#none of this is stuff that hasn't been said 10000 times by people more experienced than me

[thedreadvampy]

I’ve spent a lot of time thinking about disability and neurodivergence over the past couple of years (I’ve actually just now accepted a contract to freelance write a section of policy on disability and ableism for my old workplace. I have done this because I hate myself and starting a new job with 1.5x the hours as my old one JUST WASN’T ENOUGH STRESS)

and I have decided I REALLY take issue with the concept of "disabled”. like. at all. I think the construction of “disabled people” is at the root of SWATHES of what’s wrong with our society and how we treat people with specific access or wellbeing needs.

like I think it’s basically fact at this point to take a postmodern approach and accept the common framing of “people are as disabled as society makes them” ie disability is a social construct and who is disabled is purely a matter of who society isn’t willing to work around as default (the usual example is short-sightedness, which historically was a substantial disability but is barely noticeable in a society where using adaptive tech for it is normalised)

but I wanna push it further because either EVERYONE is disabled or NOBODY is disabled imo. “disabled” is a broad enough category to be fundamentally meaningless. it’s a useful umbrella term for like...people whose physical and psychological needs and personhood are often diminished, overlooked or ignored, but it’s also very arbitrary and contextual what qualifies as a disability.

which is kind of what I’m saying about person-centred parenting (which. pinch of salt I am not a parent). EVERYBODY has special needs because everybody’s needs are different. And my experience has been that positing Capital-D Disabled as a specific, blue-badge-holding, Very Serious category, and limiting your concerns about access and wellbeing needs to disabled people is: 

a) unhelpful to people who aren’t disabled per se but who benefit from specific accomodations (for a very trivial example, “having shit internet” isn’t a disability, but it’s still an access need that things like video transcripts, image descriptions and alternate communication routes will help meet) b) unhelpful to people who are “disabled-ish,” who don’t feel able to clearly identify as disabled, or who don’t know they’re disabled (which to be honest is so many of us because invisible disabilities, partial sensory or motor loss, and mental health problems make up the bulk of disabilities and those are often invisibilised or downplayed) c) unhelpful to “properly disabled” people, because it creates a huge othering effect. drawing a hard line between “normal” and “disabled,” or even imagining that that’s a line that exists, allows disabled people to be dehumanised or treated as the sum of their Tragic Suffering, as opposed to the Normal Abled People.

“Disabled” is, as I say, a useful generalisation/abstraction sometimes, but when we’re talking about actual material things (whether that’s material need or material change) it’s not a useful category. I honestly don’t think we can create a society which consistently confronts ableism while we’re trying to operate in a binary framework centred on “disabled” vs “not disabled” or “neurotypical” vs “neurodiverse”. We need to be willing to throw out the whole construction of “abled” and instead commit to handling needs without interrogating cause. 

This DOES NOT MEAN that doctors, therapists, individuals, communities etc shouldn’t try to diagnose, treat or understand conditions, or that we should throw out the idea of labelling condition groups. It just means that we need to flip how we look at it, and take a descriptive not prescriptive approach. We need to understand that these labels (whether something as broad as “disabled” or as specific as “Ehlers-Danlos type 2″) are useful as groupings, but that the function of them is to give a general idea of what issues might arise and what might help.

Every person with, say, EDS type 2 is using that to refer to the same symptom grouping, but a) they’ll all manifest, experience and describe symptoms their own way and b) they’re all individual people with other shit going on in their minds and bodies, and so what helps one of them may absolutely fuck another up. And somebody who doesn’t have EDS type 2, but who finds using a wheelchair helpful, potentially has more in common with EDS patient A (who uses a wheelchair) than Patient A has with EDS patient B (who has no mobility impairment but huge digestive problems).

And like. ok. I’m not hearing impaired but I do have audio processing issues, so subtitles are really, really useful to me. I’m not, technically, disabled in that way. it would be dodgy for me to claim I was. but it’s still super useful for me to feel able to request that. and then we have to ask - where’s the line? I’m disabled because my knees are fucked at 27. but if my knees were in this state at 80 I’d be in rude health. but if I was 80, it would still be an absolute pain in the ass to climb 5 flights of stairs, even though contextually I am healthier than expected. 

Or like...I was chatting to a pal about disability disclosure and all the little things you don’t notice affecting your life and therefore don’t report or ask for help with. I said “I have agoraphobia and there’s this like. physical resistance I have to push through to leave the house so I stand around going ‘oh no I have forgotten something’ because I’m procrastinating on having to go outside.” She said “oh I also do that but in my case it’s because I usually have forgotten something so I’m always paranoid.”

forgetfulness isn’t a disability (except when it is). and ultimately although the root is different the material impact is broadly the same. and the world is full of things we find hard that others find easy, but that may not be socially understood as disabilities. I just think we’d get a lot further if we took a solution-centred view on this. it does matter to me why I can’t leave the house, because how I handle it is affected by what the problem is. but it shouldn’t matter to eg my work why I need to give myself an extra 20 minutes to get out of the house (whether it’s agoraphobia, forgetfulness or something else) as long as we can, between us, figure out a workaround.

anyway that’s why I keep textdumping on that parenting post. because we shouldn’t have to ask “does my child have ADHD” or “is my child autistic” or “is my child trans” in order to justify finding ways for them to manage being restless, depressed, overwhelmed, manic, afraid, angry etc, or to let them wear what they feel right in and self-describe how they want to. It might be helpful to know if they’re ADHD/autistic/trans/whatever, because it can help you get ideas and resources for strategies, but it shouldn’t be necessary, and “because this thing is harmless and makes them safer/happier/calmer” is fundamentally a more important justification than “because they are autistic”

idk. treat people as people. try to do right by them. don’t build a hierarchy of Normal and Abnormal problems. just meet common needs and create space for people to express their needs without needing to disclose their whole medical history or litigate their disability status.

(TO BE CLEAR: in the current world legislation specifically related to defining disability as a protected characteristic and disabled people as at-risk/special interest groups are VERY NECESSARY. but in a world governed by an expectation of tailored accessibility and wellbeing approaches I think that necessity would at the very least be heavily reduced. and in communities trying to do more than the bare minimum to create an anti-ableist space I think the best single thing we can do is almost always to remove gatekeeping and disclosure barriers to asking for adaptations)