#also looking into a new gyno cos she didn't take things seriously
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If it helps anyone, r/intersex accepts pcos into their fold. I went there after r/pcos became a terf nest, and it honestly feels good to have the umbrella with me now.
Oh, any agender people seeing this: please be careful when taking birth control.
We can fall into a suicidal depression and its honestly a roulette wheel spin whether it gets triggered or not. There isn't any "official" data (*points to the shitstorm above*) but I've seen the question asked online, and a swarm of agender folk appear sharing their dire experiences.
I forget why, but I was on the Wikipedia page for polycystic ovarian syndrome, and I started researching hirsutism in women, and I learned the following things in this order:
there's a diagnostic criteria used to evaluate how hairy a woman is
This is important because being too hairy is a diagnostic criteria of most disorders that cause hyperandrogenism
Disorders that cause hyperandrogenism can be diagnosed by...measuring how hairy you are (this is the main and most important diagnostic criterion for PCOS)
Disorders that cause hyperandrogenism are important because they are correlated with obesity, infertility, and...being too hairy?
I think to myself, wait, what is a normal range for testosterone in women? I find this article...which set reference ranges for "normal" testosterone levels in women...EXCLUDING WOMEN WITH PCOS?
Quote: "Polycystic ovary syndrome (PCOS) is another notable condition in genetic (XX) females, which is characterized by excessive ovarian production of androgens. This condition is included for comparison with DSD, as the affected females with PCOS are genetic and phenotypic females. The elevated levels of testosterone in these females can lead to hyperandrogenism, a clinical disorder characterized variably by hirsutism, acne, male-pattern balding, metabolic disturbances, impaired ovulation and infertility. PCOS is a common condition, affecting 7%-10% of premenopausal women."
So: the study claims to demonstrate a clear distinction between the normal range of hormone levels in "Healthy" men and "healthy" women...with "healthy" being defined in the study as...having hormones within the "normal" range.......................
So I researched what the clinically established "normal" range for testosterone in women is
THERE ISN'T ONE????
Quote from the above article: "Several different approaches have been used to define endocrine disorders. The statistical approach establishes the lower and the upper limits of hormone concentrations solely on the basis of the statistical distribution of hormone levels in a healthy reference population. As an illustration, hypo- and hypercalcemia have been defined on the basis of the statistical distribution of serum calcium concentrations. Using this approach, androgen deficiency could be defined as the occurrence of serum testosterone levels that are below the 97.5th percentile of testosterone levels in healthy population of young men. A second approach is to use a threshold hormone concentration below or above which there is high risk of developing adverse health outcomes. This approach has been used to define osteoporosis and hypercholesterolemia. However, we do not know with certainty the thresholds of testosterone levels which are associated with adverse health outcomes."
What the fuck?
What the fuck?
It's batshit crazy to make a diagnostic criteria for medical disorders by placing arbitrary cutoffs within 2-5% of either end of a statistical distribution. What the actual fuck?
"The results came back, you have Statistical Outlier Disease." "What treatments are available?" "Well, first, we recommend dietary change. You should probably stop eating so many spiders."
Another article which attempted to do this
Quote: "Subjects with signs of hirsutism or with a personal history of diabetes or hypertension, or a family history of polycystic ovarian syndrome (PCOS) were excluded."
"We're going to figure out the typical range of testosterone levels that occur in women! First, we're going to exclude all the women that are too hairy from the study. I am very good at science."
Anyway I got off topic but there are apparently race-specific diagnostic tools for "hirsutism." That's kinda weird on its own but when I looked more into this in relation to race I found this article that straight-up uses the term "mongoloid"
#pcos#🙃 currently looking into hrt because I heard from another agender person it does help to stop my period trying to murder me every month.#good to know the vitamin d deficiency ties back to this#also looking into a new gyno cos she didn't take things seriously#resource#<- because I've learned more here than anywhere else#i have endo (not officially diagnosed cos gyno said I need a colonoscopy first to which receptionist have laighed cos I'm too young) too#apparently the two diseases have a habit of showing up together#i don't remember 2012#like the shards i do remember have fused together to represent 2012 like how people's childhood memories do#except i know I'm missing chunks#it runs in my dad's family likely both sides#I've taken in intersex because it honestly made me feel whole like a missing piece finally came home#remember this you don't need to use the umbrella its there for when a rainy day comes and you need shelter#oh#disability#and i think its the source of my dad's side of the family's ailments#you aren't even required to have a damn uterus (same with endo)
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