into oblivion.

[aceshigh10987666]

from this paper censored and removed from the cdc website by the trump administration