#also people with mecfs who had it before covid im holding your hand we're in the same boat my future is your future

[natandacat]

Theres no words that can describe the complete alienation of having severe long covid. One infection, caused directly by political decisions to remove public measures, and i cant walk. Can't stand except on really good days which are getting rarer. Sitting is a privilege i dont always have. Cognitive work is too much of a risk to consider for the moment. I live in constant fear of going back to being utterly bed ridden in the sense that i cant even feed myself, drink water, speak, move my limbs beyong my fingers and toes. For days and days without relief.

Nothing feels real. Every gain can be lost in a literal second. And on top of this, the fear of reinfection. The very real possibility of death, given how weak a single infection has made me when I was healthy and young. The even more real possibility of a worsened state, where there are no good days. That means death, too. If i am constantly in a state where I cannot move, i am going to have to resort to euthanasia because it is not a bearable existence. I can barely tolerate it when it know it will end. Last time was 14 days and I am still so traumatized by it 2 months later nothing feels real.

And on top of that, i am being told that my life doesnt matter. Covid is not a real concern. Let it fester. Even if the stairs in my building didnt lock me in, all public spaces have become lethal to me. I cant see my friends because they cant avoid exposure when theres a wave. To love me, you must live in a horrific world where no matter how many precautions you take, no matter how much they ostracize you, you might still cause my death.

Covid is a privileged issue they say. Im not even in the room for it bc i cannot be in the room. You can move your body, youre not afraid of death, you havent lost everything that makes you *you*, but im the privileged one. I cant even emote the way i used to. If i get too excited, too happy, i cant move. I talked to countless people who cant work anymore, are losing their jobs their houses their partners their immigration permits but no. Covid doesnt matter. I dont matter. Everyone cheered when i got covid bc they got to party for new years eve. I hope it was a good party. I will never agree that it was worth my life.

For the past 2 years ive had to share classrooms with students and professors who know everything about my story, who have seen how disabled i am by long covid, who ive begged to mask. They all refuse to mask. And i have to sit there and pretend its not a cosmical level farce that theyre talking about social justice and ethics and just what good people they all are. Not to mention that most of them have revealed themselves to be zionists. I have to sit next to an iof soldier and act as if its ok that she gets to sit in this classroom, except im not even sitting in the room because cases are too high and im too weak to be there physically anyway, so im on zoom. At least i get to remove my earbuds when she speaks so i dont have to think about the atrocities she has committed.

[may-or-may-not-be-me]

Reblogging with OP's tags: #long covid #complete loss of faith in the future #no one cares if i live or die even among leftists #i cant even be in the room anymore to be seen #its been almost 3 years of living in the most horrific reality #this summer has been so. dehumanizing #please care. please wake up. no matter where you are. #covid # btw if youre queer and you pretend to care about aids but dont a give a shit about covid. i hate you personally do better #ive found extraordinary resemblance between my despair and the despair of people dying during aids. we are the same. #except their community started giving a shit. when will you #also people with mecfs who had it before covid im holding your hand we're in the same boat my future is your future

Theres no words that can describe the complete alienation of having severe long covid. One infection, caused directly by political decisions to remove public measures, and i cant walk. Can't stand except on really good days which are getting rarer. Sitting is a privilege i dont always have. Cognitive work is too much of a risk to consider for the moment. I live in constant fear of going back to being utterly bed ridden in the sense that i cant even feed myself, drink water, speak, move my limbs beyong my fingers and toes. For days and days without relief.

Nothing feels real. Every gain can be lost in a literal second. And on top of this, the fear of reinfection. The very real possibility of death, given how weak a single infection has made me when I was healthy and young. The even more real possibility of a worsened state, where there are no good days. That means death, too. If i am constantly in a state where I cannot move, i am going to have to resort to euthanasia because it is not a bearable existence. I can barely tolerate it when it know it will end. Last time was 14 days and I am still so traumatized by it 2 months later nothing feels real.

And on top of that, i am being told that my life doesnt matter. Covid is not a real concern. Let it fester. Even if the stairs in my building didnt lock me in, all public spaces have become lethal to me. I cant see my friends because they cant avoid exposure when theres a wave. To love me, you must live in a horrific world where no matter how many precautions you take, no matter how much they ostracize you, you might still cause my death.

Covid is a privileged issue they say. Im not even in the room for it bc i cannot be in the room. You can move your body, youre not afraid of death, you havent lost everything that makes you *you*, but im the privileged one. I cant even emote the way i used to. If i get too excited, too happy, i cant move. I talked to countless people who cant work anymore, are losing their jobs their houses their partners their immigration permits but no. Covid doesnt matter. I dont matter. Everyone cheered when i got covid bc they got to party for new years eve. I hope it was a good party. I will never agree that it was worth my life.

For the past 2 years ive had to share classrooms with students and professors who know everything about my story, who have seen how disabled i am by long covid, who ive begged to mask. They all refuse to mask. And i have to sit there and pretend its not a cosmical level farce that theyre talking about social justice and ethics and just what good people they all are. Not to mention that most of them have revealed themselves to be zionists. I have to sit next to an iof soldier and act as if its ok that she gets to sit in this classroom, except im not even sitting in the room because cases are too high and im too weak to be there physically anyway, so im on zoom. At least i get to remove my earbuds when she speaks so i dont have to think about the atrocities she has committed.