#STOP HIM FSHD

[ryllen]

When he saved me on Glorious Masquerade, I finally understand why people like him (so thoughtful huhu .. TT TT)

[katyspersonal]

Headcanons stuff, but there are roughly two kinds of Laurence that exist in my head, and today I finally realised what was causing such a split mental image of him from me.

How he turns out to be depends on the timeline - whether he became the closest friends with Brador or with Micolash! In any case Laurence falls for his hubris and makes the same mistakes and meets the same terrible fate, however what does change is like... his soul? Under influence of Brador he gradually gows to be more of a selfish, vain, narcissistic, snarky, smug man more or less in denial with how bad some things he had to do were. But if he is close with Micolash instead, he is sure more level-headed and generally a more pleasant person to interact with, he has more visible tragedy to his character with the machiavellian ‘ends justify the means’ stuff, he is just strict, but not controlling.

Naturally he is not a pushover - in either case he develops his beliefs and follows his plans, it is just what he is - sensitive to the influence of someone close to him. And there is a very big difference between Mico’s 'I am with you because you are my friend and I love you' and Brador’s 'I am with you because you are perfect and can do no wrong and your word is a law'. Brador is an enabler (derogatory), but Micolash is an enabler (affectionate).

So... Yeah, the crisis about how DO I see Laurence, I guess gets resolved with who wins Laurence’s true proximity since Byrgenwerth - Micolash or Brador. And the timeline where Micolash is his bestie means a NICER person. Let that sink in. xD

[enzaime-blog]

Hereditary Muscle Disease that Causes Progressive Muscle Weakness

New Story has been published on https://enzaime.com/hereditary-muscle-disease-causes-progressive-muscle-weakness/

Hereditary Muscle Disease that Causes Progressive Muscle Weakness

It’s 1976 and flash bulbs pop as eager relatives urge seven-year-old Lilleen Walters to smile for the camera. Feeling fancy in her flower girl dress, she fights to curve her lips into a smile to please the wedding guests, but her muscles won’t obey. Days and months go by, and Lilleen still can’t smile. Doctors believe she is depressed, and recommend counseling and antidepressants. They don’t help. Years later, when she is 15, Lilleen is diagnosed with facioscapulohumeral muscular dystrophy (FSHD), a genetic, hereditary muscle disease that causes progressive muscle weakness.

In a desperate attempt to build up her muscles, Lilleen begins working out and lifting weights, not understanding that nothing she can do will stop her muscles from weakening over time. Making matters worse, doctors tell her there is nothing they can do and that she will be in a wheelchair by the time she is 30.

Facing an uncertain future, Lilleen was determined not to let the disease hold her back. She threw herself into dance, gymnastics, and skiing, never letting an opportunity pass her by. And when she grew up, it was time for the little flower girl to have her own wedding. When she became pregnant, she was surprised and worried because doctors had told her she would never be able to carry a baby to full term because her stomach muscles were too weak. But nine months later her beautiful baby boy Collin was born. A Son’s Story

At six months old, Collin had a smile that could light up a room, and Lilleen began to hope that he had escaped the genes that cause FSHD. But when Collin turned one and she took him in for a portrait and watched the photographer coo and wave toys at Collin to get him to smile, it was as if she was that little flower girl all over again, and she began to worry that something was wrong. At home she noticed other little signs that he might have the disorder: he often walked on his tippy toes, which suggested hip muscle weakness, and he could only eat for a few minutes at time, which indicated that he might be having trouble with the muscles in his mouth.

At a meeting of the FSHD Society, Lilleen met Dr. Kathryn Wagner, who was conducting a trial for new treatments for muscular dystrophy. She introduced herself and after spending some time talking with Dr. Wagner, decided to enroll in the trial and have Dr. Wagner examine Collin. As a result, Collin was formally diagnosed with FSHD. Lilleen hadn’t known about infant onset FSHD, or how severe it could be, but with Dr. Wagner’s guidance, she felt comfortable that her son would receive the care he needed.

Dr. Wagner prescribed steroids for Collin to help him bulk up to compensate for the muscle he was losing as he got older, and she helped him through the decision to get a scooter so it would be easier for him to get around school. Because FSHD is a progressive disorder with no cure, managing the disorder and helping patients adjust to daily life is crucial.

“There are so many little things people take for granted that Collin and I have trouble doing,” says Lilleen. “We struggle with things that seem as simple as stepping up onto a curb or brushing our teeth.” A Story of Hope

For Dr. Wagner, working at Kennedy Krieger means an opportunity to continue her study of muscle disorders in hopes of finding new and better treatments while also caring for her patients.

“One of the reasons that I came to Kennedy Krieger is that time is so short — for everyone. The patients have limited time as their weakness progresses and I have a limited time to make a contribution to improving their condition,” says Dr. Wagner. “The support that Kennedy Krieger provides me, my staff, and my patients facilitates the translation of our laboratory findings into clinical trials and into clinical care.”

When Lilleen learned that Dr. Wagner would be establishing a Center at Kennedy Krieger, there was no question that she would follow. Not only had Dr. Wagner become a trusted friend and expert, but the Institute would offer new services and opportunities for Collin. The Institute’s experience in caring for children with developmental disabilities means that Collin will have access to the best in rehabilitative services, experts in assistive technology, and he’ll be able to continue seeing Dr. Wagner.

“Now Collin gets to see all the specialists in one place. It’s really nice not to have to schedule one appointment after another,” Lilleen says. “But what’s even better is that they’re all able to sit down together with Collin and figure out the solution that works best for him.”

And because Kennedy Krieger has been treating patients with developmental disabilities for so long, the Institute’s doctors and therapists have watched their patients grow up and live with their disorders, so they are well-equipped to care for Collin throughout his life.

“I know that this is a place where my son will get the care he needs as he grows up,” says Lilleen. “Kennedy Krieger is going to open so many doors for Collin.”

[ryllen]

"I decided it's my break day today, Oh coincidentally, I'm gonna sit here, and watch you work." also it's too cute how Nemo just came run at me whenever i sat on a bench