#im also having anxiett bc so many websites are saying aip attacks really need treatment or there's high odds of longterm complications like | Explore Tumblr posts and blogs

geddy-leesbian · 3 days ago

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And now I'm feeling shitty like ppl are going to think im like faking or milking this. Like I thought abt having another "sorry for mistakes, I'm sick" note at the start of chapter 3 but ive done that too many times i feel like i don't have the right to pull that card AGAIN

Because I was so sick before and just kept whining about it forever and i know ppl had to be thinking god this bitch is STILL sick. And now i was barely better and already im sick AGAIN.

It also doesn't help that porphyria is an extremely weird... almost.... dramatic? disease. And even from person to person it varies wildly, i don't get the same symptoms as family members with it

I know it sounss so fake. This morning i was 100% fine, now I'm in severe pain and my head feels weird almosr like I'm disassociating, my foot hurts, my hands might stop working. And it's all bc i went a day without eating and now i have to make sure i eat a ton of carbs or I'll get significantly worse

It sounds like I'm making shit up, but just google acute intermittent porphyria, it's all real, my nervous system can just randomly go from fine to complain fucked in a matter of hours

just a random assortment of screenshots because the generalized anxiety disorder and/or porphyria caused heightened anxiety are telling me that everyone is fed up with my bullshit and thinks I'm lying and I have to prove that I'm actually suffering from a real condition that can make me this sick this fast and can come back so soon and I'm not just milking things for sympathy and attention

#im also having anxiett bc so many websites are saying aip attacks really need treatment or there's high odds of longterm complications like #PERMANENT nerve damage and it's freaking me out bc i literally would not be able to get treatment due to Reasons. but im making myself feel #a little better by going conspiracy brain? ive known i most likely had aip for more than a decade and read everything i could find abt it #before i even had my first attack bc every woman on my mom's side had it so i wanted to know. and i STG i NEVER saw shit abt permanent #damage/longterm complications before. and whats making me go conspiracy abt is that theres one key difference between now and when i was #first reading about it: there are now 2 fda approved aip treatments that did not exist back then. one of them is specifically marketed as a #drug given at the start of an attack to prevent longterm damage. idk maybe im just crazy and the porphyria's affecting my brain but it feel #really weird to me idk :// i DO remember my sister having some kidney complications related to it and reading abt longterm liver issues but #NOTHING like the permanent nerve damage stuff ive been reading abt today. everything i ever read before would say the neurological symptoms #would go away within days/weeks after the end of the attack #and the thing w my sister's kidney issues was it had nothing to do w not getting treatment. it was just a perfect storm of bad luck iirc #it was when we lived near a gr8 teaching hospital and she was getting proper treatment quickly for each attack and still had the problems

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