#it's back to 4 day treatments after the new year at least tho her dosage is getting increased this month too. hmmm
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sheyshen · 2 months ago
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internet was out for a couple days and now mom's got meningitis. december is off to a start
(to ease any concerns the meningitis is from her ivig treatments being done too much too fast so i have no risk of getting it but i also hate seeing her sick)
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cynicaldesire · 4 years ago
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Since I’m having trouble writing, I’ll just make an update post. Maybe that’ll help me feel better, get some things off my chest.
Not much to get off my chest tho. My husband had a like 2week break and we sat around mostly playing Monster Hunter Rise for the duration.
Shortly before his break, though, I was having chest pain and a toothache. My teeth have looked pretty gnarly and my gums have been receding for a while but language barrier so we’ve been too scared to go to a dentist. But we have to now because I started have Chest Pain.
My husband’s father died from heart failure. So I kept expecting my chest pain to go away so I wouldn’t have to scare him with it. But after like day 4, when the pain hadn’t gone away, I finally broke down and told him about it. He had like 3 days of work, so we agreed that I would be super careful and we lost a lot of sleep, but I checked my heart rate using my phone and tried to take it easy until my husband’s break started. We headed to the big hospital like a block away from the clinic we usually go to just in case my chest pain was serious. We struggle our way through language barriers and I explain my symptoms to the doctor. It was mostly some burning pain at the time. Doctor has me get an ECG and some bloodwork. He tells me the ECG is normal so my actual heart muscle is fine, but the bloodwork says my liver is inflamed in response to something, but it’s not an infection, so he’s gonna prescribe me some NSAIDs and tells me to come back in a week. My husband says that I also have been having some tooth pain. The doctor freezes with a thinky face and says to get my teeth checked and to come back in a week. We ask if he has any suggestions on dentists. He says NOPE! and leaves. We head to checkout and while waiting for them to process my stuff, the doctor stops by checkout also and I’m like Hey. He nods and heads out. We spent a total of like... 4 hours there. Total. For the ECG, the bloodwork, etc.
Go home, take the meds, try to take care of my teeth, get Listerine. Sit around and try to take it easy for a week. We go back, the burning is gone and my teeth have overcome their problem. Doc asks if I’m okay now, I say yeah, seem to be, but now I have random pinchy pains. He says I should come back in a month. Husband and I can’t so the doctor is like Okay well, you’re fine, but if it gets bad again... Come back.
Due to my being broke, uninsured, and having a chronic illness, I do a lot of armchair doctoring on myself. There’s a limit to it, of course, but I try to research my own health issues or treatments after visiting a doctor. I found so much more information on PCOS on sites like fucking Reddit than by going to a doctor for years. So after the doctor told me I was okay, I looked up why I might have chest pain if it wasn’t related to a heart attack or something. And one of the options was a pulled muscle.
I thought back to the week before the chest pain started. Other than the toothache and swollen gums, I had been doing a bunch of exercise. I did a bunch of Ringfit and hip lifts and situps and stuff. And I was like Hm. Did I injure my chest muscle overdoing the Ringfit?
I, of course, informed the parents of all of this. My husband’s mother was informed and I was worried she would be deeply upset because she lost her husband to heart problems. But then both parents were like “You went to the doctor? You have medications? Well you seem to have it under control, so let’s bitch about my problems.” Meanwhile, I’m over here having trouble sleeping because I’m worried I won’t wake up. But okay. When my husband went back to work, I Skype’d with my mother and she seemed more irritated that I had interrupted her evening than happy to talk to me or worried about my Chest Pain. Also my dad has to get up at like 3am, so when I called her, she was worried her getting loud and animated as we do was going to wake him up.
(husband’s mental health doctor struggles and a story about library card nonsense under the cut)
Husband has also been seeking professional help because he believes he has ADHD. He’s been having a lot of problems, mostly mentally and emotionally, and he traced all the issues he’s having to ADHD. So he went to an English-speaking psychiatrist for medication. The shrink said he wanted to treat the anxiety before the ADHD in case anxiety is the only issue. My husband, due to his job, is very good at asking questions, so he asked the doctor how many people he prescribes this medication to. And he said 100% of his patients. Well, the medication didn’t seem to help, so on the followup appointment, the doctor said Oh, you’re just taking too much. My husband was like It’s supposed to reduce my anxiety, but instead it’s making my anxiety worse, it’s giving me mood swings, and generally making me very angry. And also sex is more difficult. Doc said I’m gonna reduce the dosage because I can’t treat your ADHD without getting rid of the anxiety. Husband came out of the appointment angry and defeated. But now he’s taking less (and it might be helping?)
Soooo yeah. I try to brush my teeth at least once a day (up from the like once every 20 years I did it before) and I use the No alcohol Listerine in place of brushing sometimes because you can. I skimmed an article about how to take good care of your teeth and it said to not actually rinse when you brush and mouthwash in place of brushing sometimes. I drink almost exclusively soda so I try not to drink any for at least 30minutes after brushing or mouthwash.
We hung out with the friends a couple weeks ago and they said we should start up a new DnD campaign because one of our friends has a roommate in his small apartment and can’t rejoin the old one. The roommate is a friend displaced by a breakup, but he seems to have a new apartment and the moveout date keeps moving. Our DM is getting tired of it and one of our other friends wants in because he’s lonely and DnD is great, so he said we should start up a new campaign so he can join. So we’re setting up for that, just in case.
In order to work on my writing, I’ve skimmed a lot of tips articles after watching a bunch of YouTube lectures and videos. I kinda hate reading and I feel like a huge fraud because if I want to write, I should like to read. But I don’t want to risk buying books I don’t like and having piles of books on my Kindle that just rot. And also, you know, I’m broke. Why spend money on something I won’t get any enjoyment out of? Just a waste at that point. Coulda bought some McDonald’s with that money. Or something. So I thought about the library. I don’t have an active library card, but I knew my Dad had one, so I asked to use his to check out ebooks. He obliged and I started getting books that everybody recommends, like The Name of the Wind and Tales of Earthsea and all this other stuff. I also got Mistborn: The Final Empire and some other Sanderson books, and the Witcher series. But not every book was available at my library. I found an app that let me look at other libraries’ catalogs and I found the missing books at the library where my husband’s family and friends are. I asked our friends if they had a card among them, and the one guy that works at the library has one but his card is always maxed out for checkouts. As an employee, he can check out like  a max of 99 things. And it’s always maxed out. He offered me something I wasn’t comfortable with, so I declined. So I asked my husband to make a card. He declined. So I asked him to ask his mom to make one. She said she doesn’t live in the city, so she can’t. She sent us an email with my husband’s sister’s name for a library that I didn’t ask for and didn’t have the books I was looking for available. Because it uses a different service than the one I was looking at apparently so I could use that one but they didn’t send actual login information.
My husband, because of the way he communicates with his family, asked his mother for help with this library endeavor very cavalierly. He was just loosey-goosey with it. Something about it rubbed me the wrong way, but I figured they would handle it. His family intimidates me, has rarely made me feel welcome, and so I usually leave myself out of conversations with them. But after they just stopped worrying about the library thing, because I felt like I was right and all they had to do was make an effort, I took it upon myself to email his mom directly. Due to childhood trauma or other paranoia, I’m always worried about being misconstrued or misunderstood, so I end up being very verbose. See above. So I made a long email explaining why I wanted the library card, why I was asking for their help specifically, and included links to the places I saw you could make a library card and how they didn’t have to leave the house to verify it because of COVID. Then, to make sure it wasn’t demanding, that it was friendly, I added some stuff at the bottom about how I wished them well and I was proud of my sister-in-laws’s weight loss journey and how my chest was doing and blah blah. I sent this email right before bed. I assumed that his family would work together to figure it out and if they didn’t wanna deal with it, they would say they weren’t interested. The worst they can do is say no and I’ll have lost nothing except time.
Woke up to an email from his mother saying, in that malicious compliance/corporate politeness way, that she couldn’t make a library card because she didn’t live in the city and she’d be happy to make one for one of the cities that did work. Also, she hoped I was feeling better.
I had had a bad day prior. The day before, waking up had been near impossible, my husband ordered McDonald’s delivery for breakfast and I wasn’t hungry so we sat and watched an anime I didn’t want to watch while food sat getting cold in front of me. I ended up not being hungry for 8hrs. We were talking to the group about DnD, but also needed to shower, so while my husband got in the shower, I said some things to the group and then hopped in the shower. Upon telling my husband what I said, he had this look on his face like he was planning how to damage control what I had said, despite not even knowing what it was. My exhaustion had left me vulnerable, so I couldn’t deal with it and cried. He apologized and we talked about it. Bolstered by this conversation, I went on to boldly converse with other people, which is what allowed me to send that email to his mother in the first place. So upon her declaration that she couldn’t help me, I decided to help myself.
So I went through the process of making an account using my husband’s name for the library I wanted and it worked, I think. It’s not verified or maybe it’s not in the city, so I couldn’t check out an ebook. So I was back to square one. Not only back to square one, now I was doubly wrong. I had pursued this process in righteous indignation, after having directly contacted his mother, and been proven wrong. So now, not only was I dumb and wrong, I had put myself out there. I was wrong on stage.
My husband, wanting to help, went and acquired the one book I was using as my litmus for me. There are probably others I could look up, but at least I have that one and it’s sequel.
But yeah, that’s what’s going on with me.
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