#if it were not 9pm at night i'd probably have gone into a lot more detail and stuff but i can always make new posts about them
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raisethe-velvet · 11 months ago
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please do tell me about your ocs.....
hi holy shit i was not expecting anyone to actually ask me about my ocs but um. hello oc lore be upon ye I have a few OCs. a lot actually. my main set of OCs is a group of magical girls (well. two of them are guys) and like. the story is somewhat complicated but basically Zoe (main character) runs away from her fucked up boarding school in which she's been stuck at for most of her life and finds this mansion in which she finds a magic mirror that she accidentally shatters and gains magic powers from. and like. there's others. also she was separated from her two sisters at a very young age but has no memory of them she meets the other 4 of my main OCs who are also magical girls (using this term gender neutrally) and it kind of goes from there. There's Melody (hyperactive 14 year old music prodigy) Eli (could be a shoujo love interest if he wanted to, secretly the most insane person you will ever meet) Towa (literally just some guy who got dragged into this all this all because he took up a part time job at the wrong store) and Camilla (was a magical girl in high school, just graduated university, ends up becoming a magical girl again. while trying to manage her career as a fashion designer.) as for like. the actual plot. yknow how i mentioned Camilla was a magical girl in high school. She actually failed to save the other world she became a magical girl in an attempt to save the first time, with said entire world being cursed into an eternal slumber except for the person who like. cursed the place. the portals between the world were sealed off until Zoe accidentally reopened it. so its like. they need to figure out how to lift the curse as in its current state it cannot be reversed. i. dont have many drawings of them like at all that arent really old, ive mainly been working on lore in the past couple of years so the designs of a few characters are a little.. outdated. and i dont wanna post art from two years ago here because it is uh. Not Good.
except this reference sheet of Zoe and another OC i havent mentioned until now called Jordan (who is. another character in this same storyline) that i made for artfight last year which arent terrible i guess (though slightly outdated)
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im planning to actually make this a whole series at some point, probably after i graduate high school this year. ive been working on this since i was about 12... though i've changed a lot since then. like the entire storyline. this version of the story line is like.. the third rework of it. My plan is to make this a comic book/manga series and potentially have it adapted into a tv series. Which is highly unlikely to happen but i can dream... (i have the soundtrack planned and everything i think i made a post ages ago detailing the exact personalities and stuff of the main characters so i'll try to find it and add a link in the reblogs <3
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aghadbeenhere · 7 months ago
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Waking up, then laying back down.
AGHADBEENHERE'S UNNAMED BLOG: 2#
Riiight, and we're back! It's me, AG once again talking to you about random things I thought of in the few days since my first post! (Or was it just one day? I dunno, time's a blur for me now.) and today I woke up at 4 in the afternoon, impressiiiiveee! I'm very much aware of the fact my sleep schedule isn't EXACTLY the best and trust me, I've been fixing it!.. A few times.
Sometimes I wake up at 6am, 10am, 9pm.. 3am.. My sleep schedule's more of a roulette wheel at this point, but I think that's alright, it's not like I'm doing anything THAT productive since I do have all the time in the world..
I had some pasta with bolognesa sauce when I woke up, so I'd say that was pretty damn good..
I did spend most of my day thinking about what to write, since my life's not a very EVENTFUL one, I played some games, drew some art, yada-yada..
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(this being said art)
I'd say I'm decently proud of it, I'm still struggling to really find my style and how I feel comfortable with drawing.. I think I might go traditional one day, I'd love to carry a notebook around where I just.. Doodle stuff, art pieces, little sketches, notes.. I see a kinda 'charm' in doing that sorta stuff.. And it can really help me just zone out the world around me when I don't feel like it.
But right now I don't really HAVE a world to zone out from, I think I need to go outside someday (in the future, maybe, just maybe) and get some fresh air and think about things, since I haven't gone out in six months or so.. You know, maybe one day I'll go out to sea, I've never been on a boat trip but I think it'd be interesting! I always see some of my favorite shows have at least ONE boat episode (list of shows being: Always Sunny In Philadelphia & Community)
And although they tend to paint it in a purposefully bad light for the sake of humor, I still think about it!
I still think about a lotta things, actually. (Surprising as THAT is.)
Not-so-recently (about.. a year ago or so) a friend I spoke with just blocked me out of nowhere, no message, no notice, they just up and disappeared, and when I attempted contacting them on an alternate platform, I got no response, actually; when I looked at their account, it was entirely clean! A blank slate! No posts, comments, or anything like it! I was SERIOUSLY dumbfounded by that.. Their account wasn't deleted, but the posts were??
I still haven't gotten word from them, and I can't help but at times think as to WHY they just disappeared.. And maybe even think about how it'd be to talk to them again, I know it's a pipe dream, and they may never come back, but I find a sort of comfort in at least hoping for better times, or some sort of closure on that..
But hey, in the probably one-in-billions-or-something chance of them ever coming back, I'd say something like: "Hey man! Long time no see! How ya' been? Why'd ya' disappear?" or something casual, because I would wait 5 years of solitude if I was assured that they'd come back at the end of it, I'd do that with a lot of my friends, they're really kinda why I keep pushin' on and on, and I know that if I just vanished, let go of everything and just gave up;
They'd be disappointed and sad.
SO yeah, that's how I'm still here.
Considering how this is starting to get long and I want to go get some pasta, I'm gonna go for now, but hey, we got a continuation, and we can only hope for a third part.
So, with that, AG had been here, but before they left, they wished you a good day, good afternoon, and good night. (awkward attempt at a sendoff 1#)
-ag
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rainglade · 7 months ago
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My grandfather once told me that it is better to have less friends than more, and to be careful who to consider a friend. He told me about his experience, and how most of the people in your life should be nothing more than acquaintances. I understand what he meant by this, but it makes me a little bit confused. I think advice like that tends to stem from the idea that I just have a super robust social life and throw around my feelings haphazardly, when the reality couldn't be farther from the truth.
When I was in elementary school, I moved three times, and while my old therapist once alluded to the idea that that had maybe impacted my ability to form close friendships (emotional detachment, hyperindependence, etc.) I think it is probably more than that.
Growing up, I knew there were things about me that were different, but I simultaneously also felt as though what I felt was "normal" per se. I just though that things like sexual attraction were barely there for most people, that gender was pretty meaningless for most people, that my perception of the world was consistent with everyone else's. I think when I learned that this wasn't the case, it made me feel a little bit alienated, more subconciously than conciuosly, which made it so that I can't think of a single person I considered an actual friend in middle school.
The people I sat with at lunch to avoid sitting alone had no respect for me and made me leave when the table was crowded. Even the majority of people who I interacted with were friendly and kind to me, but I never felt close to them. By eighth grade, everyone kind of knew everyone, so things had calmed down more and I felt less insecure, but that didn't change the fact that I didn't have friends, and refused to allow people to get close to me when they tried to be friends with me. Come high school, I never was really bullied or picked on (thank goodness for going to a small minority-majority school attached to a college) but even then, the extent of my friendships were sitting next to people in class or eating lunch with my friend starla.
Mine and my mother's brain have a lot in common, so when I learned that she didn't make many friends until college, I assumed it was the same for me, then felt disappointed when I didn't have any close friends in my first year or two. It is recently that I think I have felt that shift. I think the anti-anxiety meds helped with that, and I also think that mentally I just don't care about that things that used to make me anxious.
In my first year of uni, I used to sleep at 9pm sharp so I'd be asleep before my roommate got back and I wouldn't have to interact with him, then I awoke and left at 6am so I'd be gone before he woke up. On the several nights that I was out past 10/11pm, I slept in the library because I was anxious about waking him up when I unlocked the door. It seemed perfectly rational then, but ridiculous to think about now. Things like this have started to fade into the background of my mind; the bars that limited me before have started to disintegrate, and I couldn't be more glad.
I think my grandfather was right, but I also think that before having close friends, you have to first put yourself out there. Love doesn't come to you by making yourself desirable, it comes to you by making yourself vulnerable to it. It comes by opening your heart and mind; your people will not come to you until you come to them. The universe is a machine, and one gear cannot turn until the other one does. Everything is reciprocal, everything is circular. At the end of the day, who do you want to answer to? Who will you willingly be there for, and who will be there for you?
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qqueenofhades · 2 years ago
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Hi Hilary! I'm really enjoying and appreciating your US election coverage and I'm probably being an idiot foreigner here who is missing something (I've been following casually but it's not my system), but you and other Democrats seem pretty positive and I don't quite get it. On the BBC News checker the Democrats and Republicans are exactly neck and neck for the Senate and the Republicans seem way ahead (203-187) for the House. Believe me, I'd love to feel positive about something political (I'm English so...lol) but I feel like I'm missing something in the data. Totally understand if you'd rather not answer this but thought I'd ask as you seem to understand it and are good at explaining it!!
Listen, you have to understand that the narrative for MONTHS was that Republicans were going to absolutely crush us. The House was supposed to be gone by 9pm ET on election night and the Senate possibly soon after. The media water-carried for the GOP as hard as it possibly could, midterm elections for a first-term incumbent president are always bruising (Obama lost 63 seats in 2010 and we didn't get the House back until 2018), and we are dealing with high inflation, economic pain, Biden's low approval numbers, literal fascists, and so much more. This was a setup for the Republicans to roll right in and pick up where they left off in 2020. They nominated tons of crazy, dangerous, fascist election deniers openly promising to permanently fix elections in their state if they won. It was BAD.
Against that, the fact that is a razor-thin, largely uncalled race in terms of major factors, ie Congressional control, is nothing short of astonishing. The House is looking iffy, but if it slips Republican by a tiny majority, there's no claiming a triumphant red wave, and while it will absolutely waste everyone's time in performative nonsense and doing nothing and passing garbage resolutions, it won't be able to make much of that actually stick. If Democrats keep the Senate (which they are... probably likely to do, especially as Fetterman's win in Pennsylvania looms large), they can at least continue to confirm judges and shut down the rabid GOP-y House from doing too much. They need to win 2 of 3 in Nevada, Arizona, and Georgia to do this. Nevada depends on mail-in ballots. The Democrat Mark Kelly seems likely to hang on in Arizona (knock on wood). Democrat Raphael Warnock is in the lead in Georgia, but will need to win his narrow election all over again because of a horrible racist Georgia law saying that a candidate can only win outright if they get 50% in the first round, and he is just under that.
So yes: it is narrow, contingent, and scary, but the fact that we are in this position is genuinely astonishing, considering that everyone figured the Democrats were historic amounts of toast. Election deniers for governor/SOS have almost all lost (still waiting on Nevada and Arizona) and thus far, MAGA candidates have conceded. This is a good thing for democracy, as it ups the chances that control of elections will be maintained, Democrats will hold key swing state legislatures, and more. They also did especially well in several states (Michigan, Colorado, Pennsylvania) and made major flips of governor's mansions. Literally none of this would have happened in a red wave.
Anyway, yes. I wanted things to go better and for us to win some races we didn't win, and otherwise optimistically hope that half the country wouldn't vote for fascist forced-birtherism because wah wah gas prices. Unfortunately, they still did (mostly white people, because you know). But considering the absolute worst case scenario, where we were basically looking at the effective end of democracy in America and election denialists holding key posts in advance of the 2024 elections, yeah, a lot of people are very relieved right now.
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sweetcathedral · 4 years ago
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🖤Hero Academia — Aizawa🖤
Note: I thought I’d post an old work here. Also, b/c I’m seeing a lot of minors migrate to ao3, I’m thinking of switching all my works to here since it’s easier to monitor, which means I’m deleting my ao3.
⚠️: bulge, breeding, somnophilia, cnc
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He’s late. Just as you thought, but that’s expected of Pro Heroes and you can’t blame him for being one. You knowingly accepted your common law conditions, so you can’t complain. You reached for your phone hoping to see his name tangled within the notifications.
NekoZawa: late
Was the only message that caught your attention with a little bit of disappointment. Deep down you already knew it’d come to this, but you still can’t help feeling let down a bit. As you were about to change out of your getup a series of sharp knocks startled you, catching you off guard.
“It’s mee!” shouted the familiar voice.
Midnight?!
You rushed to open the door.
“Kayama? You’re ba—,”
“Ahhhh! So cute, so delicate, just youth!” she huffed in excitement at the sight of your longline lace bra and single-ruffled panties.
“Ah! Wai—youth? You know we're not that far in age,” you said, as you try to hide behind the door.
“Please, I'd kill to be 5 years younger, and don’t even try hiding from me. Even though he doesn’t care much about looks this definitely falls within his tastes,”
You blushed at the compliment, wishing it had come out of Aizawa’s mouth instead.
“Anyways,” she continued, “how about some bubble tea? I got your favourite,” she whipped out a bag of drinks from behind her. You wonder if she knew of your plans and came to cheer you up.
Who am I kidding, she’s an R-rated hero. Her sixth sense is basically her sex sense.
“Yeah, I could use some company,” you smiled in relief, thankful for her sharp intuition.
Before you knew it, 9PM became 11PM in what felt like 30 minutes and that heavy feeling weighing on your chest left after a couple of laughs here and there. You couldn’t help but feel better in the presence of Kayama, you have no choice but to feel better in her presence.
“And after I showed his class a pic of you, that grape idiot said ‘ if that raggedy ass man of a sensei is able to snatch a woman like that then there’s still hope for me, right?! Right?!’ in that stupid lisp of his! I couldn’t help, but cackle in his face! Hahahahahahahaha!”
“Grape idiot?!,” you laughed, almost choking on your tapioca.
“It caused this huge uproar which took Aizawa an hour to settle down,”
“Sounds like an exaggeration to me,”
“Really? Then I’d have to ask Principal Nezu for permission to let you visit. Hmmm, maybe a surprise visit during his birthday, I’d get to see that purple shit bleed from his eyes again. Hah!” she said, her sadistic side twinkling in her eyes.
You could tell she wasn’t lying about the surprise visit as she hummed her thoughts between sips of beer. Although you know how much Aizawa likes to keep his private life separate from his professional life, your thoughts couldn’t help but ponder in curiosity at how he acts around his infamous class 1-A students. All he ever does is complain about them every time you ask, but just thinking about him acting like the strict teacher Kayama says he is . . . makes . . . you . . .
“Oi, oooii . . . I said OI!”
“Gah!”
“What the hell’s got you blushing like a dazed mess?”
“Blushing? . . . !”
You clasp your hands over your face, as if you’re trying to keep your thoughts and daydreams from escaping. You let your imagination run wild just from thinking about Aizawa as a teacher — his strict demeanour and cold eyes piercing through you . . . his deep growls muffled at the base of your neck as his grip tightens around your waist and hair . . .
“Oh! What time is it?” Kayama exclaimed, disrupting your thoughts.
You reach for your phone to check the time, seeing 11:17PM illuminating from the screen before flipping it to Kayama.
“Perfect!”
You cock your head to the side trying to think of what could make Kayama that excited, but before you could react, her quirk had already taken hold of your consciousness.
Aizawa let out a heavy sigh staring at the time on his phone. It wasn’t the first time he’d let you down like that, even though it’s out of his control he still can’t help feeling disappointed in himself. Pro Heroes always have unpredictable schedules, but still, he’d wish his schedule had gone his way today.
“Thanks as always, Eraserhead. I’ll send the details your way once we’ve confirmed the date,” Tsukauchi reassured, dismissing him for the day. Aizawa nodded in response, finally, he thought. As he walked out of the station, his phone vibrated.
Ugh, what now?
He reached for his phone and unlocked his screen.
Kayama? Probably just more cat pics.
But much to his surprise, the series of pics caused him to stop in his tracks.
Kayama: Bon appétit! *kissy face*
Was the only message that followed at the end of the series of pics. After Kayama used her quirk to put you to sleep, she happily cleaned the place up and settled you prettily onto the bed in an innocent, but also, somewhat tempting position. Who could blame her? She had a knack for setting up tempting situations for her best friends. Aizawa tapped on each pic, examining the details of your delicate lace bra and fluttery panties. He really wished his schedule had gone his way today. The longer he stared at each pic, the bigger his temptation and pent up emotions grew — frustration, doubt, confusion, jealousy, anger, greed, love, lust, it was causing him to lose all sense of logic. You were causing him to lose all sense of logic and he hated it. It’s his first time experiencing something like this, he’d never romantically loved anyone until you came into his life. At first you were just like any other Pro Hero he teamed up with in previous missions, but the mission you two took on escalated into an emotional high profile case, which caused him to spend more time with you. One thing led to another and now, you’re each other’s common-law spouse. Both of you could care less about the huge wedding traditions of planning a wedding day, banquet halls, invitations and all that, but unexpectedly, he did buy you a wedding ring — a customized designer ring at that. Not only does he not care about appearances, but he also doesn’t seem to care about prices, so long as it serves its purpose.
“Uh, Eraserhead? Everything okay?” Officer Sansa tapped on Aizawa’s shoulder, breaking him from his thoughts.
“Huh? Oh, Detective Tsukauchi already settled on a date already?” Aizawa quickly locked his phone and tucked it back into his pocket.
“Um, no, he was actually worried about you . . . you’ve been standing still here for a while now, just staring at your phone . . .”
The logical Pro Hero himself didn’t even realize that he stopped walking and was surprised to see the station still behind him. Tch .
“. . . yeah, I think I should head home now. Someone’s waiting for me. Thanks, Officer Sansa.”
He waved at the cat officer before tucking his hand back into his pocket, unconsciously digging his fingernails into the palms of his hands in frustration. He hated this feeling . . . and he can’t wait to take it out on you .
Aizawa hesitates to open the door, unsure of how he’d react when he sees you for himself. He carefully turns the knob, making sure not to make a noise that’ll wake you from your peaceful slumber. You were just like the pics Kayama sent him — back exposed with the soft glow of the city night lights highlighting your dainty shoulder blades . . . arms clutching the pillow from underneath that pretty little head of yours . . . one leg hitched up to the side while the other was elongated and tucked half way into the sheets . . . As he reached to caress your face, he noticed his hand trembling from suppressing his temptation. Tch. He pulls his hand back in frustration.
“ . . . mmph . . . Shou . . . ta . . .” you murmured in your sleep in between heated breaths.
That was enough for Aizawa to let go of any sense of logic and common sense he had left, and before he knew it, he was hovering over you — the weight of his body sinking into the duvet. His eyes trailing over your features, watching your chest rise and fall with every breath you take — a reassuring feeling that you’re real and very much alive to him. He annoyingly hears his name from the teachers at UA all the time, but when it whispers out from between those pretty lips of yours, it made him experience a feeling he wasn’t used to controlling. He gave in, leaving trails of kisses that slowly turned into hickeys and then bite marks. He felt bad for leaving those marks on your supple skin, but he also wished they were permanent, as if the wedding ring doesn't speak for itself anymore. Aizawa’s grip tightened on your thigh at the thought of anyone else touching you, pinning your leg to your chest. His rough hand traces down your curves before slipping them in between your thighs — a wet sopping mess.
Ah, her panties are ruined . . . shame, he thought as he ripped a slit open, big enough for what you’re about to take in. Whoops . . . I’ll just get her a new one.
The temperature of your body was rising as he continued to press up against you, leaving marks on your collarbone and teasing your insides with his thick calloused fingers. A wave of pleasure ripples through your moonlight kissed skin, slowly pulling you back to your senses. You bat your eyes a few times to shake off the heaviness weighing on your eyelids.
“ . . . Shou—haa . . . !” your body twitched as another wave of pleasure came over you, shaking off your sleepy numbness, awakening your sense of touch as you grip his forearm trying to get him to slow down. It was no use given how enamoured he was with your reaction, your measly grip is as light as a feather against his strength.
“Haa . . . wait . . . slowdow—mmph!,”
Aizawa places his hand over your mouth, silencing your relentless begging. You finally noticed his flushed face and entranced eyes — a face you’re not used to seeing.
“Shut up, if you know what’s good for you,” his deep voice reverberated in your ear, sending a ripple of shivers down your neck. He was a completely different person in a completely different headspace. The only thing that can bring him back to his senses is your safe word, but you know that if you give in he’d completely stop and resist touching you for days as penance for losing control. But . . . you love it when he loses control along with his sense of logic, so you melt into your favourite position, signaling him to release all his pent up emotions in you — a mating press. You bite your trembling lower lip, begging with your wet eyes as a smirk played across his face. He gently kisses your forehead before pulling down his bottoms, revealing his thick throbbing cock. Your cunt twitched at the sight of it, squeezing out your fluids, dripping down like honey.
“How badly do you want it?”
“. . . badly . . . Shou~ta~ . . .” you cooed.
His cock twitched at the sound of your light and airy voice, precum drips onto the sheets.
“Not yet,” he said as he began stroking his cock on your clit, making sure not to let an inch slip inside you. The sensation drives you crazy as you whimper and whine for him to fill you up inside, desperately begging with your hips. But Aizawa’s firm grip on your thighs won’t let you, and keeps you from getting what you want. You miss the feeling of being bred full . His strokes were getting faster, his panting turning into growls. Your body tensed and toes curled as the feeling came closer, letting a desperate sigh escape from your mouth.
“Already? But I’m not done with you yet,” he playfully whispers in your ear before ramming himself inside you.
“Haa!” you yelped.
Your plump walls twitch at the sudden movement, tightening itself around his cock.
“That’s my good girl,” he chuckled, cockingly.
Tears well up in your eyes as you bite back your whimpering. He grabs your hand and firmly places it on your lower abdomen,
“Do you feel me? I’m right here.”
With your hand firmly placed on your stomach, you can feel his bulge every time he strokes his cock in you. He keeps it there, so that you have no choice but to feel it until the very end — up until his cum fills you up inside. His long strokes began to shorten, each stroke getting harder than the last and unable to hold in your pants and moans. Not only can you feel the warmth fill you up, but you can also feel his cock releasing globs of his milk from the bulge protruding from your lower abdomen. Your fingers dance around it making him twitch, his bruising grip tightening around your wrist.
“Fuck,” he grunts, looking down at the mess you both made.
Your cunt was swelling at the amount of cum it’s trying to keep from spilling, gushing out every time your sticky walls twitch. Before Aizawa was about to pull out, you grab his arm,
“Wait . . . not yet,” you must’ve been pouting when those words fell off of your swollen lips cause you’ve never seen his features soften like that before. He lowers himself, feeling his weight sinking into the bed as he tenderly kisses your forehead, brushing your slick baby hairs from your face . . . the warmth of his forehead resting against yours . . . the reassuring feeling of his hand gently cupping your flushed cheeks . . . You reach for his face, thumbing the scar under his eye, diving in for a deeper kiss and wrapping your arms around him. His heart begins to beat harder as you begin to feel his cock swelling up again from inside you.
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justinsdaysinthedark · 5 years ago
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Post # 6 - It is what it is
I'd be lying if I said I haven't spent the past half an hour with tears flowing from my eyes staring at a blank screen wondering how I'm going to get everything I've got floating in my head out. I suppose listening to Coldplay live in Argentina probably wasn't the best choice of music to set the mood. I'll work on that one in the future...
Where do I start? It's been a question I'm often asking myself at the start of these blog posts and it's certainly not the easiest one. What do you guys know? There's been so much happen since my last post on Thursday night.
Friday July 26th: I saw my doctors around lunchtime who came in quite concerned. Whilst they were confident my lymphoma was one called DLBCL (Diffuse Large B- Cell Lymphoma), some tests had come back with suspect results that it could be a more aggressive and harsh type of lymphoma called Burkitt's lymphoma and if confirmed, chemo was starting that night with no time to waste. There was also one marked in the middle (a cross of the two) called Burkitt's Like Lymphoma which is treated similarly to DLBCL. Whatever it was, I couldn't change it. I just wanted answers and if treatment needed to start, let's get it underway!
Adam, my incredible haematology doctor sent off another test of my gall bladder to finally get the confirmation I was after. It was urgent. He had to know. It was reassuring of Adam to state "Justin, we need to know what this is. Preliminary results are due back later this afternoon and that will hopefully rule out Burkitt's. if it is Burkitt's, we'll start chemo tonight and I'll be with you every step of the way - even if I have to stay back a few hours."
I know doctors earn a fair coin on a lazy day, but how many give you that much confidence that you and your health is important to them? I'm going to have it a guess and say not many but alas, I am so incredibly lucky with the team of doctors I have.
4:00pm and Adam strolls in the door heading straight for my room. My heart drops, similarly to what it had when Michael dropped the news I had lymphoma. "Good news. Preliminary results are back and we're confident it's not Burkitt's. You can't rule out anything in life, so there still is a small chance it could be. We're happy to wait for the final results on Monday, figure out a treatment plan from there and start Chemotherapy next week. Spend Saturday and Sunday on day leave and I'll see you next week."
This was news to my ears. In a time of what has been negative or no news, I could spend the weekend with family relatively freely and forget everything was happening for a few hours each day. My Uncle Bob and Aunty Denise were down from Tasmania to see me, as was my Aunty AJ and cousins from Bairnsdale so it all felt like it fit into place.
Friday night saw me considerably more relaxed with this news...that was until Collingwood started and it was the demolition it was. Slightly humorous side note, the nurse came in around 9pm for my nightly observations. Naturally, my heart rate was up a bit more than normal watching the football (118BPM - normally between 70-85BPM). This caused the nurse to call in the team of doctors who wanted to put me on an ECG machine for the night and monitor my heart. I assured them it was because Collingwood were on and if they gave me an hour, I'd be okay. It took some convincing, but it finally worked. Back they came an hour later and it had gone down - crisis averted.
Saturday afternoon and evening was wonderful. I went down to dads for dinner and was fortunate enough to spend some much needed time with family over a beautiful dinner and good laugh.
Sunday was much the same. I went home, mum did a fair chunk of washing for me as I spent it being me. Seeing Courtney, napping in my own bed and even headed over to Fountain Gate and got some much needed new clothes and other miscellaneous items - something that seems so simple but is such a luxury when you've spent the past 15 days in hospital.
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Monday July 29th: They say the more you think positively, the more positive news you shall receive....or it goes something like that right? I woke up this morning the most upbeat and best I'd felt in weeks. I felt fine. I felt no pain, almost like I'd woken up from a shitty hotel! In all honesty, I felt like I'm abusing the system however I keep being quickly reminded how much I need to be here. Did I wake up so positive because I lived my old life for 16 hours over the weekend? Is it because I was hoping to hear a reasonably positive outcome with this lymphoma test? Probably a mix of both if I'm honest. But whatever it was, I was hopeful.
Adam came around at roughly 10:00am. Didn't really have much for me in terms of news but more of an outline of the day. If they hear the results of the test they were waiting on, they'd write me up a treatment plan ASAP and get chemo started this afternoon. At worst, I'd be starting it tomorrow (Tuesday). They just needed that definitive answer of what type of lymphoma I have - an answer I'd love more than anybody.
Either way, we agreed i'd need a PICC (Peripherally Inserted Central Catheter) line in which basically is a long-term cannula. It runs from the inside of my arm right up and around and stops basically just outside my heart. This is for easy access for the chemotherapy and even an easy exit for blood tests - something that's proven incredibly difficult to take from me over the past few days. Additionally, these lines can last up to six months verses the three days you get from a cannula. There were too many positives to say no to!
This wasn't scheduled for any time in particular, so 1:00pm came around and I was about to be taken to get the PICC line in.
Just as I was about to leave, Adam came in with a few words I'm all too familiar with. "Well, the pathology tests we were waiting on have come back inconclusive..."
Woah. Wait. What? How do tests of my gall bladder that was removed six days ago come back inconclusive? How does one of the main sources not have enough 'data' to tell them what sort of lymphoma I have? I was just stunned.
Adam continued "As a result, we can see some signs of Burkitt's lymphoma and that's what we're going to treat you for. You're young. You should be able to handle it and it's better to over treat you than under treat and be stuck where we are at the moment. It's an intense 16-day chemo treatment that will totally wipe out your red and white blood cells as well as your platelets. We foresee you being in here for another 3-5 weeks, depending on how well your body goes getting these levels back up to normal post this first treatment..."
I honestly say this but that's all I remember from this conversation. I was hoping I'd be heading home this week but looks like that definitely won't be happening. Today marks day 40 of the past 55 days in hospital (day 15 of this stint) and if I go off the longest suggested time expected, I have another 35 days to go. That honestly crushed me.
I got taken down to get my PICC line in - quite an easy process. Very similar to putting in a larger cannula, just a whole lot longer and uses local anaesthetic as well as being guided by an ultrasound and X-ray. I'm lucky enough to have two ports, which will hopefully speed up some of my medication and how much they can pump in. Does it feel weird? The only weird part was feeling it slide down past and near my heart - but that's okay now!
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By the time I return, dad made his was in to try and help process the news. We get Adam in to once again explain the process. In layman's terms, I'll be starting an intense and high-dose 16-day chemotherapy program kicking off tomorrow (Tuesday) morning. Most of the time across the next 16 days, I'll be hooked up via IV drip getting whatever medication is required. I think I saw I have rest days on days 7 & 8 which I suppose will give me two days to look forward to. At the end of the day, it's something I'm not certain on and will be a day by day process and constant learning about what's going into my body to help fight with me.
I do have one request for you all. With my body not producing red or white blood cells or platelets over the next few weeks, I do request if you are planning to visit however are sick to stay away those extra few days. With my immune system going to be at the lowest it's been, I don't particularly want to pick up something I don't need. Additionally, as much as I'd love flowers, they're also banned due to the infection risk of the spores mixing with the chemotherapy and causing some dangerous damage from the inside.
At the end of the day, if you're not sure please message me and check as I'm not entirely sure myself about everything. I'm constantly learning as I'm going.
How am I feeling? I'm nervous. I'm nervous at the unknown. How will this affect me? How bad am I going to feel? Will I lose my hair? What will my energy levels be like? In advance, I do apologise if over the next few weeks I'm not myself. Truth be told, that's because I probably won't be.
In a way, i'm finally excited to start my treatment first thing tomorrow morning (after yet ANOTHER lumbar puncture). I was so envious of both people next to me getting their first rounds of chemo today. I know mine will be intense but I just can't wait.
I've learnt so much about cancer and chemotherapy over the past four days and I know there's so much more to learn. Today I learnt I'll be incredibly highly cytotoxic, which basically means all needles and anything used on me need to go in a separate bin just for me. Additionally, I'll have to get used to the good old double flush after the toilet to ensure all waste is disposed of. Mouth ulcers are a big issue with most chemo patients as well. I'll have to start brushing my teeth after every meal and taking a special mouthwash 3x daily to assist with keeping these under control. There's plenty of other little things, but they're two I least expected.
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Everything really hit me last night....not like it did tonight though. I just had twenty minutes to reflect and it just became a sudden realisation. What I'm going through is real. It's not a 'joke' anymore. It's not something they're looking at as a potential cause. It is the cause. I have a legitimate medical issue and it's finally time to fight lymphoma. All well and good to be talking the talk like I have been - it's now time to walk the walk. This sits well with me. If I give somebody my word, I do whatever I can to get it achieved. Unfortunately for the lymphoma throughout my body I've given it my word and it's time to fight it. Round one begins tomorrow morning.
I leave tonight feeling a whole lot better than I did when I started tonight's post. I didn't learn from my words earlier as Coldplay live from Argentina is still playing however I'm in a much more comfortable mind space.
My best friend of a lazy 20 years, Dylan visited tonight with his partner, Jacqui. One phrase popped up more than most and they made me aware it was a common phrase coming out of my mouth.
"It is what it is."
I can't control what's happened to me as "it is what it is." What I can control from here though is how I fight lymphoma. Thanks for the visit tonight guys, I appreciated the two hours spent here in what's been an incredibly tough afternoon.
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Much love.
Juzz xx
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