#some degree it's almost mocking them lol and it's depressing

[kosovareasllani9]

IDK if this is going to come across incorrectly but Sweden got to the top without a gold medal at the WC or Olympics..... things are possible people!! If you're feeling down it's okay you can still come out on top! Just do your best, persevere and holy heck you might be #1 with some silver and a ton of bronze medals lol

[vtforpedro]

LONG POST, medical update. ptsd, suicide TW: I’m really tired. I feel like I’ve been saying that for a year but I am exhausted. mind, body and soul exhausted my head got better after I lost the water weight my chemo pill was packing on (I was 15lbs lighter than the three weeks previously. so it was pretty bad lol) but now it’s getting bad again. it never gets to the point of relief, but it gets manageable and now it’s becoming unmanageable again. it’s not water weight but it might be cause I’ve put on a couple pounds over the holidays (just barely a couple pounds, I’m eating much lighter in general) anyway I don’t see the point of being scared to name what it is my neurosurgeon and I believe this is anymore. my psychiatrist thinks it makes sense, my pcp, even the ER doctor I saw on dec. 2nd lol but I am 99.9% sure this is what I have and it does makes sense but every fucking time I think about it for a while it makes me so angry. so so so angry y’all. I wish I could sit every single medical professional I interacted with over the last year or so who didn’t believe me and tell them it’s all been real, they failed me to such a degree I have ptsd and anger problems that I’m going to need therapy for, and tell them to learn how to be better providers. blegh so I saw my neurosurgeon (one of the best in the country) for the first time in april. his thoughts? anxiety with muscle tension in my back and neck that led to tension in my head. as in the muscles around my bones, not inside of my skull. didn’t listen to me or believe me, thought all my crazy symptoms were just anxiety and possibly the chiari malformation but there’s no treatment for that beyond surgery and mine is so mild no one wants to go that route (me most of all lmao) I put off seeing him again because I saw different neurologists and my PCP over the months who basically all said the same thing. like my PCP believed me and gave me referrals to the neuros, but one told me to ‘stop worrying about this and just enjoy life’ and the other sat with me for an hour, the first half of which she was all on board the ‘anxiety is fucking with you, none of this is real’ train until I had to tell her to LISTEN TO MY SYMPTOMS firmly enough that she did. she went the opposite way then and said yeah ok something ‘mechanical’ is happening, you need to go back to a neurosurgeon. turned out she loves the neurosurgeon I saw in april (worship the ground he walks on, were her words) but told me maybe I still needed a second opinion. she did also mention that I’ve been living with this for so long that I’m ‘married to it now’ which still implies I’m making it worse than it actually is but :) whatever, she couldn’t think of what it could be decided to just go back to that neurosurgeon and tell him the physical therapy he prescribed in april I had to stop because it made things worse. his PA tried to prescribe me more PT on the phone before I firmly told her I needed to SPEAK with him face to face because my quality of life is gone, because I get close to killing myself weekly because of how bad this is and nothing has improved since april. only gotten worse. so I had my appt with him in late October I think? I explained all of my symptoms (again) and told him how nothing has changed, things have gotten worse, when I do x y z I have an episode, etc etc. he said he still doesn’t think it’s the chiari but he said it *might* be IIH idiopathic intracranial hypertension first time I’ve ever heard of it and even though it was over 11 months into this, it might just save my life now that I have idiopathic = we don’t fucking know why this happens, intracranial = HAPPENING IN MY SKULL AND BRAIN, hypertension = technically high blood pressure, but for here just high pressure cause my BP is good it is rare, it is unknown why people get it and why others don’t, it is most common in women of child bearing age who are obese. the thought is that the weight on the body causes the brain to very slightly inflate, decreasing spinal fluid flow and increasing pressure in the brain, sometimes CAUSING a chiari malformation to appear, which can cause other symptoms on top of IIH it used to be called pseudotumor cerebri because IIH makes the brain behave like it has a tumor while no tumor is actually present (which means normal MRI/CT scans and the main reason everyone told me I was faking it) I gained 80lbs in less than two years due to severe depression and ptsd. I’ve been at the same weight for almost two years now and was at that weight in Feb 2019 before things started happening in Dec 2019. sometimes it does just come on one day. it can be chronic, it can randomly go into remission and come back, and they have no idea why it even happens. it’s rare enough that no neurologist I saw could even think of it. rare enough that one of the best neurosurgeons in the country didn’t think of it until he decided he believed me lol he leans even more heavily into this because I gained weight so quickly (one of the hallmarks of getting IIH) and I had not a single symptom like it before the weight gain I don’t trust anything or anyone right now and I am extremely pessimistic and have no hope. but the one thing that’s given me a little hope, that’s made me believe this is what I have, is the fucking wikipedia page on IIH. it lists one specific symptom that I’ve seen nowhere else (and is EXTREMELY specific lmao) that I have and that everyone thought I was crazy explaining. beyond destroying your quality of life, the one thing IIH can do is cause permanent blindness. I’ve had a fuck ton of problems with my vision since this all started happening. one of the worst is that if I’m in the middle of an episode and I look up or to the left, it makes it h u r t and makes the episode worse. which is on the wikipedia page! which explains why I couldn’t fucking do EMDR therapy which involves rapid eye movement from side to side :) :) :) even my therapist was thinking this was all in my head and I was just letting my anxiety tell me EMDR would send my head into an episode instead of it actually happening lmaaaao god I am so angry y’all my mom and my uncle The Doctor wanted to commit me in March/April. I had an entire ER nurses station mock me for ten minutes for coming in repeatedly and having bizarre symptoms that, because they were unexplained, they thought I was faking. they belittled me when talking to me. one put the tv remote (no tv in the room) instead of the call button in my hand when I was too out of it to notice. the ER doctor that day told me I was making up a story, none of this was real, and to continue seeing my psychiatrist. I went home that day, told my mom I was fine for her to go back to work (she was angry with me and wanted me to go to a psychiatric hospital), took a shower and planned on swallowing a bottle of pills. I was in agony, utter agony, every single day multiple times a day I thought I was going to die, and it was being made clear to me that no one, not even my mom, believed me. I told my best friend and she talked me out of it, but I came very close and I will forever be heartbroken and angry beyond belief about this (my mom came around not long after this after seeing that this wasn’t going away and has thoroughly apologized for wanting to commit me. she has been helping me every single day since this started even tho she thought it was anxiety. I’m angry but I don’t hold it against her, not after the incredible sacrifices she’s made for me for a year) so yeah. every bizarre symptom, every agonizing thing I go through, the weird discomfort, pain and burning, vision problems, etc etc, all explained by IIH. the very specific ‘looking in a certain direction makes it worse’ has been there since day one. it’s because pressure has increased on the nerve behind my eyes so looking in a certain way aggravates the affected nerve further gaining all that water weight and having my head get so so so severe, enough to send me to the ER again, made me also think this was a real possibility and the ER doc agreed that the fluid retention was making pressure in my brain even more severe and it did ease quite a lot once that was all gone, another reason I believe this is IIH if you read up on IIH or read stories by people with it, it is life altering, debilitating, and agonizing to live with. most people will also have the same story of doctors not believing them and saying it was anxiety before getting this diagnosis the good thing? there’s a cure and while some people may need additional help later on, it works for most people. and it is, very simply, losing weight. 10-20% of body weight (some places say relief can start at just 3%) seems to completely cure it for most people because the brain is no longer inflated and because of that, any chiari malformation (cerebral tonsils sitting in the spinal cord opening) will actually go away, because it makes room in the skull for the tonsils to go back to their normal place I have some trouble knowing that I am partially at fault for gaining weight like I did, but my mom keeps telling me it’s so rare and how could I have possibly known and it was after severe trauma so. trying to deal with that too lol but yeah! weight loss journey. my chemo pill, if you read my last update, completely fucked me up for a while (including the fuckin weight gain despite a low calorie, low fat diet since like nov 1st) so it’s made it hard to lose weight. but now that I’m off of that pill, I’m down 7lbs and I will continue to lose. I have never been more motivated in my life to lose weight lmao and I’ve successfully done it before! I can’t exercise but my neurosurgeon said as the weight comes off and my symptoms start getting better, I will probably be able to incorporate more movement in my life. I can’t even walk around my apt for too long right now cause it builds pressure in my brain. it fucking sucks because this is something they don’t understand, it’s really only diagnosed if everything else has been ruled out (and with a lumbar puncture, but I am too fucking traumatized to have that done. but if I showed high pressure with no reason for it, it would be an ‘official’ IIH diagnosis). but I’m choosing not to do the LP because if I start to have my symptoms relieved as I lose weight, it’s pretty obvious that’s what this has been from the start my brain thinks it has a brain tumor and is going absolutely batshit insane and no matter how much I tried to get people to believe me, it took 11 months to get there. I will carry this with me for the rest of my life and once covid eases, I’m finding a good trauma therapist and working through this if my symptoms DON’T ease, we’ll talk brain surgery. but I think this is what I have and I think I’ll be okay when I lose enough weight (and I’ll feel better all around lol) anyway I’ve had an extremely bad couple of months and I wanted to get this off my chest, sorry it’s so long. if you can please, please, please cross your fingers for me and wish me luck that this is what it is and that over the next handful of months I lose the weight and get my life back, I will appreciate it more than I can say I’m going to thank all of you ahead of time because I lack spoons to reply right now and I also want to thank you all for your support over this last year and never doubting me. for always offering me words of encouragement and for being angry on my behalf. thank you thank you thank you I love you all <3

[glarehand]

ranting a bit here bc as little as i interact w/ the rp community, largely due to focus issues, depression, and anxiety, i really do appreciate my mutuals, especially in light of being in different fandoms where things’ve happened and i just. Angery

so under the cut is a funny? irritating? text-wall about some star wars related stuff i’m bothered by lol

1. shipping; i like shipping. it’s fun, it’s interesting, i get to explore things in fiction that i don’t want to as strongly or at all irl as an aroace person, etc. first problem; i ship the clones bc i viewed them as, well, clones. an aggrandized version of that buzzfeed poll abt fucking clones, if u will. i view them as “brothers” in a wartime/militaristic sense because they’re... they’re clones. they’re the same person a million times that post-cloning, sought out ways to enhance their originality (tattoos, interests, etc) past their voices, abilities, personalities, and so on. they have originality but that isn’t compromised by their existence as people based off the same template. 

some people interpret them as literal brothers which is fine too! i only consider jango fett the father of boba fett/boba fett the son of jango fett, despite boba also being a clone. especially in mandalorian culture, adoption is as valid as blood, and boba fett’s relationship to jango fett absolutely strengthens this but it’s unique in that jango adopts one son/views the clones as the jedi army separate from himself and his son/dies without having any particular association with them.

but still, regardless, i can understand why people interpret them that way and i don’t have a problem with it and enjoy peoples’ differing interpretations. but when someone mentions that shipping the clones is undeniably incest (disregarding that cloning = incest is not by any means something that can be overlapped from fiction to real life so easily? it’s sci-fi so we also shouldn’t be seeking out real life parallels to things nor considering those parallels so hard proven?) it’s like... can you shut up for two seconds LOL like it... they’re... i don’t know how to explain to you that trying to draw hard lines between things unique to sci-fi and things in real life doesn’t work as flawlessly as that. if so, we could easily turn any other media into sci-fi or any sci-fi content into slice-of-life, deciding that of course the clones would be a million literal brothers and lightsabers would be 1000 degree knives and half the aliens would just be animals- like that’s stupid and disregarding the uniqueness of the media (though i adore aus- this isn’t a dig at aus or canon divergence bc that’s literally all i do)

and outside of some specific posts i’ve seen abt this, a groupchat i was in mentioned no rule abt this or any other ship related issues, meaning that i was existing inside the chat but with this heinous feeling secret? like i felt i either had to out myself for something someone else had decided was wrong or continue existing in the chat but not get too close to anyone, out of fear of a friendship being suddenly terminated over something as foolish as character interpretation (which can and should exist separately, at once).

in addition to the internal shipping/not shipping the clones debate, was clone/jedi shipping, preferred ships, and what this means in regards to what was left in terms of shipping options, if that was something someone wanted to engage in (which i do, and that they did as well)

2. for clone/jedi shipping, i understand the possible issues of a power imbalance or how the relationships are portrayed in media-only. but at the same time and as is mentioned above, we have to suspend our belief a bit for fiction, especially with sci-fi. the militaristic/war aspect of star wars is the point of that media; it doesn’t seek to glorify or mimic real life roles (ahsoka is a general at 14, amongst other things; that in particular allows for kids to feel like they’re part of the show, like they could do be a jedi and save people at age 14, because what would be the fucking point of it if we showed only adults saving the world/14 year olds with only 14 year old responsibilities? to an extent, it’s an escape and while it’s odd writing to hold ahsoka to the standards of mace, obiwan, even anakin, it should at least be a fantastical opportunity for self-insertion/daydreaming to an extent) it has a strong focus on rebellion which can be applied in non-physical/non-warlike ways, and isn’t without the fictitious aspect of fucking laser swords and telekinetic manipulation. the wartime aspects of star wars don’t need to be followed as closely as real life regulations and expectations; if done that way, even leia and han as a ship would involve a power dynamic seeing as he technically becomes a part of the rebellion under her leadership.

in terms of 3. show-only content and the above about power imbalances, that’s what fanfiction is for. in general and in relation to that chat, full of creators and writers and so on, fanfic is for elaborating on given content, filling in content that hasn’t been given, and for rewriting things you feel have been done wrong, artistically or just because you don’t like it. an example for me is barriss offee’s arc and timeline; not only does her timeline in the prequels differ from her timeline in the clone wars show but her character seemed to be thrown away so easily, her actions made out of character in addition to her fate being the opposite of what it had been in “higher” canon. there’s also the very valid interpretation of how bad it was that the show made the muslim-coded character a terrorist BUT even disregarding people’s headcanons of her as a muslim woman and just focusing on it in a sci-fi sense, it seemed very out of character, done just to create an antagonist and an opportunity for ahsoka’s development and disillusionment with the jedi/council so of course people gravitate to rewriting her arc/redoing her character/adhering to a mix of the canons, and so on. not that people who view canon as the most important aspect of a work are wrong but like, even fanfic that adheres to canon is in a way diverging from it; if what someone creates isn’t exactly how it happened on screen, canon-compliant, involves no ulterior emotions or added scenes, it’s based on interpretation. 

people who invest themselves in ships that have no basis (4) were also mentioned and that’s just as valid a part of creating. i understand in some cases, people will ship anyone together knowingly or unknowingly to fetishize gay relationships but it’s not a sin to decide you want to see two characters interacting more or want to elaborate on what canon didn’t discuss or want to create backstories and relationships out of the blue OR just outright decide you have two favorite characters and want to explore them together, even in just an nsfw sense.

so being anti clone/clone, anti jedi/clone, and anti any characters that don’t really interact is not only dictating what ships are “right” and “wrong” based on one’s own interpretation and willingness to strictly adhere to canon but what other options are you giving us to ship the clones???

again, not that nonromantic story aspects and single character discussion isn’t important but romance and romance options are important to people and if presented and possible, people shouldn’t be prevented from doing it just because people think it’s wrong with no legitimate basis OR don’t allow people to warp canon (especially canon they don’t like or think is contradictory and out of character) to suit what they wish to explore.

there was one option left though and i dislike the new association i have in my head of it now because of all the problems above, though i assume it wasn’t done on purpose: 5. disregarding in-show shipping possibilities for self inserts

i love self inserts and my love for them has been amplified by the chat i was in, making me feel more confident in doing it myself and i am very happy with that in that i can have more love for myself in writing myself and shipping myself with someone else. but it was odd that all other possibilities were almost struck down in favor of self inserts; if cloneshipping was automatically incest, disregarding that that’s not the conclusion everyone had come to? that my brain just didn’t assume it because it’s a sci-fi only situation?, jedi/clone ships were unhealthy and based off of power imbalances/characters not truly caring for one another, and shipping characters together for the fun of it had no value as characters apparently had to know one another enough/there had to be validity in it, the only option left was to rewrite canon but only for one’s own purposes, valid only in this one case.

that just annoyed my mildly and i know it most likely wasn’t intentional but overall, i’ve felt unable to have headcanons or do certain things at the risk of being visibly mocked for it; having different faves and ships and interpretations and kinks are all parts of people’s varying fandom experiences and to have people talking about how much they don’t like that on a very visible separate discord channel where i could go in and see? and just hope that something i adored wasn’t next? is not fun at all and genuinely impacted me to where i don’t really want to have fun with people i’d liked before, where i don’t really want to post and create like i was doing when i didn’t know people were deciding based on preferences what was morally appropriate.

one of the rules in the chat was essentially that anyone could have any fave character but that discourse still stood; yes but sometimes i just want to like a character or ship? without having to preface it with how i know x thing was bad and that i don’t condone it. 

kain highwind is my favorite final fantasy character- i don’t want to have to justify my love for him, in situations where i know he was in the wrong and in situations where i think the canon content contradicted other canon descriptions of him, creating two images of who they wanted him to be; i interpret him as i interpret him and it’s unique and dear to me. 

a lot of the time, i want to create and appreciate without having to make it right for someone else’s interpretation. i don’t want to approach a groupchat or even single person friendship assuming i’m going to have to defend my favorites as ultimately a representation of myself. when i do hold my favorites close to me as extensions of me, i don’t want to have to pit myself against someone else as if i’m invalid for how i feel and interpret and am.

in general, things quickly became not fun at all and i felt alienated by an entire group all at once. like it fucking SUCKS to feel like you’ve lost 6? potential friends in one place, 3 in another, in addition to having to be wary from now on when engaging with anyone else in that fandom and after losing two friends in real life over disagreements, both times because i was misinterpreted and had to then reconsider myself especially in relation to my mental illnesses and my neurodivergency. to then feel disliked for something as stupid as shipping preferences feels as it is- foolish and embarrassing and ridiculous.

i would like to make friends but i would like for friendships in fandom to stop being so circumstantial, especially on trivial things