#hopefully i'll be able to get that bc i didn't get the other one earlier this year so :3
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good morning!! <333
#eee today's gonna be fun#first of all it's diluc's day#(i think i have another fic i can post??? i really need to write more for him lol)#then i get to start arlecchino's story quest bc I'm completely done w/ the new fontaine stuff#so that's !!#also the new zayne card comes out (is already out i think given it does so at 5 am for me) today!!#hopefully i'll be able to get that bc i didn't get the other one earlier this year so :3#but yeah everything's set up for it being a good day ^-^#as such i hope that today/tonight is kind to you too <3#morning rambles
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thoughts from last night's St. Aurora show 🖤
2 seconds into the warm-up act and suddenly I'm living in an alternate universe in which Joonas Porko is the lead singer of a rock band (more under the cut but I just need to share this first because I just can't get over this lol):
then he took his jacket off and I was like ??????? if not Porko, then why so Porko-shaped 😭

(I'll post one more video I took of their set so you can see it for yourselves, because he kinda also sounds a bit like Joonas at times 😂😭)
Joonas Porko doppelgängers aside, Delta Enigma was actually pretty good and I hope I'll remember to check out more of their stuff at some point! I had my picture taken with the lead singer but didn't get to chat with him properly as the last band of the evening just started to play when I got to him, so hopefully next time
St. Aurora was so much fun!! 😭 They were really just a group of friends playing some songs and having fun 🥺💕 although if I'm being completely honest it did feel a little weird to be there, as I only got into their music literally three weeks ago, and even though I have tried my best to do my homework and listen to their music a lot, I was not able to sing and jam along like I would at a BC show for example (and they didn't play the only song I already know the lyrics to 😔), but they were super fun to watch, both the music and the banter in between songs was top tier entertainment 👌
and then after the show they were hanging out by the merch stall. I've been looking for a cap to wear at summer festivals but none of the bands were selling any, so I asked Nile how much he wants for his own, but he wouldn't sell it lol, although he appreciated that I was brave enough to ask 😅 so I bought a totebag instead (the one they had on display, which apparently was the only one they had 😂), and I got to meet all the band members and have the totebag signed as @johnnyporko quite literally dragged me around and pushed me to them one by one like "Now there's Petja. Go!" and !!!!!!!! they were all so ridiculously sweet, gentlemen through and through, each and every one of them, from Nile who texted everyone backstage to come back so that I could get my totebag signed, to Eemi who seemed so grateful that we had come (as a side note the crowd was very sparse that night) and when we were saying our goodbyes and he and @johnnyporko were hugging, I was all prepared to be on my merry way when they'd be finished, but then Eemi turned to me and hugged me too, even though I hadn't even initiated a hug as I was feeling a bit shy 😭💗💕💞💖💗💘 honestly, already during the show I kept thinking Eemi seems like such a sweet person, because whereas Nile and the others were bantering away and talking "whatever their spit brings to their mouth" as we say in Finland lol, there was Eemi thanking everyone for coming and giving shout-outs to members of crew and just being an angel in general, and in person he's even a bigger sweetheart 🥺 my interactions with Vallu, Petja and Osku were somewhat briefer but I assure you they were all incredibly nice as well and seemed very down-to-earth. ngl I'm kinda bummed I forgot to show Osku some pictures of our old man Osku the dachshund lol, but maybe next time, because there definitely will be a next time!! 🖤
huge huge thanks to @johnnyporko for not only being my company last night but also for introducing me to St. Aurora, both to their music and to the individuals playing in the band 🫶
edit. oh, and Luna Kills was fun too! I listened to some of their songs earlier this week and really liked them 👍
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i'm happier than i've been in so long
i'm realising more and more recently that i've never been this happy in a relationship and like. i tell hadley this kinda thing a lot. and i worry i'm going to jinx us??? but like. everything feels so good rn tbh. like not just with hadley, but life in general?
i'm off t but it's temporary hopefully. i'll sort appointments after pride is done with now, and i do have two sustanon vials which i could use but i'm. yeah. unsure about that bc of my health problems and i def rushed into going on t as quickly as possible once i had the money and it bit me in the ass cos i need more support and guidance i think. but i'm worting that out and saving bits again for it
and i'm so happy with my two irl friends too. we don't see each other much tbh but me and my cousin are getting closer and going to protests or prides together, and my bff is a consistent companion to us two queers too, always my right hand woman. we're a little Trio and i love that for us. it's a shame i don't see kim more often but she is sole carer for her mum who had cancer and has cancer and chemo related illnesses now. i love her mum too, she is like a second mum to me and put up with a lot of my dumb sex questions growing up cos i couldn't ask my mum that kind of thing lmao
also health wise. i'm mostly recovered from my surgery now in that it's as good as it's gonna get tbh. but i'm happy enough - exertion brings on pain which brings on fatigue, even as small as having a face and pits and bits wash some days is like. LOL NO. BUT i have my continence and i have the function in my legs and i can walk short distances unaided and i'm learning to be really grateful for that. talking to more severely disabled folks has helped me to reposition my own disabilities and stuff tbh. sometimes facebook is an ok place, or at least some groups are, and it's def helping me to connect with other wheelchair users especially lately. which is great, tbh. it's nice to have that kinship with folks past a polite smile when i pass other wheelchair users in the street! there was a v enlightening convo on sex and kink and disability in one group earlier which was interesting tbh but i might elaborate on that in another post bc this one is LONG already
but yeah. the world is burning, but. i have a lot to be thankful for, i'm realising. i have friends and a wonderful partner who i'll hopefully get to spend time with irl soon and most of my leg and bowel and bladder function and like. compared to where i was during the pandemic - suicidal, closeted, in so much pain i couldn't get out of bed or brush my hair most days, losing continence bc no one would operate on me until i eventually DID but my amazing surgeon brought that back somehow?????, really really fucking lonely too, most days i didn't even speak to anyone over lockdowns cos my mum was working at the time - i'm like... i'm so much happier now. i've lost some things sure. i can't walk or stand unaided for long, i can barely make it from my front door to the street, and standing is HELL for more than like 2 minutes if i can't lean on a stick or crutch or like a surface or table. i need a wheelchair, motorised at that, to get around cos my spine is an arse and i can't self propel in a manual like i wanted to initially, (glad i didn't go that way anyway despite what the ot told me cos i WOULD NOT be able to cope with that physically i know now).
but i'm happy. and that counts for everything
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man my shower is probably gonna be late today. but I kind of have to today, bc regardless of what she says, idk that I'll have time to take one tomorrow, even if it's ideal. I can't skip out today, bc I already did that yesterday so I could go to bed earlier that night (didn't work at all tho bc I took a long time to fall asleep, and I don't think I rested well, either).
I should probably also brush my teeth; they're getting pretty gross. but that's a whole ordeal; I'll wait and see after I've done everything else, and if I can't muster the energy I'll try to do it tomorrow. they're not looking at my mouth, at least. (it takes far less time but it still is uncomfortable, and sometimes a little painful; and I have a very limited energy budget, besides.)
I wish I'd made something I could sell this week. I'd really like to be able to treat myself in some way tomorrow, regardless of whether or not this works (what time is this, anyways; three? four??). I'll have to fast and get my blood drawn, regardless. I hope that pill doesn't make me loopy or anything like that. I want to be calm, but not so calm that I feel ill. I'll already feel plenty ill from not being able to eat anything, or drink anything besides water.
I wish I had a decent mask to wear. these ones I got ages ago off amazon apparently aren't meant for this sort of thing (even tho the page never mentioned it, and while it says so on the box, it didn't on the box in the pictures...). hope I don't catch anything and croak, ig. ugh I have to remember a bunch of other shit, too... hopefully my mom can remember the relevant shit; I hate when she asks me to remind her of things bc my memory ain't any better than hers is.
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lmao I've been chronically online lately so let's just say that your manifesting 🍙🍙🍙 worked to put you on my feed but anyways- WAHHHHH I WAS JUST COMPILING MY SPAM REPLY BUT I NEED TO GET THIS OFF MY CHEST FIRST WHEN I SAY I DID A DOUBLE-TAKE SEEING THIS ON THE TL
WE'RE BACK FROM THE DROUGHT BABYYYY
the see you 0613 almost brought tears to my eyes GOD esp after seeing this on the tl today: https://x.com/murakamiko2/status/1796191153714327680?s=19 I CAN'T WAIT FOR OUR YOONJIN REUNION 💜💜
pls the way you had an onigiri shout-out for this moment god woman I adore you <3
IT REALLY IS HAPPENING i cannot believe he'll be home so soon 😭 back just in time for their anniversary and we'll get to spend it with him, i love this so much. the song dropping on my birthday i'm pretty sure will be another jk army song (that he "spoiled" before he left) gahhh i'm buzzing (tho idk if anything will top still with you). catch me crying while listening to take two on repeat until jin is officially home; it remains one of my favorite bangtan songs and jin's "can't you see the take two, letters i didn't send to you" is one of my favorite lines that he's ever sung. i actually have a jin amnesia series that i started almost 2 years ago and haven't touched since november 2022 lol hopefully his return will inspire me to really start working on that again. YOONJIN 😭 let's keep our fingers crossed that jin will be able to coax yoongi out of hiding for a selca at least bc idk how much more i can take of not seeing him until 2025 😭 i know i have a whole bangtan blog but idk talking about bangtan with you here feels more special somehow, like we have our own secret language that no one understands 🥺
thank you so much i am so grateful for you 😭 i really enjoy writing seungmin! i've got a couple seungmin wips i'm working on so hopefully those will deliver as well hehehehe
this is kinda giving groveling husband who's racking his brain trying to figure out how to make it up to you after he started a stupid argument earlier. the drabble from the other day is coming soon 😈 and also the full length fic for pining best friend hyunjin that i'm hoping to finish in june !!
oh mimo :((( i was just on a mini aespa binge earlier today heheh. i'll take any enha x skz crumbs i can get, and a jayke x mimo at that too ?? 😭 i will eat it UP. the fact that both mimo and jay are cats is so cute to me. i really am just drawn to all the cat bois now 🥹 (idk if you go there aka any svt space but i've been kinda Looking™️ at wonwoo too and... it's not good for my mental health)
for the locals, i am still taking what is your favorite story of mine? asks !!!
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4/9/24
7:18 p.m
I passed out around maybe 8 a.m potentially earlier. On the half MG without anything else.
I probably woke up about 4-6 times but I kept my eyes closed and I heard weird hallucinations like screaming or laughing-thats how I know I am about to fall back to sleep........ it's all the same volume but I can still make out what I hear. A scream is still the same volume as a whisper.. but yea I kept my eyes closed despite needing to pee cause I knew I was done for bc of those extra hallucinations.... I don't hear those during the day.
I woke up at 4:45 p.m..... my HSV2 inhibitor test and gonorrhea/chlamydia urine test was today at 4:40 p.m..... I ran out the door... drove to Quest, it's close... thankfully I had an extra pair of glasses in my backpack... I didnt have time to grab my glasses out of my case on my desk before I ran to Quest bc I really wanted to get it done. So this is one of those time where the whole having spare pairs of glasses is really helpful.. they saved my ability to be able to see when I was driving.
Luckily Quest did the tests..... I hate circadian rhythm disorder... I didn't want to open my eyes, I usually wake up to my alarm and I didn't this time. Back before I had psychosis I didn't wake up to my alarms but since Xanax I've been waking up to them almost everyday... when I opened my eyes I truly thought it was like 3 p.m... bc my alarm was set to 3:30 p.m.
My hallucination really is, "happy birthday," "I've got a birthday present," "that's the depressing part," and hearing my own thoughts being repeated which is maddening. I'm starting to regret aligning with it bc it makes it hard to say listen to a song/tv while thinking something out like what I got to do to today, etc... even without other types of chatter..
Anyways I await the results. I don't have chlamydia or gonorrhea. I know that hsv2 test was a false positive, yet I'm still worried..
I hit CVS, and then took a shower. I'm home now writing. I have an appt with apple later about my phone number bc it's associated with another account.
I was going to check out some Eyewear places near me but of course with my circadian rhythm disorder, and the time frames its impossible. Maybe I'll start with lens crafters on Saturday and then next week my schedule is less busy and maybe I can make it work.
I'm anxious about oversleeping tomorrow bc of my T-Shot... at 3:45 p.m... I'm so sick of being tied down to this appt every other week. It can't be later than that.... if I could do it myself or have my gf/family/ or anyone reliable do it, I would have significantly less obligations to fulfill every single month. I mean it's a fucking chore. This month alone in total its 3 appts..... it's actually really a huge source of stress. If I could do it myself or have someone else to do it, well I would have had 2 ultrasounds this month, 2 Quest appts, and one dentist appt...
Anyways, maybe I'll game later. Maybe I'll just stare at the TV mindlessly. I got to take a 1MG tonight/tomorrow at like 4:30 a.m so hopefully I can fall asleep earlier and get 7 hours and wake up before 3 p.m.....
I have that stupid dentist appt bc the doctor couldn't see me the day of the cleaning on Friday... I might just cancel and reschedule I need down time. All these optical centers near me close at like fucking 5-6......... it would be cool to be able to swing by a few. They are close together. Maybe I really will reschedule cause like if I go to the dentist, I expect to get my teeth cleaned and see the doctor that same day and only come back if they find a problem...
I still have my ultrasound next Wednesday at 4 p.m on my lower region. I'm worried about that... making the appt. Then them finding something... despite their being no reason for me to think they'll find something.
I just feel like between circadian rhythm disorder, sleep issues, the voice always screaming to get my attention. My constant auditory hallucination forcing me to drown it out and my ocd always being there forcing me to make rules, avoid things, my life is so stressful.
I got my refund back and I can afford glasses. How can I fit going to a few stores locally into my schedule when I'm always going to the doctors and oversleeping...
I have my disability appointment on the 16th at 1:30... idk if I'm just going to reschedule it, maybe I'll take 1 mg and try to make it so the damn thing gets off my fucking to do list and I get my fucking back pay. I'll feel like fucking shit...
Beyond that my arm still hurts from my fall. The x-ray came back clean. I waited until my doctors appt and had her send me in a MRI... it got denied so I sent in the appeal paperwork...
But yea I'm trying hard to stay on the ball, everything is counting against me.
I thought something, what if Elise brings up brendan if I ever run into her. Well if she excessively brings up their plans. I'll assume she's happily married and I will be happy for her but I'll have to cope with that potential of us being together not ever happening.
If she brings up he is with the girls I'll assume nothing. If she says they talked about divorce I'll just listen and say I'm sorry. My jaw might drop a little. That's what I'd do..
Although I don't expect her to show up Saturday. I hope she does.
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Finally home at 7:20pm and man. Today was just NOT GOOD.
This morning I had a crap breakfast (mostly just me chugging milk so I had something in my stomach for my antidepressant) an early doctor appointment, which I them had to immediately go to work bc they asked me to come an hour earlier than I was expecting. Didn't get a lunch break bc I keep forgetting to take a break, so that didn't help.
I was just. Struggling so hard. My anxiety and suicidal thoughts were just flowing over from yesterday really bad. Basically all of my rooms were given to somebody else bc I couldn't even fully complete one room. I didn't even get to do my stayovers (easy rooms) bc I was struggling so bad.
We were out of SO MANY THINGS. Like BED SHEETS. The FIRST THING you do when you clean. So I was already madly thrown off from the get go. It got so bad that I had a supervisor come to help me and then a second one bc the first was meant to be done for the day. Also they said "I'm Helping Ella" and "she's struggling" in the same message. She also told me to I go to the boss and request a partner bc I wasn't ready. They also asked if it was my first or second day. I've been here a week.
They both asked what was up w me and I just.
I wanted to jump out the window.
I tried to hold back so many dang breakdowns over beddings bc I was finding it just SO DAMN HARD, and every supervisor that came after my room that I was around to hear hated my beds.
Like if you hate my lumpy wrinkly beds so much TEACH ME SO I DON'T HAVE TO KEEP HEARING HOW SHIT THEY ARE! TEACH ME SO I DON'T KEEP BEATING MYSELF UP OVER HOW I'M A DISGRACE TO THE HOTEL AND FEEL LIKE I'M LETTING DOWN MY COWORKERS AND GUESTS!
It's not my fault I wasn't properly trained! I was given a partner on my first day who had only been there 2 weeks. She taught me how to do the beds ONCE, but I was slowing her down so she kept doing the beds and didn't teach me. The next day I was paired up w someone as new as me. Then I was basically left on my own from then on.
I HATE DUVET COVERS!!!! ALSO I tried to look up how to do hotel bed videos and NOBODY EVER TUCKS THE DUVET IN LIKE I HAVE TO AT WORK! NOT EVEN OTHER 5 STAR HOTELS. I'm starting to think WE'RE the crazy ones tucking in the duvets!
Anyways, cried in front of the boss. Got told off for being a sucky communicator, even though I did ask for assistance in the group chat but nobody got back to me. I will admit that I need to be better at communicating though. My anxiety definitely did not help. Constantly felt like a let down and that I was gonna be fired for asking for help.
Luckily got partnered up for the rest of the day, but man, was today rough. Tomorrow I'm getting paired up again (thank goodness). Everyone asked me what was going on w me today and I honestly just. IDK! I'VE JUST BEEN STUPID CRAZY UNENDINGLY STRESSED AND HYPERVIGILANT AND IN SURVIVAL MODE FOR FAR TOO LONG BUT I CAN'T LET UP ON IT OTHERWISE I WILL DIE!!!!
My brain won't shut up! Ever! Even when I'm busy at work. I'm having thoughts of missing people, me also trying to play music in my head, anxiety about work and coworkers, worries and thoughts about salary, bills, where I'm gonna move, if I'll manage to keep ahold of this job, is it worth trying to get a second worse paying job but is in walking distance? But then what about when I move out? Is it worth trying to get that second job if I'm going to hopefully be moving out within the year where it's no longer going to be a convenient place to work? I don't have time for my hobbies bc I'm trying to work and get money but I also need a break to do chores and Beauty schoo research exam, but also if I take a break what if my job fires me? I don't know the next time I'll have a job, and trying to remember what I was just doing ALL AT THE SAME TIME.
I wish I could listen to music to help distract my brain but then I'll lose track of time and blah blah blah ADHD issues. And we're not meant to have earphones bc we need to be able to hear alarms and I don't have wireless earphones.
Whatever. Tomorrow will be better. Hopefully less tears
#Ella life#Ella thoughts#tldr; I had a crying breakdown in front of my boss and multiple people knew I was struggling today#the good thing is that my boss said that I've been working well up until today so thaty encouraging#I just. idk man. so many things going on in this brain of mine
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loong vent about pain, fibromyalgia & my past
I remember writing a journal entry when I suspected I had fibromyalgia bcs of it's connection with trauma and chronic stress. And just sobbing. Because I was a child when I started having these pains. i was under so much stress and not taught how to process or manage emotions (besides repress & ignore them) at such a young age that my body became ill. my body has warned me time and time again (legs collapsing, gastrointestinal issues, pain) that something was gravely wrong and I wasn't getting the attention I needed and it wasn't my parents that helped me get a diagnosis. I'd been complaining about pain since I was like 9 years old and only when I was 17, with my grandmother's intervention, did I get an MRI of my spine. The scheurmanns' disease gave me some explanation, but being told to just take ibuprofen for it, when I was in constant, agonizing pain, was reductive to say the least.
Only this year, this WEEK, have I gotten a diagnosis. With the help of my supportive friends and brother going with me to appointments. I had to seek out treatment by myself and visit doctor after doctor for issues I've been having since I was a child. And it's hard to not be upset that I didn't get better care earlier. It's hard that I was repetitively told by my dad's wife that I was faking, was a hypochondriac, was doing it all for attention. My dad told me to stop complaining about my pain at some point and so I did. It came to him as a genuine shock when I had to remind him of my pain and tell him about everything I was doing to get help. And how my life circumstances contribute towards that pain.
I guess my first traumatic experience was my parents divorce, and the consequences of that. I took my first plane by myself when I was like 6-7 years old. I couldn't understand or process or grieve my parent's divorce, moving countries and not seeing a parent for an entire year. only to have to go back, by myself, to visit over the summer. I've been haunted by missing people my entire life.
It's hard to believe yourself and your trauma and how much it impacted you, even when you have literally physical evidence of the fact. Even when you've been working on trauma and mental health for 6+ years. It's funny because the doctor said fibromyalgia is common in people who are hyperactive and take on too much. I never considered myself hyperactive because of my fatigue. But my calendar will tell you otherwise; because I had to push through and had to keep living and find solutions. I am so deeply involved, care and feel so deeply that it causes physical pain. It's hard to stop doing something that is so fundamental to your identity and morals. At nearly every chance I get, I will take responsibility upon myself without being asked in any way to do so. The urge to fix and to help and to pour everything out for others is so hard to contain because all I want to do is make things easier for others. I want to care and be kind and be helpful to others. And learning that I needed to stop doing some of that because it's literally causing excruciating physical pain is just like. then what's the point of it all? what do I do, if not help those around me? how do I deny myself the thing that brings me the most fulfillment, but simultaneously, the most pain?
Something frustrating is that my loved ones will never know what I'm actually going through. But I'm also thankful for that. I wouldn't wish this on anyone. It's just hard sometimes. you often can't see that I'm in pain since I'm so used to masking. I forget people don't have to put as much effort into things that I do. I go out of my way to try and accommodate others, who don't actually need the accomodation I'm providing. Its hard not being able to do the things you used to do. Grieving a life, really. And hopefully one day I'll be able to do some of those things again. It's just hard sometimes to see a future for yourself when your current situation is so uncertain and you don't know if you'll get better, or if this is just what it's going to be like from now on. I should get better, but the fear that I won't is definitely present.
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