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sillyfudgemonkeys · 4 years

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Was reading your response to the Okumura Ryuji/Morgana fight, and the way the person worded Ryuji's character made me wanna ask... Do you think a bad fanbase is a fair reason to dislike a character? I've heard people say things like "no look at the character too", but... For example, I'm very neutral on Ryuji. When he's good, hes SO GOOD, EXCELLENT BOY, but Ann is my favorite girl. Guess who he pervs on exclusively and is rude to all the time? I've never seen his fans talk about (1/2 sorry)

His rude behavior, or his pervy tendencies, or his more selfish desires regarding the PT. That's fine!! Not everyone wants to constantly talk about bad things their fave has done!!! But people referring to him as a "woman respecting king" so insistently rubs me the wrong way, since he treats Ann Like That. That, and (more personal) i remember making a post/ask thing once about my grievances with Ryuji, esp his perv stuff, and the fans that interacted very aggressively denied his behavior (2/3)

And it even turned into a big discourse on the blog I submitted it to (it was that one confession blog). All the people that responded and just tried moving the arguments to "well Yusuke did this-" or even tried to push blame on Ann "she was asking for it" just kinda cemented my already growing dislike for Ryuji. Super sorry this is so long!!! Final question: is a bad fanbase a fair reason for disliking a character? (3/3)

Don’t say sorry about multiple sent asks, I don’t mind kfdsjla;fja As for the answer, I want to say yes and no, but really it’s just “yes with a side note attached.” Yeah, it’s ok to not like a char because of their fans, but I think it’s as long as you know why you dislike the char beyond the fans (well tbh, imo it’s usually the crazy fans so I think stans is a better word, but even then there’s diff stans). And tbh, I....can’t....think of a character I don’t like that the fandom/fanbase does....but I know nothing about the char all the while (closest and most recent example this....is....I know people dislike that grey haired moe blob on twitter even tho I don’t think they watched the show, and while I’m not a fan of the moeblobness I don’t know anything about the char so I’m personally not upset). I can only name chars I don’t like because of what happens in the text, fandom be damned (but sometimes they don’t help). Which is why it’s a yes with a side note. If you don’t like the char despite not knowing them.....probably get to know the char first even if your impression is clouded by the fandom....at least you gave the char a chance.

Under cut cause length (first few sentences in the first paragraph under the cut/tldr at the end gives you the answer a bit more in depth, the rest is rants related to that and why I get frustrated in a similar sense too, but yeah sorry if I repeat myself, I kinda jumped all over + my tendency to try to nail a point home I feel like might’ve had me repeat a bit more than usual akslfjdakfjaf):

I say this because.....it’s hard....it’s hard to keep them separated, unless you completely isolate yourself from the fandom (which is basically impossible if you wanna keep up with news, even the comment section is part of the fandom tbh...and you might be looking down their for diff reasons). And then.....well...the big reason....sometimes seeing the fans really highlights the reasons you dislike the char. That’s what happened to me and Makoto, specifically cause of....a certain fan (and buddy if you happen to see this, nothing against you, no bad blood, def won’t mention your name I respect you and the debates we had)....AND TO THE TUMBLR READERS WHO GET NERVOUS: It wasn’t on this website in case anyone is freaking out so if you’re thinking “Oh god it’s me” it is most likely not you (tho I think we do know each other on here cause of usernames/saw each other in passing but we def aren’t mutuals last time I checked), and while I do respect that person.......my god did they highlight the reasons I had issues with P5 and Makoto. Ironically in trying to defend her and show off her good sides, I realized the writing issues more and more and her bad sides became more glaring. It turned my frustrating dislike and attempt to try to work out my issues with her and P5 (ironically “working out” in hindsight would’ve been me....denying and refusing to look at P5′s flaws) into....well......the salt factory you know today. (same thing happens with like......Yukari and Junpei fans too tbh...that’s more recent tho, it feels like they are just downplaying their negatives constantly and I’m not about that). Basically, you probably have issues already, they are just more pronounced now.

As for “look at the character”....you kinda already are doing that, and that’s probably where your existing issues originated from (tho if someone wants a more in depth reason as to why, while you DON’T OWE them an explanation, it is also hard for someone to understand your feelings and reasons if you don’t try to explain).

As for Ryu, yea, I getcha, I like the guy, I’m neutral positive on him....was my best bro but he’s 2nd best thanks to post-Kamo writing. I like him because of his positives, but I always keep his negs in mind because. Cause like while I agree with the fans IT MAKES NO SENSE! P5′S WRITING IS BAD! it happened, same as I agree that Anne kicking Ryu’s ass, along with the other girls, is shitty. Hate the scene, and I accept that it happen (low key gonna start some kinda 2nd wave war with this bs cause the fandom be like that, but I’m really surprised no one took Anne smacking Ryu behind the neck cause he was being too loud as super offensive and abuse.......it’s def something a friend might do, not like belting him just a tap, and it’s framed as chill and also as warning him to reign in the volume control, but high key surprised no one has tried to cancel her cause of that). BUT that DOESN’T mean it erases all the creepy stuff he’s done. Is he the goodest boi when he’s being good? The best. Is he always a good boi? No, he def is not. And hearing that he is can be frustrating to people that do see his flaws (cause they are there). And like....you are 100% able to like a character despite and because of their flaws, while also accepting they have those flaws. I do it with Yosuke, Ryuji (for the most part), Teddie, Shinji, Ken, Kanji (when he’s not around Naoto, then he’s in a trash can for me), P1/2 casts, Aigis, Mitsuru, as long as the flaws are within reason and are treated pretty well....then I’m ok with it. (again, Kanji/Ryu have moments when I’m like....NOPE! but when they aren’t doing the bad thing I’m cool with them). As long as the flaws are withing reason (aka they aren’t making a jerk person out to be the person in the right, or the writing is trying to sweep what they did under the rug, or trying to force us into empathizing with them despite what they did while also trying ot sacrifice empathy towards another char.....*cough*Makoto/Yukari/Junpei*cough* if the writing isn’t doing that...... I’m probs neutral to pos on them).

Like I’m fine if they are criticizing the writing and being like “Him doing this makes no sense cause it conflicts with the good boi we’ve already seen!” That’s a-ok! Not only do you recognize your char has flaws, you also are able to identify issues with the writing. But saying “so I’ll choose to ignore that scene” isn’t....ok. Because sadly it did happen, as contradictory it did happen. AU it all you want, but you have to accept it happened outside of that AU. Like, I don’t like the Mika conflict in Anne’s CoOp, by which I don’t like how it went down (100% fine with Mika, and there being conflict with her). How it the whole thing started doesn’t make sense if you put MainStory!Anne in her CoOp. MS!Anne can read the room and other people’s emotions (only other person capable of that is Haru, or at least with Mona), hell she was so good at it she noticed something was up with Shiho without Shiho telling her about it! The issue was the fact Anne’s not a mind reader and could only assume the issue Shiho was going through that Anne was aware of (and that was her spot on the team). Now MS!Anne is not like Yosuke, she doesn’t put her foot in her mouth. She’s not like Naoto who can’t read the room. She’s not super eloquent, but can empathize and when she can interact with people she can do it pretty well. So why the hell does she basically not think before talking and insult Mika? Sure Anne’s not GREAT at school, but she’s not a moron, she can talk to people. But her CoOp makes her a moron all around, 100% airhead, and that’s how her issues with Mika start, by not thinking before talking and accidentally insulting her via blatantly “not caring” about the job to a full time person......it’s stupid, it makes no sense, I hate it. But it’s there, the flaw might not be present in the main story, but for the all around character (cause CoOps are included) it is now and I just have to deal with it. We can bitch about it all day (and trust me I will) but it happened. Basically never frame it as “it didn’t happen,” but instead “It SHOULDN’T HAVE happened.” One is denial, the other is critiquing the text.

Anyway my rant aside, yeah I hate it when...well Ren/Ryu/Yusuke (no one’s said Mona yet, cause....well yeah...which is good they haven’t labeled him as it yet tho), are labeled as “drinking respect women juice” and I’m like “I have one to a few women who would disagree.” I know some people will argue Goro is drinking it, and imo he’s not....he’s just eating the “I don’t discriminate sandwich” which is different. And yeah the “But Yusuke-” yeah yeah we’ll get to him, but right now we’re talking about RYUJI. I’m not a fan of derailing a topic *war flashbacks* *shivers* anyway. But yeah I remember that debate, I was probably one who was like “We’ll get to Yusuke but right now we’re talking about Ryuji” and pushing the blame onto Anne is disgusting and Kamo Arc!Ryuji would be very upset. >:( (btw high key I think I was the first one who started the first anti-makoto war wave with me saying “yeah Anne shouldn’t have apologized Makoto started it and blah blah she was an ass” not the exact words but basically just calling her out on her shitty behavior cause the game certainly didn’t......tho as Miley Cyrus would say.....”I didn’t mean to start a waaaaaar~!” I actually wrote my first Persona Problems on that topic.......but it got lost in the drafts....my photo examples kept getting messed up which is bad considering the whole post really relied on them....I should try to dig it up tbh....)

Tldr/short answer: Yeah, you probably already have issues with the char to begin with tbh, and the fanbase can highlight those issues more. It’s also hard to escape the fanbase (I see stuff I don’t wanna see despite trying my hardest to avoid certain circles, it just happens).

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princess-of-embarrassment · 4 years

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Some 3 am realizations about life, relationships and maybe more?? idk whatever have fun.

Ok before i start on this shit I am going to say it is 3 am and i am just dumping some thoughts like i usually do. Sorry for the shit grammar, disorganized thoughts and all that jazz... In a sense i feel like this is a letter to myself and what i have been trying so damn hard to understand so yeah i am talking to myself and to this website. I think. Idk. i will probably delete this in the morning when i am back on bad bitch mode and go back to posting memes pero por ahora vamos a ver como nos va. Mayb ei will leave it up bc i forget or because i dont care who sees it. sorry for the shitshow of a post you are about to read but you probably already kinda know me so yay! I debated posting this shit because the internet is a wildin place but oh well!!1!!11

ok tumblr it is 3 in the morning and i have 100% regressed into being a 15 years old on this damn website shitposting and reblogging some corny ass posts but it feels right, so here i am attempting to process it through the only form i know how to actually know how to cope with things. I mean memes are cool and all but lets be real, they don’t address the problems. this is the one place i can brain dump all of my thoughts and not really care about where they go because they will eventually disappear in the tumblr algorithm.

My old blog was often the only separation I had between my reality and the life i really wished i had, but now I have that life that I always wanted so why the hell am i back at square one? To be fair, the life that i have right now may not be envied by many but its a pretty darn good life to me. Im safe 99.9% of the time. The other .1% is a story for another day. I have been trying to figure out for months as to why i’m back to being so active on here and now that it’s 3:00am I realize it’s because of self isolation (thanks corona!).

Let me start off by saying this; my reality is not something I am going to be able to escape. Ever. It has brought me to where i am today, allowed me to meet some really incredible people and i am so so grateful. I have learned so much in the past few years. i am grateful what happened happened. Wild, i know. I escaped it physically but i cannot escape it mentally, at least for now. School, work, writing, dealing with my freshmen’s problems was what kept my brain occupied and away from having to face the part of my life that I really just want to forget. To be fait my trauma response has taken pretty good care of fucking up my memory and all of those fun things but ironically the things i want to forget about so badly are the things i think about every single day without skipping a beat. brains are weird like that.

I am ok now but sometimes i forget and fall back into my new reality. That is ok. People that know my story ask me why i don’t write about it on a public platform because it’s inspiring?? or hopeful?? or whatever cliche people want to use when addressing a topic that makes them uncomfortable and they want to feel better about the life they live. 21 year old latina girl faces adversity and lives the american dream (barely)..i mean, i did run a whole ass magazine and wrote a piece for graduation including some details of my story but that was like the rated g version with only the little sad parts that people are able to handle without feeling like their comfort zone is being violated. MEdia is a wonderful place isnt it??? so i get where they are coming from, but what they dont understand is that an international platform is not where i can share any of these thoughts... Listen, I know this is cryptic and confusing and you are probably really curious about what the hell happened to me but i don’t feel safe to type it out on international platforms with public access. I don’t know if i ever will... Yeah i can talk to people i trust about it because i am in control of the space and the situation and who is obtaining that information but you never really know with the internet.

maybe in the future i’ll write a book on it. even then i will probably use my alias make it a YA fiction with an added love story that ends in a happy ending. Maybe one day one of the school girl crushes I have will turn into that YA story and i dont have to make any of it up.

If i am honest...this blog is the only safe place i will probably ever have where he wont find me. He can find my school and my address and phone number and work and everything in between because that is just the way things work. Yeah yeah i get it stop posting shit on social media that is how he finds you whatever. What people dont understand is that I cant stop living my life again. I already started so i cant go back to giving him that power. It makes no sense. Also, his family is too confused by all of the ups and downs of the last year that they dont really know where i am going or what i am doing. So anyways, long story short - That’s why i am back on here, because it has become the same written safe haven I had when i was 15 and tried to escape my physical reality. Only difference is that i am trying to manage the mental reality of it all...

I also have so many questions about what to do next. Like i mentioned in another post, i didnt think i would make it to 21 but i did. I didnt think this far ahead so i guess i will just figure it out along the way but hear me out. How do i face a new reality that no one can relate to. At least not the people around me. How do i make friends and know when the “right time” is to tell them hey btw if this happens lmk lol. Even more importantly (because it relates to my future as world famous YA novelist.. lol sure grace...) How do I even date someone??? many questions are tied to that. like... I know theyre going to ask. “what happened?” “who is it?” “how can i help?” “Isnt there something we can do?”. i am more than willing to answer these questions because fuck, if im dating someone i would be curious too.. but do i even answer those questions. How do i know they are ready to handle that kind of information? how can i guarantee theyre not going to leave. How can i know that they arent going to be frightened by what has happened. how do i know they are not going to think differently of me. How do i explain to this person “yeah i have stress nightmares about what happened and when i wake up i think i am back in that situation and not where i live and i have to remind myself i am in a whole different area code but then its fine lol so if we share a bed at any point in time dont be alarmed if i wake up in a panic.” or how do i explain to them when something triggers me and all i can do is freeze because maybe it is him. Maybe he finally found me. but then i am back to reality and move on with my day because that is the only thing left to do. I cant throw myself a shitty pity party thats generic as fuck and i dont have time for it but whatever. moving on. next question. How do i know theyre not gonna walk away because they have the misconception so many people have?? Just because i went through some shit doesnt mean i am unstable or unloveable or whatever bs people think. This isnt going to go away. This shit is a aprt of me but it doesn not define me. it is not who i am.I dont have the option to make it go away but people have the option to pick up their things and go. seems unfair to me sometimes. It seems unfair to generalize people like that. I am always open to a new relationship but people expect me to be sitting at home scared to go out into the world and live my life. I have a life to live and i am so ready to explore it by myself or with someone by my side but quarantine has brought me back on here to deal with the fact that i am back to being stuck inside. Mentally and physically. One sucks less than the other.

I have so many other questions but i am feeling tired again and its almost 4am so maybe i should go to bed. Y’all dont know how happy i am to have this trash site to vent to in the middle of the night. theres some relly judgy people on here but at least i know my feed wont judge me or try to fix what has happened. it will just listen.

Anyways, i doubt anyone will read this because this post got long as fuck but if you did i give you a high five and a virtual hug for getting through the clusterfuck of sentences. Thanks tumblr. If i ever go viral again on this shitshow of a website i may have to bring back my studyblr and go underground lmfao jk maybe. I cant wait to hug my friends and the people i have met that have become a part of my daily routine (yes even during social isolation, get off my ass I am still socially isolating). All i can do for now is wait for someone who cares about me for me and isn’t scared of my past or the pieces of it that linger in my present. I deserve nothing less. if they cant do that they are not worth my time and i hope they drop their keys every single time they go to open their front door. oh... they also better be ready for the hours i spend typing away my thoughts on my computer. Maybe one day they will be allowed to read them too... lol maybe not. whatever who knows. Peace out kiddos stay healthy xoxo.

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invisiblenotbroken · 7 years

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EDS,MCA, POTS, Collect Them All: German Socialized Medicine, Medical Marijuana, UBER WE HAVE AN IDEA FOR YOU: Chronic Illness Serial Podcast

"I had always defined myself by my achievements " -- Karina

I have made choice of not doing just one or even two posts of a diagnosis (you might remember my interview). The reason is that each of us have a different experiance with our disorders and I want to show how wildly different stories can be even when they live under the same diagnosis. OK, off my soap box I have you really enjoy hear from Karina and hearing about her journey. You will learn so much from pain medication guilt, medical, marijuana, the niaviete before chronic illness, and I learned so much about socialized medicine in Germany and the differences with the ACA.

What is your disorder? *

Ehlers-Danlos Syndrome and comorbid conditions (spinal instabilities, mast cell activation, small fiber neuropathy, dysautonomia and others) - 15 diagnoses by now.

At what age did your disorder become a daily issue? *

Who were you before your illness became debilitating? *

I would say that I was really naive. I thought nothing could ever hurt me. In 2009, I just started my career as a lab technician, moved into my first apartment, and everything was just fine. I was self-confident and a perfectionist. Moreover, I had a 5-year-plan that included marrying, building a house, working for doctors without borders, adopting a child, and many more. Playing volleyball and other sports were my life - I was super competitive and ambitious, which I still am, but in a different way, and other areas.

What would you do if you were not dealing with your invisible illness? *

There is a lot I would do if I were not sick! For example, traveling around the world (parts of the world are just not accessible for me anymore), dancing, bungee jumping, weird sports I cannot do anymore, building up a lab in Africa, learning how to sail, hiking the pacific crest trail. Anyway, I would want to have the knowledge that I gained due to my illness with, because only now can I really appreciate all those things I had when I was healthy.

What would you like people to know about your daily life? *

…that I try very hard to be the best friend I can be. …that I feel horrible every time I have to say the words," I am sorry, I have to cancel." …that there is no such thing as a good day. There are better or worse days, but no more good ones. …that every day brings new challenges. …that even the smallest thing, such as taking a shower, can cause major symptoms. …that even though I might not be working a full-time job, I still am not sitting on my couch and stare holes into the wall. And if I do, it is not my choice, and absolutely not because I am lazy, but because it is the only way to get through the day. …that having a doctors appointment is pretty dramatic for me sometimes, because I made so many bad experiences, but still need my doctors. …that work that is not paid is still valuable and important. …that I do my best to achieve my goals, but the goals are sometimes maybe as simple as getting out of bed in the morning. …that I do not need any special treatment. I do not expect anything, and I do not set rules how I want to be treated. I do not feel offended by things like "I pray for you" or "Get better soon“. While I am not very religious, and most likely will not get better, I appreciate any good wish and thought.

What would make living and moving in the world easier for you? *

People that are more tolerant. Let me tell you a story. A couple of weeks ago, I went grocery shopping with my husband on a Sunday, like we always do. I cannot go by myself, because we do not own a car, so someone has to carry 30 pounds of groceries home. Going shopping is kind of a huge activity for me. By the time we finished, we had to take the metro home. It is only two stops, so I managed to stand during the whole time. I was wearing my neck brace, and that was the only obvious sign of my disability. A man standing next to me looked confused to me a couple of times until he said, "Hey, that must hurt, do you want me to ask someone here to get up?" He was pointing at the disability seats that were already taken. I was super surprised because nobody ever asked me anything like this in San Francisco. Usually, if I sit on those seats reserved for people with disabilities, people tend to give me bad looks when I do not get up for an old lady. But this time someone else asked me if I needed to sit down. If all people were like this guy, my life would be a lot easier. I was moved to tears by his gesture.

Do you have any life hacks? *

What I love most is my Aspen neck brace and my memory foam seat cushion. I am not going anywhere without those two. The latter one literally saves my ass. Other than that, I am sleeping with a u-shaped pregnancy pillow that supports all my joints. I like shoes that go over my ankles, to give me additional support when walking. Pants that sit tight help with proprioception, and compression stockings work well for dysautonomia and stability too. I use other braces for almost all of my joints; and a backpack with support around my hips, so not all the weight is on my back.

What kind of support do you get from family or friends? *

Luckily, I only lost a couple of important people. The majority is still with me. Some friends could not really deal with the "new“ me, and one relationship did not survive my changes. Becoming a butterfly that grows out of a rope is a huge transition, and some loved ones could take it better than others. To be fair, I was not easy to handle - especially in the beginning (2010). I had no idea who I was anymore, so how could other people know? My family and friends support me physically, for example drive me to appointments since I cannot drive by myself; they pick me up if we want to have a coffee together; and they also support me mentally if I had a bad appointment or just a very shitty day.

Would you care to relate the details of what happened when someone didn't believe you were disabled?

That is pretty typical. People tend to judge quickly based on appearance. Not sure why, because every one of us knows how to smile even if we do not feel like smiling. It is not so hard to see below this surface of "I am ok," and to recognize how the person really feels. But that would take some effort, and many people just do not want to get to know the real "me". It affected me in a very negative way. Sometimes I would not go outside even though I had a better day, because I worried that I would meet people that could assume that I am healthy. I felt like I was proving them right if I left my house and enjoyed the day. At some point I understood that this was just stupid. People assume whatever they want, and they will judge you anyway. It is a waste of your good moments if you do not go out and live your life when you can.

How has your invisible illness affected your relationships? *

I do not think that the invisibility of my condition in particular affected my relationship. My husband is very supportive and my ex broke up with me because we both could not handle my disease during that time. I do not think that anyone close to me has a problem with the invisibility of my illnesses. They know exactly how I feel as soon as they look into my eyes. It is mainly people I do not know that act weird around me. But of course being chronically ill affects any relationship. There are always things to consider, even for the smallest activity, and there is always a problem.

Is there anything you are afraid to tell even the people closest to you? *

I am somehow afraid to tell them that I feel very alone sometimes. They would feel as if I just told them they did not try hard enough to be there for me, but that is not it. The problem is more that, even though everyone is there for me, some days just suck so much that I just feel completely alone on this planet. Also, I am scared like hell to be all alone at some point of my illness, because I really do not know how to survive without the physical support of my family and friends. Another thing I should not even think, and of course not say, is that I am jealous of some of their perfect lives. Of course, they deserve to be happy, and I hate myself for feeling this way occasionally. But sometimes it just hurts to see how my friends can have families and normal lives.

What is your best coping mechanism? *

Writing! Whether I only write for myself, for example in a diary, or in public, I write every minute I feel ok. It became my passion and my sense in life.

What are you the most fearful of and hopeful for in the future? *

Fearful: I fear the moment when my disease will get to a point where I am unable to advocate for myself. Because without this ability, rare disease patients are completely lost. Hopeful: I think the EDS community is doing a great job in raising awareness, and this will hopefully lead to a broader understanding of our condition, more diagnosed patients and then more doctors to treat us.

What is your favorite swear word?

Oh gosh, many. :) I love to swear. Not so much in English, since it is not my first language. My favorite English words: Holy Shit, Fuck it, Holy Fuck. German: Verfickte Scheiße. I am a horrible person.

Learn More About Karina

You could add links to my websites, but I actually do not like to talk too much about my "achievements".

German/English Website and Facebook: Website: www.instabile-halswirbelsaeule.de Facebook: https://www.facebook.com/instabilehalswirbelsaeule German Blog http://www.holy-shit-i-am-sick.de Facebook: https://www.facebook.com/1000GeschichtenchronischkrankerMenschen

My personal story in two books

(German): My way to diagnosis:

My life with EDS:

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