#to remedy. and i hate how Mom is managing the goats and the feed storage is awful and i hate the breeding decisions she's been making
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rival-the-rose · 20 days ago
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Important Ezra updates:
- I've doubled my salt intake to 6,000 mg/day (2 of the NaCl+KCl plus 2 of the 1g NaCl BID with food). This seems to allow me two hours of walking per day/4-6 hrs if combined with a corset. The cost is that my mouth tastes like salt at all times. Doesn't increase my thirst so it's still hard to get 2L of liquid in. So far no gastrointestinal consequences so my previous mishaps were probably due to too much citric acid in the electrolyte drinks.
-... That's it for health progress. I was really hoping for better from literally doubling but it's only been a few days so maybe there'll be more benefit from sustained therapy. Doc thinks we might need to double again, which I honestly don't know how I'll afford esp if I go back on Vyvanse. All that with T would have me at nearly $200/month out of pocket starting in January. But the salt is considered over the counter so even now the salt is out of pocket.
-having said that this morning I was able to do all the farm chores by myself without an episode. It wasn't safe and I'm pretty grumpy with my partner for not waking up to help me even tho we planned it around her sleep schedule. But I fed and milked ten goats by myself with minimal mishaps (they are naughty babies and I had limited ability to curb the naughtiness so there was a fair amount of illicit apple eating). And then after breakfast I was able to walk from the barn thru both pastures and back up the hill. I've had to rest since then and in between but it's so nice to be able to move my body even that much.
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