#Maybe there's some ablisim?
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weareweirdpeople · 9 months ago
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not a vent but diabetic shit because why not I want to share my experience
I have diabetes. I've had diabetes sense i was an elementary schooler on the way to middle school. Diabetes fucking sucks and it runs in my family. Because of this, and the fact that my family refuses to call it a disability despite it literally being a chronic illness, it has taken me a while to realize I do infact have a disability.
in hindsight, I am "lucky" that my mom raised me restricting lots of "unhealthy snacks" (non health foods. My mom viewed fucking cheezits as unhealthy and she came from a family that was even stricter with 'healthy' foods.) This meant that when I got diagnosed with diabetes, I would be prepared for the fact that now they weren't just rare treats my mom was learning to be ok with. Now they were aparently dangerous to my health and I could almost never eat them again.
My uncle has severe type 1 diabetes and my mom used to try to help him manage it, but he's a grown man whos never taken good care of it and does what he wants. So now that I had diabetes she was going to are sure I definitely didn't end up like that. This means that even if he himself brought all the kids a sweet treat, depending on my blood sugar I wouldn't even be allowed to have it. Most of the time she didn't want me to have it. This all went down with covid and I got to live with my diabetic father. The plus side was that the restrictions where pretty much gone, and I just needed to manage my sugar. The bad part is that I was fucking terrified of pricking my finger. It would take me hours to pick my finger, and my dad would be pissed. It slowly became very normal. I also had to learn how to take pills and open a pill bottle.
A while later now that I'm living with my whole family, I still have great care over my diabetes. I say great care as in how my family views it. I have the best a1c, I have the most consistent blood sugars. Personally I'm happy I can do that while having major depression but it makes me sad at the same time. It just pisses me off. Anytime my sugar is high I'm asked "what did you eat? What did you eat today? What was your sugar this morning?" I have an anxiety disorder. The doctors and google have told us that stress and anxiety can heighten blood sugar. Every time its about what I at. If im super sleepy? What did I eat? Whats my blood sugar? If im super anxious? Whats my blood sugar? Is it low? What have you eaten today?
My mom has always been focused on my diabetes. I low key hate it.
But in hindsight some of her ideas and things she let me do were so bad that its actually funny. Like holy shit mom, that was wild.
She at first wanted me to count all of my carbs. Every time I ate. All the carbs. She wanted me to check my sugar everytime I ate and then based on that it would determine what I was allowed to eat.
Then there was the point in time where she let me run around outside all day without eating lunch and sometimes even breakfast or any water until my sugar dropped crazy low and I was dizzy and shaking, and then id go outside again right after it went up. She doesn't like me reminding her of this because she says it makes her feel like a bad mother and that she was distracted. Im pretty sure the only constant meal was eating was dinner.
one time during Easter when we did an egg hunt my siblings got eggs fully of candy like normal. But my mom was running late on candy shopping so instead of giving me candy eggs, she made me get the special eggs she made, thinking they had zero sugar candy. They were fuckkng almonds. Unsalted Almonds. What. The. Fuck. I have never let her live that shit down, because who gives their kid fucking almonds as a treat??? Diabetic or not, unsalted almonds???
I was very very upset that year to say the least. My mom has always been stingy with any candy of any sorts. Even before we knew I was diabetic I was only really allowed 1-3 prices of candy from a holiday at most, and only after dinner. My Halloween candy especially would either go bad or she would eat it as well and I would not get much of it.
And after diabetes? Keto everything. My mom wanted to find as much keto stuff as possible, and I get it. We have a diabetic household, but she didn't do that shit until I got diagnosed with diabetes. I am happy that by now shes pretty much stopped all her restrictions and the keto stuff, she's still really diabetes focused when it comes to my mood and doesn't consider it a disability but that's okish.
Hilariously j don't have type 1 diabetes. Or type 2. I have a genetic mutation, and have had to convince multiple people that no I don't just have type 2, no I didn't not get diabetes because of my eating habits have you fucking seen me I am a god damm stick and even if I was fat that doesn't mean shit, no I cannot just eat fruit instead of candy that's not how diabetes works you peice of shit.
Long story short, i don't get a CGM or an Insulin pump. I actually make too much insulin, and dont really absorb it all and a CGM is to expensive... that means I just have to watch my sugar and take my pills indefinitely and I can't check my sugar too much because then I'd have to wait for my refills to get done because American health care fucking sucks ass.
lol diabetes sucks, stop being assholes to people with diabetes.
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