#ill talk more about what ive done. at some point

[jadecantcreate]

curse of strahdanya has officially taken over my brain! alongside arcane…season two is SO GOOD SO FARR please go watch it if you haven’t. holy shit yall it does not disappoint

spoilers for up to and the entirety of episode 7 of cos — ill mainly be talking about character dynamics (mostly shepnax) but major events and plot developments will be explicitly discussed as well, so, if you’re not there yet, please don’t keep reading (getting spoilered for this stuff is not worth it i promise)

im sorry in advance. im not even done writing everything yet and its already very long

the way i see it, episode 7 is a major turning point for not only the whole story but inter-party relationships as well. i’ll be organizing this a little bit so it’s less text-wall-y (hopefully)

shepherd

there’s the raven mother they find nailed to the wall — the culprit being strahdanya. this definitely fueled the hate that all of the party had for her, but especially shepherd. he literally screams out in anguish and, later, calls strahdanya a coward and bitch — something we’ve never seen shepherd do before.* i think the events in the beginning of ep 7 is what really cemented his and the party’s objective: destroy strahdanya. before, i sensed some kind of ‘wiggle room’: the party would be willing to work with her a bit, though only for a very short amount of time and would probably backstab her. but after witnessing all that? strahdanya is irredeemably evil, not worthy of consideration / sympathy / courtesy, and i think it finally fully dawned on them all

*i also love how much raw emotion shepherd expresses throughout the campaign. the rest of the party has their moments too (i can immediately think of kana and victoria, but im not remembering any significant ones for clayton or sarnax though i know they exist), but shepherd consistently reacts to the hellhole that is barovia in such a genuine way that it grounds the whole narrative and, to me, makes barovia that much more horrifying. in other stories or discussions of stories ive seen like this (and even in the cos party itself), the characters are largely untouched by the horrors that occur in such a setting. which, fit the characters/purpose as it might, distances the audience at least a tiny bit from the happenings of the narrative. but when you have an otherwise grounded, calm, capable individual like shepherd crack? that’s when it really hits you i think. like, the whole thing with sarnax reviving the mother? shepherd being so relieved and overcome with a multitude of feelings that his voice cracks as he holds back tears, begging the mother to rest and not do any work? it made me feel the same way, and it really drove home how wonderful this act is and how dire their situation is. shepherd (and andy by extension!) have drawn the most emotion out of me in my watch, and its possibly the main reason i enjoy his character so much

him being seemingly chosen by the silver dragon (which, again, another turning point) is very compelling in a narrative sense too because shepherd doesnt want power, he doesn’t seem to even like the idea of leading (or at least being pushed into a position of leadership). i’ll touch on it later in the shepherd and sarnax segment (if i dont forget lol, my mind is running wild while i write this)

victoria

i think strahd’s infatuation with her and the physical effects it has (kana’s cleansing ritual failing because the water becomes blood as it touches victoria) is so interesting, especially her inner conflict with her heritage and wickedness (and the distrust it sows between her and the party, at least initially)

i really enjoyed how victoria was vulnerable with kana, and how kana handled it with such care and compassion. this is also a turning point, i think, when it comes their relationship: kana promises to protect victoria, and victoria promises to fight the darkness within her; they definitely got closer after that, and their bond was deepened. i dont imagine strahd would be very happy about victoria not being enamored by her and being helped by her party, though it’s very possible that she enjoys ‘the chase’ (for the lack of a better term)

when they came across the dusk elf in the order of the silver dragon estate-thing, it’s a pretty clear parallel to victoria given her appearance, heritage, and reason for being in barovia. i could be very very wrong about this but its heavily implied victoria’s elf half is a dusk elf, which makes sense considering, again, that she’s in barovia to learn about her lineage and that dusk elves are the only elves mentioned so far. i think this is the first time she’s genuinely made progress in her goal

sarnax

sarnax’s identity revolves around gherix: his whole life is devoted to the fire lord; he’s used to communing with and praying to his god. it’s likely what kept him going in such a terrible place with such terrible odds of survival, let alone returning (which he’s convinced he will not). so when strahdanya intercepted the augury spell he was so clearly shaken. it was one of the few moments, if not the only one, where sarnax was in genuine, utter panic — the whole time shepherd repeatedly asked him if he was alright and he didn’t seem to hear those words at all. suddenly he learned that strahdanya could damage or possibly sever his connection to his god, the being his life is centered around. (kana’s comment certainly didn’t help)

but what happens after — the augury spell reading ‘weal’ and sarnax being able to revive the mother — strengthens his faith. it was tested, but he prevailed. i think he was also filled with a newfound sense of purpose, knowing that, no matter what strahd does, his god considers him worthy enough

about him and kana: episode 7 is the culmination of their slow development towards not only tolerating each other’s beliefs but to understand and embrace them, specifically with kana saying that she trusts in sarnax and his god

sarnax and shepherd

the conversation between them was my favorite moment in this episode by far. there are so many layers,

shepherd so clearly doesnt want to embody his namesake and be a leader, but the silver dragon and someone he trusts so much — sarnax — and fate itself push him in that direction, so he just does. shepherd says:

“sarnax don’t”

“no why would you-“

“why- why- why would you put this on me, why?”

“how can you say that?”

“this was just a job. i mean this was just to make sure we all got here and back safely…how did this happen?”

then, later…

“alright, alright i…okay. i…dont know what to say”

“alright…alright…okay, understood”

“sure, sure. lead the way” and, after sarnax says “no, shepherd. you lead the way, i will light the path,” “…fine.”

essentially, he sucks it up. and that’s interesting to me since shepherd shows so much emotion, so it’s clearly not a ‘men dont cry’-type ideology thing. i think it’s probably related to his desire to do good, and as well as the good doc. after all, the doc gave him his virtue name: shepherd. it only makes sense that he would be written by fate as one: a person who guides the lost through the darkness. so that’s my guess as to why he so readily accepts this burden

i think sarnax being the one to say this also played a role in it^. shepherd witnessed firsthand the power of gherix and sarnax’s wisdom, so much so that he prayed to gherix. shepherd, who was originally averse to anything religious, prayed. and i also think sarnax is shepherd’s only true friend in the party. his relationship with clayton, victoria, and kana feels like professional acquaintances — they’re comfortable with each other and certainly growing closer, but he seeks out sarnax (and sarnax does too) and both have called the other a friend or good friend, on more than one occasion for shepherd and at least one for sarnax. it’s obvious that shepherd values what sarnax has to say and cares for him.

because of that, sarnax saying that he will die in barovia (specifically that he doesn’t “believe [he has] a place back in avantris” and that “whatever it is that [they] achieve here will be [his] end” because he has “seen it in the flames”) and shepherd’s reaction hits even harder for me.

shepherd says “i’m not gonna leave you. i’m not gonna leave anyone.”

and sarnax replies “then it will be i that leaves you.”

it’s the shortest exchange, but it holds so much weight. sarnax has accepted his fate, possibly long before this. but when before sarnax took charge and led the group, shining his light, he steps back, realizing shepherd is the one who (he thinks) fits that role. he still guides, but he doesn’t lead, and he believes shepherd should. but shepherd doesn’t. shepherd’s used to following orders, as we see so many times with him and clayton (but also him and sarnax), and struggles to make decisions for the group — when they ask him where they should go, shepherd seemingly blanks and he just picks whatever as fast as he can (to get the pressure off him, i assume). and despite this, shepherd’s line reinforces what sarnax thinks: a good shepherd doesn’t leave his sheep behind, he goes after and, well, shepherds them.

and honestly the whole relationship between shepherd and sarnax. them being regarded as monsters by others, being dehumanized by, for example, vascha [?] thinking shepherd is a devil and esmeralda calling sarnax shepherd’s pet ->

shepherd answers, understably upset, “he’s not my pet, he’s a person!” i figured sarnax felt the same way, but when he was praying to gherix, he referred to shepherd as “a vessel for [gherix’s] wrath.” so that raised a question to me: does sarnax truly care for shepherd (in the way shepherd does), or does he view him as a tool? it’s interesting to think about. it could be him truly caring about shepherd and seeing him as a capable person who will have a great role in his god’s plans which, i imagine, is among the highest of honors — the first possibility in the question, but filtered through the lens of sarnax’s religious perspective (which i think is the most likely and most compelling)

and there’s the parallel with them being connected to gold and silver dragons: different, but the same. (unrelated tangent but there’s also a very interesting parallel between shepherd being chosen by the silver dragon [‘good’] and victoria being chosen by strahdanya [‘bad’])

sarnax saying “silver will unite with gold” is, on the surface, about the two dragon-gods involved in the story. but i think, on a deeper and probably unintended level, it also applies to shepherd and sarnax growing closer (as they have been since the prologue, following in the footsteps of their respective dragons, and shepherd connecting the two dragons by his faith in gherix and affinity to the silver dragon.

i think that’s everything! hopefully i wont post this and immediately remember something i didn’t mention

thank you for reading all of this <33

[bismuthburnsblue]

long time no see, but i have been working on things! heres a quick picture from my latest try on! the blouse is mostly done now, just the ribbon and some hand finishings left to go!

[princessmyriad]

*minecraft damage noise every few seconds, i am dying of cold*

[reggiestein]

licorice >:3c

Sexuality Headcanon: uhhh. whatever i am😈 hes everything and nothing to me. one moment i see him as some form of bi the next i see him as greyromantic or something

Gender Headcanon: im one of the like 2 people that sees him as cis but i understand the transfem headcanon, its cute and i get it :p hes probably like vaguely demiboy or something like that to me but i don't think abt it enough to give a detailed answer

A Ship I Have With Said Character: purple yam and licorice/licoyam even though im one out of like 2 people that ship them ever <3 they don't understand me im different im alone. ALSO angel food cake x licorice duh. my little things

BROTP: uhhhh? hm. I like the idea of avocado and him being friends based on that one puns vid, i think it'd be cute and funny🙏 i think him and affogato hanging is funny but strictly in a gossip way. I wish him and pom could be friends in an alternate universe somewhere bc i think that'd be really funny (i want to like pomegranate so bad) I FEEL LIKE THERES MORE BUT I CANT THINK OF ANY😑 lame

NOTP: OH MY GOD okay. I hate licorice/clo.ver (cant remember the ship name🙏) and lico/fait so so bad im sorry. theres no real rational reason i just always hate the way they make licorice out idk. but people can like it its not problematic or anything BUT TAG YOUR POSTS PLEASE I HAVE THE TAGS BLOCKED BUT THEY KEEP SHOWING UP💔💔💔💔 also same with darklico but i think its more weird because im pretty sure theres an age gap there. if dark choco was an adult/almost an adult when milk was a kid then he's most definitely older than licorice, a cookie thats canonically a young adult (when asked about his age in the qna live they said he was "old enough to be a highschool dropout if that gives any implication" and also this desc from the operation poison mushroom thing)

Also licopom pom is a lesbian BUT ALSO why do ppl who hate licopom always act like licorice is gross or something i always see him put at the forefront like he made the ship or something. idk maybe im insane but i always see that its so weird

IDK WHY THE NOTP SECTION IS SO LONG ig i had a lot to say sorry :| anyways ppl can like lico/fait and li/clover (??) (Ill leave their tags alone) but if you like darklico or licopom youre a lil weird sorry

[butt-puncher]

I wish that I was more

[mrfoox]

Uh.... Kinda brought up an topic which was tough but it was okay....?

[elsa-fogen]

hi ! i have a question, i was wondering something when it comes to your 'breakfast au'. ive read through a lot of this, and ive seen you and multiple other people state velvette "deserves" this? that just confused me in general, because out of all the people in the show, velvette probably has done the least amount of bad things. so how would she deserve this? i saw a few people saying its because of the love potion thing she collaborated with valentino on, but i dont really think thats a valid point. given it states in the wiki that its unconfirmed what that actually was. (ill send an image of where it says this.) it couldve been anything. and given velvettes line of work, (fashion, social media) id assume itd be some sort of perfume made to be taken orally. like perhaps a pheromone perfume which ive seen is commonly promoted by influencers, or just these types of people in general.

the next point i saw was somebody saying shes a narcissist? which, she really isnt. if you do any research on npd you could see that. velvette is shown to be confident, maybe even egotistical. she acts like a confident teenager would. she doesnt have npd.

ive seen people say she deserves this type of thing because shes friends with the vees..? which honestly would make no sense. so far in the show, shes shown to only really speak to vox. (which isnt bad, given vox hasnt exactly done anything big and bad like say alastor or valentino, or hell, even sir pentious' crimes.) everytime shes really talked about valentino, its been in a bad way. shes shown to not like him. so its not like those two are best friends or even anything more than business associates from what ive seen??

anywho, i was just a bit confused. i was also a bit confused on alastors behavior aswell. while yes, hes a horrible person, yes he eats people, YES he would do something like this; he has no reason to with velvette. he gains nothing from this. so whats the point of him doing it?? its not to spite vox, given alastor is shown in the show, not to give too fucks about vox 😭

I personally said that she deserved it only to spite that hater, i should've clarify that 😅

Alastor gets to mess with Vox and to make HIM suffer from screams (Valentino comes as a bonus). He GIVEs fucks about Vox tho, maybe not as much as the said TV man, but still. He spills the tea about Vox asking him to join the Vees, and does so clearly to humiliate him. The way he tells about it implies that. so he WOULD spite Vox if he had a chance that wouldn't take too much effort.

but still, Velvette isn't innocent. she's in hell and it has to be for a reason. she joined the Vees which indicates that she supports their activities. Velvette had no problem with Val killing her models except that it causes troubles to her show.

about Vox, he's also fucked up. And maybe he isn't killing people left ang right, he does many bad things, like hypnotizing people, stalkering and so on. He supports Valentino's attitude too. He knows what Val does to Angel and doesn't give a fuck.

Problem here is that you only count things shown on screen. While characters have life outside of it. And for now we've seen only Val being a horrible person. Bonus points that he's being mean to the chracter we know and love. Other Vees didn't get the time to show their fuckedupness. I know for a fact that in season 2 we'll get at least Vox' fucked up side. and, hopefully, Velvette's too, and people will finally stop thinking that they're poor little meow meows that ended up under bad Valentino's influence.

Also, as i was saying in the first post about this AU - Velvette really shouldn't have said that the can eat other overlords for breakfast (au namedrop!!!) in front if 2 real cannibals. They took that personal.

[frankiebirds]

i need to talk about the goalpost scene or i'll explode. tw for the sexual assault of a minor, because. that is what reid is describing here, honestly:

i tried to gif it but the scene is quite long (especially because reid is constantly pausing to compose himself :(( ) and i realised while doing it that it's hard to gif a monologue, so instead here it is in text.

REID: I was in the library and, um... Harper Hillman comes up to me, and she tells me that, uh... Alexa Lisbon wants to meet me behind the field house. Alexa Lisbon's like, easily, the prettiest girl in school. MORGAN: So what happened? Alexa wasn't there? REID: No, she was there. So was the entire football team. They... stripped me naked and tied me to a goalpost. So many kids were there, you know, just watching. MORGAN: Nobody tried to stop it? REID: I begged... I begged them to, but they just... just watched. And... finally, they got bored and they left. It was like midnight when I finally got home. And my mom had... mom was having one of her episodes, so she didn't even realize I was late. MORGAN: You never told her what happened? REID: I never told anybody. I thought... it was one of those things that I thought if I didn't talk about it, I'd just forget. But I remember it like it was yesterday. MORGAN: Oh, Reid, you don't need an eidetic memory for that. You know, we forget half of what they teach us in school, but when it comes to the torment and the people who inflicted it, we've all got an elephant's memory.

i think about this a lot and honestly it makes me feel ill. because correct me if i'm wrong, but this is sexual assault, no? like yes reid is relating to owen as someone who was also severely bullied but he's also relating to owen as someone whose bullies committed a sex crime against them

something that i think gets missed a lot—reid was at the very oldest, twelve. again, correct me if i'm wrong, but football teams are big, right? reid even says "so many kids were there". just an unnecessary amount of people to restrain a pre-teen and a horrifying amount of people capable of standing there and watching. that is some stephen king level bullying honestly. not that ""normal"" bullying would be okay, of course, but just. jesus.

the implied length of the ordeal hurts too. a few things:

"they got bored and they left" to me implies that they left without untying him. had they done so, it would have made more sense to say "they got bored and they let me go." the phrasing reid uses implies they left him there and he had to get himself free. how long would that have taken?

reid also uses the word "finally" which. yeah. you know what the word finally means

the part that hurts the most is where reid says "[my mother] didn't even realize I was late." late. not gone. as in reid didn't go home inbetween speaking to harper and going behind the field house. this wasn't a "hey alexa wants to meet you behind the field house. nine pm" and the whole ordeal is "only" three hours. at best, it was right after school let out. at worst, he left the library and went straight there. so, at best, we're looking at...what, eight hours between going behind the field house and getting home?

this all happens in nevada. specifically vegas, which, from my understanding, is surrounded by desert. if it's winter/fall, the sun goes down relatively quickly and reid spends several hours freezing (i think? wikipedia says nighttime winter temps in vegas average at 4.4C/39.2F. is that cold in that region? canadian, sorry). if it's spring/summer, the sun takes a longer time to go down and reid spends several hours in the heat. ive usually headcanoned the second but the first is equally painful. but anyway, point is: take your pick. preteen reid gets either hypothermia or heatstroke. (also part of the reason i hc it was spring or summer is because i headcanon the goal post, which would have gotten very hot in the sun, scarred him. sorry to anyone whose day i just ruined <3)

sidenote: im always a little surprised by how calmly morgan reacts in this scene. not that he has a bad reaction, or isn't visibly troubled, but given how protective of reid he is normally...the first time i watched this scene i expected him to pull out a pen and paper and ask for names. so im headcanoning that the reason he's so calm in this scene isn't because he is calm, but because he's a good friend who knows that that isn't a productive response at the moment. and then he goes back to the bau and has garcia hunt them down (without telling her why) and uh. i dont know. maybe she destroys their credit scores or something.

[pumpkinsy0]

tldr: @buddyaldridge is a 30 year old weirdo proshipper who talks shit about ppl behind their backs, block em and report if you can/want to

just wanna let everyone know theres a omegaverse mpreg dallyboy writer whos been an all around WEIRDOOOOO cause their brain is LITERALLY porn rotted and they cannot fathom ppl actually having fun at all, their @ is @buddyaldridge aka @pelopsides previously known as @madelynprior

in 2020-2022 the outsiders tumblr they used to be @madelynprior and theyre a hardcore dallyboy stan which is already fucking weird, but on top of that, they would make teen pregnancy omegaverse smut fics which??? and im not gonna give you the ss, nigga im givin yall the LINKKK to see it with your own eyes so you know im not crazy

how ik its them is bc on their acc RIGHT before they switched to their buddyaldridge acc, and before that acc was named “pelopides”, they used to go by “madeleinepryor”, how ik its the same person is bc on a good chunk of their post, theyd tag it as “#madeleinepryor dispatches” on top of that, they just straight up linked their ao3 acc😭😭

heres what the link goes to, they linked their ao3 acc, they just changed their username on ao3 as well from madeleinepryor to greasers

now me calling them a proshipper isnt me talking out of my ass, they say it themselves like ughhhhjjj

as for them talking about other ppl, i wont share ALL the screenshots bc idk if the ppl theyre talking bad about would rlly feel comfortable w those being posted, if they know, they can feel free to post it on their own accord, so like i said, wont share, but i HAVE seen some and i can conform that they have done it, its ABSOLUTELY NOT above them

for now ill post the ss i CAN post rn which just proves my point

now ignoring that theyre talking smack, theyre just so odd and obviously didnt rlly think this through bc 1967 is ALREADY IMPLIED in the 60s, youre just incapable of reading things that arent about teen boys getting it on w each other PLEASE get a grip on reality😭😭

theyve talked about 14 year olds and their post on their acc just to shit on them, once again, GROWN ASS PERSON TWEAKIN OVER THE IDEAS OF A 14 YEAR OLD🗣️🗣️

NOW maybe your asking “how do you know the discord user and the tumblr user are the same person” AND I WILL ADMIT, while i DO have strong feelings they are the same person, its not 100% proven, HOWEVER buddyaldridge DOES go by buddy and that discord users name is buddy, so while its not concrete, the link IS there, once again, feel free to come to whatever conclusion you wanna come to about that

but what ISNT disputable is the fact that theyre a proshitter

additionally just this??? reblog from them????

on its own, not MUCH, bit considering the fics they make this is SO weird like??????

and finally, ive heard that theyve specifically came for me about my haitian shepards and maybe even my heritage, saying that they hated race hcs??????like using me as an example, they ss my acc and talked shit, someone contacted me about it and they dont have ss of it specifically, but they can vouch for it, and im not just gonna dismiss that, bc while they dont have ss, they do have ss and proof of everything else, so i do believe them, and theyve said if they find it they would show them to me, do what you wanna with this info

ANYWAYS buddy, your brain is unironically pornrotted, ur being a lil baby who cant do anything but cry and moan online on discord of all places and ur doing all this as a 30+ year old, and its CRAZIER bc youre doing all this while having “minors dni” in your pinned post, while also writing about minors, in a fandom MOSTLY OF MIDDLE SCHOOLERS!!!! (aka minors!!! ik age is hard for you to grasp) on top of that, literally ANY and ALL race hcs is way more believable and enjoyable than any “ideas” you’ve been cooking up in that odd demented, shriveled up pea brain of urs

anyways yea, that all i have to say, and im speaking for myself here, but i mean this with every fiber of my being, i dont know how you function in life but i DO NOT want you to go any farther, and i think others would/DO feel the same, ive seen what makes you cheer and i am PROUUUDDD to make you BOOOOO, you shouldnt be near minors at all, fictional or non fictional, you should BARELY be near other adults

plus if you go onto their acc rn, notice how when anon called them out, buddy aint even say they were wrong?? JUST SAYIN🗣️🗣️

im tagging everything i can tag bc i DO NOTTTT want mfs interacting w their blog, and want as many ppl as possible to be aware, dont say anything to them, dont give them attention bc obviously they’ll think this is funny and post it on their shitty discord server or whatever and giggle like they arent a grown ass nigga w bills to pay, trying so hard to cling onto their high school days, making fics about a canon middle schooler getting banged and pregnant, pls block and report do whatever u wanna do, just plssss dont let this proshitter on this damn sight near kidssss😭😭

dont take this as me WANTING drama, i dont, i just dont want ppl coming in this fandom thinking posting this shit and doing this is ok, youre bullying ppl for doing harmless things meanwhile your just making straight porn about a weird ship left n right, thinking YOUUUUU of all ppl have the place to talk about anyone or anything like your opinion on anything is valid😭😭

you NEED stones thrown at you

if anyone has anymore ss send em to mmeeeeee, but in the mean time ill be doin my own thing wooooo‼️‼️🔥🔥

[blackblooms]

Final progress update

So Irredeamable release is only two weeks away and im mostly done with the final additions and polishes. Whats left at this point are mostly bugs that i dont know how to fix or are rooted so deep into the core of the mechanics that leaving them is just less of a headache. Ill probably release an update soon after release to incorporate some of the newly discovered bugs and general criticism, but the game is about as good as i can make it right now.

This leaves the question of what ill do after the game release and i got a fairly thorough answer waiting below this peculiar "read more" prompt.

So to begin, Ill mostly be reblogging art, analysis, stories, theories, and other kinds of fan works, assuming there is any. I do hope to at least succeed in fostering a small community, but only you get to decide if Irredeamable world and characters are deserving of such attention. As for my future projects, Ive already begun experimenting on the mechanics and designs of my next game and Ill keep doing so for the weeks preceding and following Irredeamable release. I wont be talking much about it, at least until the excitement for Irredeamable has died down and i got some solid stuff to show. The plan for my games is to make them into an anthology of sorts. All featuring their own worlds and characters but connected through a shared universe and themes. Aniway, thanks you all for following Irredeamable development and i hope youll enjoy playing the game and stick around to see what comes next.

[ourloveforgear]

an overview of paul's guitars

before we look into pauls gear, i want to make sure we all are aware that im talking about the guitars he used WITH interpol. ill add some notes on his other instruments at the end of this post.

[paul with his and daniels guitars]

LES PAUL CUSTOM

"I've owned my Les Paul Custom since high school... its all I pretty much use today."

from what i can tell, paul has two les pauls, and he uses them interchangeably. first, though, id like to do a quick spec overview. his guitars have an ebony finish, and seeing as this guitar was most likely acquired in the 90s, gibson 490r and 498t pickups. in almost every picture i see of his les pauls, it seems he or a guitar tech have switched out the stock gold bridge with a black one. im not a gibson expert, so im not sure of the exact model, but it looks to be a tune-o-matic style bridge. he also has removed the covers on the pickups of his guitar. another quick note, in photos from around 2004 to 2005, there is a square shaped hole cut clean through his piece of velcro on his les paul. this was done to hold his ebow during take you on a cruise. thats all the specs/mods to show, ill put some pictures highlighting the points ive gone over.

[a close up of one of pauls les pauls, 2015. note the bridge, and absence of pickup covers]

[what i thought was a hole turned out to be a piece of velcro]

[hole has been blocked/filled! may 21, 2005]

[early picture of paul, with his pickup covers still on. very modest]

JAGUAR

"The Jaguar actually came about specifically within Interpol because I had written a part in which I wanted whammy, and I don't like Les Pauls with Bigsbys."

from what i can deduce, i think this guitar is a fender american vintage jaguar from 2005-06, in black. paul hasnt done too many mods to this instrument, though their are a few changes, most importantly, the pickup swap. he changed the stock jaguar pickups to seymour duncan hot rails sometime after recording our love to admire. while this definitely changed the sound a bit, this was after OLTA, so i wont bother finding dates, as the songs the jaguar was likely used on wouldve been the stock single coils. next up, the pickguard. the american vintage jags in black came with a tortoise shell pickguard, but pauls has a black one. what gives? well, seeing as carlos' jazz bass came with a white guard, but that was switched to black, its not outlandish to believe that this was done by paul or his tech, to give the jag a darker look. paul also put tape on the guitars lower horns control switches, most likely to stop his hand from accidently hitting the switches, and changing his sound mid song.

[paul with his jaguar, before he swapped the pickups.]

[another pic before the pickup swap. note the tape on the control panel.]

[a later pic, where we can see he added MORE tape to the guitar, and after he swapped the pickups to hot rails.}

INTERMISSION

if you ask me, pauls les paul custom and jaguar are the two guitars youd definitively need to get his sound, and also the two guitars HE uses to get his sound. but what other guitars has paul used with interpol? lets see.

LES PAUL DELUXE

used during the TOTBL era, this guitar is sort of a mystery. for one, he didnt seem to favor it for certain songs, using his les paul custom and deluxe interchangeably for many songs, even playing full shows with his deluxe. secondly, from what ive seen, this instrument was NOT used after the TOTBL era. its probable that this instrument was either used on a few songs from TOTBL, and brought along on tour as a backup that paul just happened to really like and play alot, or it was rented for shows over seas. either way, its an interesting case.

[the mysterious gold top deluxe. wonder what song hes playing here?]

FLYING V

paul has stated that he thinks the flying v is the coolest looking guitar out there. to each their own, i guess. that doesnt matter, what matters is that he played this instrument in the barricade music video. he used this guitar at the end of the OLTA era, during the self titled era, and has rarely been seen with it after that. most likely has the same pickups as his les paul custom, but dont quote me on that.

[as long as he likes it.]

CONCLUSION

there is one more guitar i didnt bring up, so ill do it here now, and its his dave murray strat. he hasnt used it live with interpol, though it is seen in behind the scenes footage of el pintor. anyways, leave a comment if youd like me to cook up a list of what guitars i think were used on each song! i hope you enjoyed reading this, next up i think ill go over his amps and other equipment. till next time.

[Paul Banks.]

[megamindsecretlair]

WIP Wednesday

Thank you for the tag @ramblers-lets-get-ramblin , im never sure if ppl look forward to whats upcoming from me, but these keep me honest 🤣😭

Step one: Post snippets of the fics you're working on (can be a summary if there's no snippet)

Step two: put them in a poll and let people vote on which one you should work on, then prioritize the one with the most votes.

Step three: Ask me about my WIPs! Don't be shy, I love talking about my fics! We don't create or share in a void, we want to hear from you lovelies!

Well, Mega, what can we look forward to 👀

1) Beauty and the Beast Inspired Stunna: I have severe Yahya Abdul Mateen II brainrot and baby, 🥲 the way I want to write literally everything for him. This will be a precursor to a novella I wanna write with original characters and lots more action, but Id love extra feedback for it. It will have vampires, toxic staff, and naughty bits.

2) Mea Culpa: I have been debating how much time I wanna dedicate to rewriting that monstrosity of a movie 🤭 okay, thats not fair. The idea was there, the execution wasn't because TP wouldnt know what's sexy if it slapped him in his face. Who am I fooling? I won't be satisfied until I write the whole thing and satisfy my brain. So yeah, prepare for a rewrite according to what I would've done. Think corruption kink, think court drama, think Zyair being the toxic mess we know and love.

3) Mob Boss Tyrone: I feel like ive been teasing this for years 🥲😭🤣 and thats because the ask was specifically for a one shot and I plotted out 7 parts 🤭🤣 at this point, yall know how I am. I tried to conform to short fics for my sanity and I just cant 🤷🏽‍♀️ some ideas require one part, some require several. It will include hella angst, hella smut, hella toxcity, but at the end of the day, hes always going to love his baby girl. I also think im going to switch it to Fontaine chuz thats a prettier/grittier name and would suit the story better.

4) A Watchmen fic for Cal (Yahya): lissen, ive finally went back to finish Watchmen. Not because it was a bad show, but because it requires 100% of my focus and I aint had it. But for Yahya? Ill make the time. I feel like that is 100% a soft dom and I just wanna be his cute lil princess, sue me 🤷🏽‍♀️ I love a man I can't tell what to do 🤣

Theres more but for the sake of brevity, Ill keep it at the 4 most occupying my brain at the moment. Soooo, which one yall want first? And yes 🥲 im aware of how many series I need to update 🥲

No pressure tags: @nerdieforpedro @harmshake @notapradagurl7 @ellethespaceunicorn @miyuhpapayuh

[mopeyy]

Forgotten Love (Last Part)

Nor x Fem Na'vi Reader

angst/fluff

Summary: Reader is in love with Nor, but he's still in love with her dead sister.

Inspired by this post!!

You and Nor use to speak everyday, but now you've went a full week without talking. After your confession there was just no point in speaking to him. You knew he was going to reject you and you didn't need to hear him say it. It would hurt too much. Of course you missed talking to him, he's your best friend. But you couldn't look at him knowing that he didn't feel the same.

He hadn't made any attempt to speak to you. Mostly just looking at you from the corner of his eye. Or sharing a forced smile when you passed one another. It was exhausting really, but neither of you tried to fix it.

--------------------------

You had recently took down a big RDA drilling facility, reducing the pollution percentage by a significant amount. So tonight the resistance was celebrating. The headquarters were filled with colorful party decorations and dancing music. You knew the humans were having a good time, but it didn't really feel like you needed to be there. You turnt to leave before hearing someone calling your name. "Y/n! y/n!" it was Teylan. He came running over to you, Cleary excited about the party. "Where do you think your going? this party is all about you." He smiled, nervously adjusting the cap on his head. "Im just going out to get some air Teylan. Ill be back in soon." You promised. He exaggerated a long sigh and told you to come back soon as he walked away. You softly shook your head and laughed at teylans antics.

You walked outside and found yourself sitting at a little pond that leads towards the waterfall. it was a nice kind of quiet, the only noise being the muffled music from the party. It was dark, allowing you to see all the stars in the sky. When you were in the RDA they didn't let you and the others outside much. they were scared that if you saw what was out there it would tempt you all to run away. After escaping the RDA you were never anywhere but outside. You stared at the pond in front of you, watching how the water would ripple when a little fish swam by. You smiled, dipping your legs into the pond for the cool relief the water gave you. You couldn't believe the RDA had kept this world from you for 15 years.

After a while of sitting there you heard foot steps behind you. You didn't turn around, you already knew who it was. "Done with the party?" Nor took a seat beside you and raised his brows in question. You only took a quick glance at him before turning your attention back to the water. "Yea, it's kinda hard to dance with all the tiny people around." you smiled, turning to look at him. He was already looking at you. He laughed and shook his head, "I guess it wasn't the best idea to put Na'vi and people into one room." He joked. Silence overtook you as neither of you knew what to say. You played with your hands trying to distract yourself from the awkward atmosphere. Nor cleared his throat to get your attention, "Listen y/n I...about what happened that night-" you cut him off, "Nor I already know what your gonna say and its just going to hurt more if I hear it so please don't." He shook his head and placed a gentle hand on your arm. "You don't know what im going to say, so please just...listen." he pleaded.

You nodded and he slid his hand off your arm. "I was thinking about everything and I wanted to apologize. Ive always admired Aha'ri and her bravery, and I may have had a small crush on her when we were kids. But that's all it was, a childish crush. That night when you found me, I was scared. Scared of how new everything is. I think I was talking about her because I wish I had some of that bravery too. Ive been thinking about what you said and you're right. You have always been there for me and I was too blind to see it." He saw how your attention was focused on the sky. He put his hand on your chin, turning you to face him. His green eyes piercing, as if they could see right through you. "If you'll let me, id like to be there for you too."

Your ears twitched, revealing the emotion you were trying so hard to hide. You had thought that he came out here to reject you, but it was the complete opposite. You wanted him to feel the same way about you, but you had to make sure it was for the right reasons. You tilted your head up at him and opened your mouth to speak, "Nor, I don't just want to be a reminder of my sister. I want you to want me, not just be with me because you can't have her."

He shook his head, his eyes saddening at your worries. "y/n believe me, that is not it at all. I want you. I want your smile, your laughter, your humor, your kindness, your beauty. You. Not anybody else." He reassured you.

You smiled at him, letting out a soft laugh. "Well then you can have me." He smiled at this and leaned in as your lips met. You had never thought things would end this way but you didn't mind as the kiss deepened and your hands combed through his hair. You knew now that everything would be alright.

Tagslist!

@avatar-of-envy-levi

[atelierpenny]

i really enjoy visual novels, but for lack of a better term i sort of feel like ive only played the already super popular ones - do you have any that you really love that you feel dont get recommended enough?

soz if this is long and you've already heard of half of these. also a bunch of them are gonna be yuri because well. I'm sheltered Soundless by Milk+

This is the one I'm gonna lead with because its short and its amazing. One of the most genuine stories that gets really gnarly at points so make sure to check the content warnings but this one desperately needs to be read more because it fucking gets it and made me feel really seen. Seabed by Paleontology Soft

If you can handle a slow start, its my favorite visual novel of all time. Best cast ever I've spent months and months of my life talking about and I always find new things to notice or discuss. Ghostpia by room6

Its episodic and teeechnically not done yet but i think you get a satisfying and damn excellent story with whats here. what else has presentation like this!! its so stylish and looks incredible and always keeps me hooked! A Summer's End - Hong Kong 1986 by Oracle and Bone

Took me a bit to get into the art style but the CGs are really pretty and its really sweet! It uses its time period in a far stronger way than just aesthetic and background. I like the directions it takes. Private Eye Dol by Hunex (PC Engine CD)

Extremely impressive mystery game for the time with damn good direction. More of a traditional adventure game than a visual novel but I think if you like them you'll like this. If you're short on time the first case is the best one imo so you can just play that one

Ill leave it there for now, maybe I'll add some more later

[blkkizzat]

I've been a virgin all my life like im talking no masturbation either.

So i tried fingering since my friends said it worked for them and it hurts like a bitch like seriously how do people feel pleasured from this?!?! 🥶

so masturbation on a larger level is self-care so make it apart of a self-care routine... now i usually just take a clit vibe and bust one out (sometimes just to sleep cause insomnia a BITCH lol) but i have a whole routine if i wanna use my fingers or a dildo, etc.

more below~ hjdscdkjfhvskdj not me explaining in detail how i masturbate... lol oh well let's go...

ok so first. set the mood for yourself, especially if you want vaginal penetration it's all about being relaxed enough for it to be enjoyable.

so take a bath, put some nice smelling lotion on, get in your fav undies or if you feel better nude thats fine too. light a candle. grab some lube. if you partake in marijuana, shrooms or alcohol (wine goes straight to my puss) this is an option too, but NOT NECESSARY. but if that is apart of your self care already then include it.

put on some soothing sounds. if you dont have a fav then tantric frequency music works, actually i would suggest this because it will be less distracting and the frequency allows you to connect to your body more.

next take your time. idk if you ever really took the time to explore your body. just touch yourself. but not anywhere sexual so leave your kitty and tiddies alone for a while. you know how in winter if your car been outside you gotta warm it up before you can drive it? its like that.

pleasure is a total body experience, so get your entire body sensitive first. you can make yourself wet without even touching your coochie. dont rush. slow down and really identify how various touch feels. (you can even apply lotion if you want too or body oils if you like)

just close your eyes and trace your body with touch, press, poke, pull, tug, stroke, etc, with various amounts of pressure (feather touch to rough) on various parts. just find what feels good and do that. concentrate on the music and try to find a rhythm. finally when you get to the point you find yourself aching and rubbing legs together then you can start touching more obviously erogenous zones like tiddies and vag. this is important to wait though (the longer you do this the more sensitive you will be, i sometimes do it for 20-30 min of just exploring touch) because the longer you wait to touch the more sensitive and better it will feel.

start with touching your vulva/coochie lips, softly, do what feels good and dont rush. tease around the clit and entrance, but dont touch or penetrate yet. then once ive done that a while thats when you can start touching your clit. sometimes thats more than enough and you will just cum from that and if you dont want to go further dont force it.

its completely normal for initial penetration to hurt or be uncomfortable. even for non virgins if you have done it in a long time you are gonna tighten back up. lube comes in handy make sure to lather the area and fingers good. so its all about now what feels good but since everything is gonna be uncomfortable at first i would just put a finger in there and just be still. dont move it. just get used to it being in there, almost like you're cockwarming your finger fhkjhsdfjkhsdjk. but i do this when i move up dildo sizes and its uncomfortable. i will literally just leave it in there for a while. sometimes ill then disengage and do other things like be on my phone, grab my switch and play somethin hkfgfsdjkhfdshj. but the point is you are just allowing your body to adjust lol. then take it out, theres been times where i havent felt anything pleasurable to until i took it out and then my coochie is like "wait bitch we were comfy and full" and then i start craving it back in. thats when you can experiment with a little motion. or start rubbing at your clit to help. dont do too much too fast and honestly its probably going to take a few tries for you to really feel comfortable with it but the more you do it, the less you need to do to work yourself open and you will be comfortable with what your body needs.

the key is just finding what your body needs to feel good. also you might get emotional or overwhelmed or even cry. not from pleasure but if you've never really masturbated or really explored than your sacral/root chakra is probably a bit blocked. when you release that it can be a bit overwhelming sense thats a huge center for emotions. if you don't know much about it you can learn about it here and here more.

good luck babes!

[wellplacedbanana]

I’ve seen a few posts recently talking about how important it is for us to share our tips for dealing chronic illness with each other, and I’ve realized that as a freakishly avid community enthusiast, I’ve been falling down on the job. So, I present

Wellplacedbanana’s Ridiculously Long List of Tips for All Things Chronic Illness (Curated Over 8+ Years):

Infusion Centers

Headed to an infusion center to get that sweet sweet (expensive as hell) live-saving medication pumped directly into your veins? Here’s what I do.

Bring headphones or earplugs. Most infusion centers try to maintain a semblance of quiet for the patients, but it can get loud fast—beeping IVs, pulse ox monitors, loud families, codes. Some infusion centers do pods of multiple people and some do individual bays, so this can affect noise levels.

Drink lots of water before if you have to get an IV placed. Don’t worry too much about bringing a water bottle because they’ll give you one when you get there. (Of course, if you have something like POTS and need more intense hydration, bring the damn water bottle.) If you’re not hydrated and they can’t find a vein, they’ll call in the ultrasound tech, and they’ll bring the longest IV needle you’ve ever seen. It hurts. Drink water.

Bring a book or your Switch or something else to entertain you, but don’t expect to actually do it. I tried bringing papers to edit the first time because I was like “Oh it’s an hour and a half of uninterrupted free time. I can get so much done!” I was wrong. The nurses are constantly checking in for vitals, the unit can be loud, and I spent the whole time trying not to vomit everywhere. Different infusions will have different side affects. Knowing what yours might be will help you plan for what you want to bring. Knowing how long your infusion will be can also help. Most infusion centers have to keep you 20-45 minutes after your first dose of a new medication to make sure you don’t have an allergic reaction, so factor that into your time too.

If you’re in a pod with other patients who’re friendly and if you feel up to it, don’t be afraid to talk with them. Lots of them are lonely, bored, interested in other people, etc. I met an elderly Thai lady one time who had been there for three hours and would be there for another four AFTER I left. We talked about her husband and her kids, and she listened to me talk about punctuation as style in prose. It made me feel less alone in the medical system and helped distract me from the nausea.

Conversely, if you don’t want to interact with anyone, snap on those headphones and block everything out. The nurses will get your attention if they need you. Don’t worry about staying lucid. Your job is to get the infusion and do what’s best for you.

You can bring snacks if you want, but most units/centers will have something to munch on or can order you something from the cafeteria if you’re at a hospital. Also the medication and the smells in the unit always make me nauseous, so it’s kind of a waste for me to bother pulling together food before I leave. You can always eat before or plan to get something on the way back. Going through a drive thru to get something with protein is my go to.

If possible, schedule your next appointment while you’re there. I have to go every three months, so I schedule the next one while I’m there, and then I never have to make any fucking phone calls. Phone calls are the worst.

My last and most important tip: ask the nurses when you need something. Blankets, water, snacks, pain meds, the lights turned off. If they can’t do it, they’ll tell you. They’d rather have you ask and have to say no, then you be uncomfortable. Don’t suffer if there might be a solution.

Dealing with Shitty Doctors

There are shitty doctors everywhere, in every specialty and every hospital system. It sucks, and you can do your best to avoid them, but most chronically ill patients will have to put up with one at some point. Here are my suggestions:

If they’re refusing to acknowledge one of your symptoms is a problem (won’t order tests, won’t refer you out, won’t ask any questions), tell them it’s affect your Activities of Daily Living. ADLs are one of the ways doctors measure severity of symptoms and quality of life. ADLs are the absolutely essential things you need to do to be a functioning human: eat, shower, get dressed, brush your teeth. ADLs are a trigger word for most doctors. Physical therapists and occupational therapists were created specifically to help patients achieve their ADLs. If you’re having severe joint paint, say it’s affecting you’re ability to shower and dress in the morning. If you have intense fatigue, say you’re too tired all the time to cook food to eat or even brush your teeth before bed. Tell them your symptoms are affecting your quality of life and your ability to function daily. This won’t always work, but it’s a good starting place. (A side note: if you have have to submit an insurance appeal for something that was denied, citing ADLs as a reason to receive the treatment/medical equipment/doctors visit, will often spur them into action. Sometimes, it’ll just make them ask more questions, but questions are better than flat out denial. This was a very helpful tactic when I was trying to get my manual wheelchair approved. I told them I was unable to complete my ADLs and it was affecting my quality of life, and they eventually came around. It’s also important to remember that ADLs are only the most base tasks that you need to live. Driving, working, socializing—those aren’t included in ADLs, and insurance especially will laugh in your face if you try to say you need medical equipment for something like that.)

Lots of doctors, consciously or unconsciously, will judge how you’re actually feeling by your mood in an appointment. I had a pediatric neurologist who couldn’t be convinced that my pain was at an 8 because I would laugh with my mom in the waiting room. Eight months in, I started getting real quiet, not talking, crying when he talked, all that shit, and he was so fucking flummoxed. He was like “what changed?? Are you depressed??” And I had to remind him that I was thirteen with a severe shoulder inure that hurt every time I breathed. Doctors will judge you based on how you look and how you present. It’s horrible, but it’s true. Present to them in the way that represents what they’d expect to see for your symptoms.

Whatever you do, don’t say anything (or send any snappy messages) that might be considered aggressive until you are absolutely, 100% positive you will never ever have to see them again. I’ve had a few doctors that said ridiculously horrible things to me. It’s tempting to send them a message about how shitty they’ve been or how much they’ve hurt you, but it won’t help. Shitty doctors have fragile egos and they don’t like to be challenged. They won’t take this well, and they’ll mark you as attention seeking, emotional, mentally unstable—you name it. When your other doctors call to ask questions about symptoms, etc, they’ll start talking shit, and everything gets complicated. This might sound dramatic to anyone who hasn’t seen it happen, but honestly, the medical system abuses emotion and mental illness to discard patients that aren’t afraid to advocate for themselves, and this is one of the least immoral ways they do it.

Remember that you don’t owe your doctors anything (except basic human decency). If they ask you to do something and you can’t or don’t want to, don’t. My psychiatrist was really fixated on me getting a light box to cure my depression. I did Not want to do that, so I didn’t. Sometimes, your doctors won’t move on to further treatment or tests until you try it, but most of the time you can say, “that’s not something I’m able to do right now. Let’s explore further options,” and they’ll move on.

Remember that learning to advocate for yourself takes years of practice. Just do your best, and try not to blame yourself for the ways you get mistreated. Therapy is the best investment I’ve ever made for this. It’s helped me learn how to advocate and how to process medical trauma.

Medication

For gods sake, take the as needed medication when you have a migraine or if you’re nauseous. Don’t punish yourself.

This might seem like a no brainer, but if you’re traveling and you’re going to take your medication bottles with you, put them in a ziplock bag. They will definitely open in your suitcase, and you’ll have to pick Levothyroxine out of your socks.

If a medication gives you icky side effects, tell your doctor and ask if there’s something that doesn’t do that. For me personally, it’s hard to find medication that works at all, so I often get stuck with things that make me feel like shit. But it doesn’t hurt to ask. Sometimes new medications come out or they dig up old ones.

Some medications come in dissolvable tablets or suppositories. They’re not fun, but if you have trouble swallowing pills, this is a good way to go. Again, communicate with your doctor about these things. I know that there are Scopolamine patches for nausea too. I’ve never used them before, but it might be worth looking into if need easy nausea relief.

All Things Wheelchair

Man, wheelchairs suck, but they’re also amazing. If you find yourself using one, you’ll encounter a steep learning curve.

If you’re not super buff when you first start, it’ll seem impossible to go up even a slight incline. Your arms will get stronger the more you move around, but it might take time. I eventually bit the bullet and started doing personal training. I’m lucky that I can afford it, and I know it’s not an option for everyone, but if you can, find a trainer who won’t saying anything shitty and who’s willing to accommodate. I worked with a queer-owned gym to find someone I was comfortable with. We do upper body strength training, and it gives me a chance to move my body more often. I still can’t go up big hills, but I feel infinitely more mobile. Give yourself time to adjust to the new strain on your body, even if you don’t do training for it. You’ll be sore in the beginning. Ice and heat will be your friends after long days. If your wrists start hurting a lot, you’re not wheeling correctly, and you should ask your doctor for a referral to PT or OT. Oh and your hands will be fucked for the first few weeks. I bought special wheelchair gloves to try to combat this, but it just made it harder for me to maneuver. Now I only use the gloves if it’s cold, if I’m going down hills, or in the rain/snow. (But seriously, if you’re going down steep hills, use traction gloves.)

Learn to pop a wheelie as soon as possible. It’s such a helpful skill. If you get good enough, you’ll be able to get up over single steps and traverse shitty pavement.

If your wheelchair has a cushion, then it has a cushion cover. Wash it.

Time for the grossest part: cutting hair out of your caster wheels. I hate this. I hate it so much. It’s fucking disgusting, but you have to do it. It’ll fuck up your wheels and make it harder to maneuver. Also it’s just gross to have all that nasty hair hanging out by your feet. Get yourself a long pair of thin scissors and cut all that hair out every week or every two weeks. If you don’t have long hair or live with people who have long hair, then you might be able to wait longer. You should also sanitize your hand rims while you’re at it. Hand sanitizer or Clorox wipes are great for this.

You’ll notice that it’s fucking impossible to carry shopping baskets or suitcases if you use a manual chair. Some people try to balance them on their laps or wedge them onto their footplates, but it’s pretty precarious. I got these weird peg things that attach to the frame. You can place a basket or your bag on it and still keep your hands free. Here’s the link for the ones I got, but it depends on your make and model, so do some research and call some different companies before buying anything. Also, make sure to measure the distance between the two sides of your frame to make sure a basket will be able to balance on the two pegs. Your frame might be too wide for this. Mine is, but I bought a special basket to take to the store that’s wide enough to reach across.

Lots of people will offer to push you. Some won’t even offer; they’ll just grab on and take you in whatever direction. It’s insanely invasive and dehumanizing. Don’t be afraid to put on your breaks if someone does this. I can stand and take small steps, so sometime I just get up and stare at them. You can also buy covers for your handles that have spikes so people can’t grab them. I know some wheelchair users who like it when people offer to push them. That’s good too! Take the help if you want it. Just remember to prioritize your safety and comfort. I had a big debate with another disabled person about whether it was infantilizing for someone to offer to hold open the door for us. I’m firmly on the side that they can offer, and I can say no, and they can listen, and then we can both appreciate the moment of shared humanity between us. They did not agree. Disabled people fight and disagree all the time because we’re not all carbon copies of each other. That’s okay! Just be respectful.

Getting a customized manual wheelchair was one of the single most stressful things I had to deal with. Insurance doesn’t like to pay for them because it’s about 3-12k, depending on the specifications and add-ons. But it’s also been the most liberating thing I’ve done since getting my mobility stripped from me. I’m not sure how it works for everyone, but I got a referral from my doctor to a custom wheelchair company. From there, they took measurements, discussed needs, and showed me different models. It’s going to be really really difficult to know what you want the first time. There’s a lot of different brands and customizations, so do your research and talk in depth with whoever’s making your chair. Ultra lite rigid frames are my favorite because they’re usually only 15-40 pounds, and the wheels can come off to make it even lighter. However, rigid frames don’t fold together in the middle like classic manual wheelchairs that you might find at a hospital or get at a rental company. They can be difficult to fit in the backseat of a car or in some trunks, so make sure to measure any cars you ride in regularly. Some people prefer to have tilted wheels so they can turn easier. Some people don’t want anything to do with that. Depending on your mobility and the people in your life, you might choose not to add push handles to your chair. I added some to mine because I often get dizzy, and it’s helpful to have handles in case I need someone to push me out of the crosswalk or into the shade. People who are highly independent and extremely strong might not want push handles because they won’t need help up steep hills. I like my handles a lot; however, my chair back is shorter than a standard wheelchair because it helps increase range of motion when I’m wheeling, so my push handles are lower than normal, and anyone who wants to push me has to hunch a bit to reach. Again, do your research and talk to your rep before making final decisions. Some companies will let you test out the chairs they have on hand to see what you like. It’s important to work with a wheelchair company you really like because you’re literally putting you life in their hands. I’ve had better luck with smaller, locally-owned companies, but you can’t always get referrals there, and not every town has them. Here’s my tip to you: Numotion sucks ass. Avoid them. My branch of Numotion seems to be an outlier; I’ve had really good experiences with them. But most of the time, its impossible to get ahold of anyone, their hours are few and random, and their customer service reps are rude. But! After you’ve completed your order form—gotten measurements and found customizations—they’ll submit it to insurance. This is the tricky part. I went through four appeals, before I got mine approved. Luckily, I had insurance through my mom’s job, and after the last appeal, her company told the insurance that they had to pay for it. This won’t be the case with everyone. Be diligent with your appeals. Have your doctors write specific, clear letters about why you need it, including information about all the customizations and add-ons. It’s likely that they’ll only pay for the base chair, and you’ll have to pay out of pocket for any extra things. Another note: most insurance companies will only pay for a new chair once every five years (if they approve the first one at all), so be sure that the chair you pick out will work for you for at least the next five and a half years.

I had an advisor in college tell me something devastating once: there is no AAA for wheelchairs. I’d broken a caster wheel and gotten stuck on a university sidewalk in 102 degree heat, and she was telling me about her own experiences getting stranded after one of her tires popped. She’s right; if you’re wheelchair breaks, you’re stuck wherever you are without any backup. Carry your phone with you. Tell your friends or family where you’re going before you leave. Familiarize yourself with the wheelchair repairs shops in your area. Sometimes places like bike shops will be able to help you fix smaller things. I always carry an Allen wrench with me in case I need to take a part off. And don’t worry; you’ll find that if something does go wrong, people are far more willing to help than you’d expect. One of the sculpture professors in the art department found me that day and went back to his workshop to get all his tools. He brought me water and sat in the sun while he tried to fix my wheel, and when he couldn’t, he offered to drive me wherever I needed to go. This man was a tenured professor with a prestigious MFA, and he was running late for a party where he was supposed to be handing out awards. You’ll find lots of good people when things inevitably go to shit.

Going along with the last point, your wheelchair will break, and you will have to send it into the shop to get repairs. If you can, invest in a cheap manual chair that you can use in emergencies. If you live with other people, you can buy a transport chair for cheaper, but you’ll need someone around to push you because it won’t have hand rims.

If you’re new to wheelchair use, give yourself space to feel all the emotions. When I first started, I had been using an office chair(!) to get around. My mom would push me from my bed to the bathroom and then back to bed while we waited to get a rental. I was so relieved when I got my own chair that I pushed everything else down. It took months to allow myself to be sad about all the things I couldn’t do anymore and be angry about all the inaccessible infrastructure that America has. Don’t push it down. Talk to a therapist or find people in the community to discuss it with. (If I choose to talk about my frustrations with friends, I always start with “I need to vent right now, and I’m grateful you’re willing to listen to me, but I’m not looking for any solutions to this at the moment,” or “can you give me some suggestions to work around these things that are frustrating me?” This gives my friends insight into what I need, instead of making them guess. It keeps us both from getting frustrated, and I highly suggest it, especially if you or your friends have trouble navigating social situations/expectations.)

Hand Controls

Hand controls are great option for your car if you’re unable to use your feet to drive. I got mine about a year back, but it was tricky and really confusing at first.

First thing you need to know: you can’t get hand controls without a prescription from a specialist. Usually a certain type of occupational therapist. You can look up driving rehab OTs in your area, but there aren’t many of them, and lots of the time you’ll have to drive several hours to see one. There’s usually a long wait list as well. (And of course, a lot of them don’t take insurance.)

If you’re able to find someone who’s certified, they’ll do an intake appointment and assess your physical abilities and needs. Sometimes, they’ll do the assessment and decide you aren’t fit to use hand controls. This can be for a multitude of reasons, including impaired mental cognition and slow reaction time, issues with hand or arm mobility, or there might be a better way to adapt a car for you. Again, it varies greatly on the person, and I’m not an OT, so I don’t know all the ins and outs. If you pass the assessment, and they view you got to drive with hand controls, you’ll be required to do a certain amount of training where you practice using different equipment. Some OTs will know what you need to use right away, and others will have you try different things out to see what fits best. There’s a lot of types of hand controls and a lot of adaptations that can be done to a car, so it really depends on the person. My training was only about 15 hours (plus independent driving practice), but it’ll depend on whether this is your first time ever driving, if you’ve driven without hand controls before, and if you have any other medical issues that might make it hard for you to adapt. Once you’ve completed the training and received your certificate from the OT, they’ll write a prescription to send to a shop that does specialty car adaptation. Kind of like wheelchairs, the shop you go to is very important. Ask your OT if they have any favorites in the area. Insurance never covers this, and some shops will way overcharge you if you’re not careful. My hand controls were about 3k out of pocket, but it was definitely worth it. It would’ve been a lot more to add other adaptations like a lift or a ramp, but sometimes you can buy used accessible vans for cheaper than adding it to your own car. Something to know: you’re usually able to turn your hand controls on and off. So if your friend needs to borrow your car, or you need to let a mechanic test drive it, you can disable to hand controls and allow someone else to use the foot pedals as normal.

Overall, it’s a very long, very expensive process, so plan ahead and be prepared to wait and pay.

Navigating Raising a Kid with Chronic Illnesses

I don’t have any kids, but my mom was my sole caretaker growing up, and I can offer you some of her thoughts. You have to remember that no matter what age your kid is, chronic illness is an impossible thing for them to deal with, and yet they have to deal with it anyways. Sometimes, there’s no good way to comfort a child who’s in 10/10 pain, or who’s about to undergo a life-altering procedure. All you can do is your best. Communicate. Offer support. Give affection. Make your love unconditional. I was a very angry teenager. I was angry with my mom that she couldn’t fix it, and I was angry with my doctors for the way they treated me. There were days where I would yell and sob and refuse to take my meds, and there where days where I would stare at the wall and not respond to anything. It drove my mom up the wall. She’s used to fixing things, and this was one of those things she couldn’t even help. I know she stills holds a lot of guilt for this, but she shouldn’t. She did her best. You’re doing your best too. You can’t fix everything. That being said, here are her suggestions:

Therapy, therapy, therapy. They might hate it, but some day, they’ll thank you. Remember that not every therapist is right for every patient. If your kid wants to switch to a different therapist, let them. It’s better than them sitting and not speaking the whole session.

Lots of kids with developing rare undiagnosed diseases will go through this vicious cycle where they get a new symptom, get sent to a specialist, get dismissed, and then develop a new symptom and start the process all over again. It’s not easy. My mom was a fan of throwing Pity Parties. Every once in a while, when the grind of it all started making us feel hopeless, she’d take me to the store and say, “pick out snacks and drinks. We’re going to throw a pity party, gorge on sugar, watch Lord of the Rings, feel bad for ourselves, and tomorrow, we’ll dust ourselves off and try again.” It helped. It was good to know that sometimes you can let life feel unfair, and it was even better to know that the next day it would be easier to try again.

A lot of being chronically ill as a kid is getting decisions stripped from you and having unexpected negative experiences. My mom would try to do spontaneous things every once in a while to remind me that not all surprises are bad. Instead of driving straight home after school one Friday, she took me to Starbucks without saying anything. After an MRI, she stopped at an art fair and let me pick out a necklace. We would go to the library after I spent the day in the hospital. Sometimes, she’d call my aunts while I was at school to come over and play card games on the weekends. And she was really big on giving me choices in everything. She never made me agree to new (non-lifesaving) treatment. Ever. If she really wanted me to do it, we’d talk it over and come to an agreement that made us both happy. Sick kids are forced into adulthood early; they know how to make calculated, logical decisions when needed. Let them be a part of their own healthcare. (They should also be given the chance to make rash, stupid decisions that have no bearing on their health.)

Keep track of everything. Doctors, meds, ER visits, PT exercises, diets they’ve tried for GI issues, everything about the surgeries they’ve undergone. Some day, you’ll need it. Or your kid will grow up into a chronically ill adult, and they’ll need it.

Talk to their school counselor about getting a 504 or IEP. Even if they’re not struggling. I was a super academically minded kid; I didn’t struggle to understand new concepts or complete homework correctly. But eventually it became hard for me to attend class and finish assignments. Having an IEP saved me. 504s are a lot easier to get (a lot less paperwork, less testing, less pushback from admin), but they’re not legally binding. If you want something concrete and all-encompassing, go for the IEP. IEPs are also really helpful when trying to get accommodations in college. You can also start with a 504 and switch to an IEP later. While we’re on the subject of school: remember that education is important, but school is not the end all be all of your child’s life. What should matter the most to you is that they end up safe and happy. I didn’t graduate high school; I took a proficiency test my junior year and dropped out. It was the best choice I could’ve made at the time, but it was still tough for my mom. I ended up going to college, and now I have a pretty solid job, but every kid will be different. Their mental and physical health is the most important. School is a huge huge huge stressor. Don’t make it harder for them than it already is.

Dating

God dating sucks enough on its own, but adding in chronic illness and disability just makes it a shit show. I don’t have a lot to offer on this other than you shouldn’t settle for anyone who doesn’t respect you, treat you with love and compassion, and accept every part of you for what it is. People will say rude shit. They’ll be nasty, fetishizing, infantilizing, dismissive. Some won’t be able to put up with all the things that come along with being ill. I sound like a broken record, but find a good therapist who can help you voice your needs and expectations clearly. Remember that you never have to go on a date if you don’t want to. Participate as you see fit. Throw it all out if you want.

I don’t have enough time to go into my tips for intimacy/sex and disability, but I’ll give you the highlights.

Communicate. Make it very clear what you’re able to do, what you’re interested in doing, and what you don’t want.

There are lots of ways to have sex. If you’re both having fun, being safe, and engaging consensually, then you’re doing it right. Don’t let abled bodied people tell you the way it should be done. There are lots of accessibility friendly toys to invest in, too.

As weird as it might sound, don’t be afraid to take breaks. Keep water near by. If you have POTS, keep salt or electrolyte tablets on hand. If you have to stop to vomit or go to the bathroom, don’t let it shame you. Go at your own pace and take care of your body.

Misc

Having seizures on a college campus: Most universities have a policy that if you lose consciousness while on campus, they have to call an ambulance. You are not required to ride in the ambulance. You can decline, and the paramedics will make you sign a form before leaving. If you’re still actively having seizures, then they’ll take you anyways, but you probably won’t be in any shape to try to decline. If you’re having seizures regularly, tell your professors. It’ll freak them the fuck out, so warn them ahead of time. It makes the whole thing a lot less awkward when you collapse in the aisle during a lecture. Related to that: communicate with your professors about all your accommodations and emergency health needs. They really honestly appreciate it when you talk to them about this stuff. Even if they have a big class and don’t remember you, it’s good to send them an email and introduce yourself. Hopefully, you’ve also talked to your college’s Disability Resource Center. If not, go do that. Now. (There’s a whole lot of shit that I have to say about campus accessibility and disability resource centers, but I’m not gonna go into it right now.) Also, wear your medical alert bracelet. I know they suck, but it sucks more for someone to be digging through your pants pocket while you’re seizing to try to find your wallet. And keep your emergency contact info pinned up somewhere in your dorm. I used to put mine on the fridge and point it out to my roommates at the beginning of term. It can take a while for RAs to pull yours up, so it’s best to make sure it’s easily accessible.

Remember that you do not function like a normal person. There is no wrong way to solve one of your problems. If you need to put a stool in your bathroom to sit at while you brush your teeth, do it. I got an extra tall stool to sit at while I cook at the stove because my wheelchair is too short. (Cooking in a wheelchair is another thing I could talk about forever.) If you need to wear a sleep mask on the bus because the light makes your migraine worse, do it. People can look at you funny all they want. Like I said, I rolled around my house in an office chair while I waited for a rental wheelchair. What I’m trying to say is find things that work and implement them, even if they’re non traditional.

Here’s what I pack in my bag for an ER visit: headphones, phone charger, book, zofran, Naproxen, water bottle, wallet with cash, socks, and sleep mask to block out the waiting room lights. If I’m expecting to be admitted, then I’ll pack more, but I try to keep it light if it’s just triage and a visit with the ER doctor. Sometimes I’ll stuff a granola bar or some almonds in there too.

My biggest tip for surviving hospital stays is to get out of your room (if possible). Go on walks around the unit. Some hospitals have little courtyards patients can sit in. If you’re in peds, go visit the rec room, even if it’s awkward. Their activities are usually meant for the younger kids, but it can be fun to connect with other people your age, and you’ll thank yourself later when you’re stuck in bed at 3am. Also, tell your friends to come visit you. Not everyone will be able to, but most people are happy to come hang out for an hour or two. It’ll help; I promise.

Clean your room every few weeks. Dear god, clean your room. I have trouble with executive functioning and finding energy to do housekeeping type stuff, but I get more depressed when my room is gross. So clean your room. Especially if you have hypersomnia/sleep excessively.

Don’t force yourself to use a pill organizer. I know everyone says it makes it easier, but I get overwhelmed when I have to refill it, and then I just don’t end up taking my meds. If it doesn’t work for you, don’t do it. If it does, then do it!

Don’t buy the self help books your therapist recommends unless you’re actually interested in reading them. It’ll just sit on your shelf and make you feel guilty for not being good enough.

Mental illness is tightly bound to physical illness. Try to be an active listener in your body. Sometimes, when I’ve been feeling really nauseous, my PSTD symptoms will get triggered over nothing, and it’ll frustrate the fuck out of me because it seems like it’s happening over nothing. I try to track when my emotional state is worse to see if it’s correlated to my physical symptoms. This helps curb the frustration and guilt. Sometimes it makes me dissociate more. It’s a balancing act. Just do your best.

Hobbies are so so so important. Make sure to give yourself time to work on them! And there are a million ways to adapt the activities you love if you’re having trouble, so don’t afraid to do some research. I know they have crochet hook grips for people with arthritis or loose grips, and there are super intense magnifying glasses for people who like to cross stitch and are having trouble seeing the tiny ass holes. I have a color blind friend who sends us pictures of paint to see if it’s the shade he wants. Very occasionally, you’ll come to the conclusion that there’s a hobby you can’t adapt. Let yourself be sad. I can’t hike anymore and it sucks. I can’t go tide-pooling either, and its not like if I just work really hard I’ll be able to do it some day. Life is shit, and sometimes you have to let things go. Be angry, be sad, tell people to fuck off if they try to turn you into inspiration porn, but also remember that there are lots of other cool things out there to try.

Going along with the hobby thing: take the time to learn ASL if you’re having trouble with your hearing or if you often go nonverbal. One of my friends had to get hearing aids last year, and we offered to learn with them, but they were hesitant because it feels like a non necessity to them. Something selfish that would take up all our time. If you think it’ll help, you should grant yourself the time to learn. Capitalism makes us think that we shouldn’t engage in activities unless we gain money or power from them, but that mindset will kill you. Your life will be infinitely easier if you learn ASL online with your partner or friends or siblings.

Look up Spoon Theory. It’s not a helpful metaphor for everyone, but most people in the community talk about it, so it’s good to be familiar with it.

Don’t be afraid to go out and find community! Find support groups, look up wheelchair sports if you’re into getting sweaty, brave the awkwardness of starting conversations with other patients in the clinic. I’m wholly and completely of the idea that humans are innately good. There are lots of interesting chronically ill/disabled people who’re looking for connection. Insurance companies and other medical entities rely on us feeling isolated, alone, and uniformed to continue making money and hold power. It’s important that we share with and support each other.

I know a lot of this is basic stuff, but it’s helpful to have reminders, and if you’re new to the whole song and dance, then it’s nice to get a sneak peak. There are a million things I didn’t get to, but this was what was on the top of my brain.

Also, I’m not the collective voice of every chronically ill person in the world. My experiences are not yours and they’re not everyone else’s. What works for me, might not work for you. Be kind.