#but I'd be lying if I said I'm not wishing devastating bodily harm on him right now
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thebibliosphere · 1 year ago
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I got my biopsy results today. The good news is there's no new or unknown disease wrecking my insides.
The bad news is it's most likely my MCAS burning down my GI tract.
I say "likely" because the GI doctor had the humility to admit the medical world doesn't know enough (yet) about conditions like MCAS to say for sure, only that the areas biopsied showed elevated numbers of mast cells and that the inflammation and damage are consistent with mast cell dysfunction.
I got to watch in real-time as the GI doctor added the mast cell stabilizers to my regimen of meds, the exact ones the allergist denied me 3 years ago because he said I needed psych treatment and was mistaking anxiety for anaphylaxis because I 'googled too many things.'
Part of me hopes the allergist gets notified and chokes to death on eating crow. A larger part of me is just relieved it happened before I developed internal bleeding or cancer.
Anyway. We're testing new meds soon to try and bring down my base inflammation to something lower than "my insides literally feel like they're burning."
I'm also starting even more supplements to try and combat the mass deficiencies likely being caused by the MCAS inflammation. I've been told to take twice the daily recommended amount of pre-natal supplements on top of my existing regimen, and if that fails, they'll start infusions. (The hope is that my stomach isn't so far gone that oral meds won't help, so fingers crossed.)
Apparently, this is the year we finally stop my gradual death from malnutrition for good. Well, better late than never, I guess.
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