#'my pain should be an expected cost' etc etc. except fuck that shit I dont think so. I grew up thinking that I deserved pain for no reason
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the fact ppl expect you to be able to just sit there and take everything they say when they shit on men when you're a man is wild. are you expecting me to momentarily stop seeing myself as a man so you can rant? how tf are you expecting me not to be psychologically effected by hearing that "all men are trash"? what are you expecting me to do here exactly
#why do i have to sit here and tolerate something when its a net negative for my mental health and all you're doing is ranting about shit#i already know is bad that cis men do bc I also grew up dealing with cis men like#we already know but you seem to be hung up on the whole generalizing all men aspect and i dont have time for it lmao.#if you could talk about it w/o generalizing you'll find I actually stick around to listen#but once you start insinuating that all men bad when talking about a very specific thing some men do- how am i supposed to take#that other than you seeing me as bad in that way too by default of being a man? yeah i might be a lil insulted by that if you imply all men#are rapists or something. yeah it might actually psychologically effect me a bit if you can imagine#'my pain should be an expected cost' etc etc. except fuck that shit I dont think so. I grew up thinking that I deserved pain for no reason#im not about to let people continue to perpetuate that idea in me. fuck you.#ik having 0 empathy for men is cool to you and all so you're not even actually going to listen to anything I say but fuck man.#and then instead of actually listening to anything I say you're just gonna tell me to shut up so you're giving me even less reasons to#want to stick around given you're an asshole who doesnt care if they hurt me in any way clearly.#yall: why aren't you sticking around to hear me rant about men#us: bc you make it seem like its about us too w your generalization bs#yall: omg shut up no one asked who cares fuck ur feelings#us: *looks at the camera*#yall: omg why aren't sticking around to hear me rant about me--#I WONDER#maybe its bc you treat me like an inanimate object you're ranting to who doesnt get to comment at all#im like supposed to be a robot taking in all this 'information' except I already know all the information but one message keeps being#hammered in and its 'men bad' and im not allowed to emote or bring it up and comment on it or try to help that person work through#why they feel that way or feel the need to say that anyways- im just supposed to just take it on the chin or whatever.#like no fuck off
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Thoughts on rizzy 👀
jdndkdndidndidn ok so if u wanted a rizzy-positive answer...... avert ur eyes
the one thing positive (?) i can say about rizzy is that it really brought us some of the softest raphael moments, but i also lowkey hate that cuz wow, we really got him to talk about his sister, his past, see some of his interests, his softness, his pains, his smiles because of rizzy... so it's all related to rizzy 💀 which is why you might see some gifsets from rizzy scenes in my blog, i think this might have been what brought this on. i enjoy those scenes as scenes that establish raphael's character, but not as rizzy
and shoutout to sh as usual for only bothering with giving a coc depth, backstory, desires and etc when they were someone's love interest and then dropping them like a hot potato. like bro imagine if they had at least bothered with keeping raphael's characterisation consistent? id be over the moon already. if they had actually made him a person like when rizzy was a thing for the whole show on top of that?? fuck i think id explode in happiness
other than that..... i hate everything about it. and like, it being based on addiction aside (which is already, like, bad, but i could maybe ship them in an alternate reality where the addiction wasn't a thing and they were fine if it was only that), the whole thing was literally Izzy Treats Raphael Like Shit And Then Raphael Is Villainized For It
im not even gonna get into the whole "raphael is blamed for the yin fen thing for some fucking reason when that was not his fucking fault and no one questions this" thing because ive done it before and i might explode with rage if i do, lol. that fucking plotline would have never been handled like that if raphael wasn't latino and therefore a predator drug dealer stereotype. but ANYWAY
those are the two things that i see anti rizzy shippers talking about the most, but those are actually not what bothers me the most. what really drives me up the wall and is just vomiting emoji is the way izzy treats raphael. that's the dealbreaker for me and something that never gets acknowledged
like, for starters, raphael was once again shown to be one of the most caring and selfless characters in this piece of shit stupid show, when he saved izzy's life when she was stupid enough to actually go to a vampire den. she had done nothing but be shitty to him and the vampires up to that point, mind you (which some ppl in this fandom treat as like #GirlPower or something) but he still saved her life for no reason other than that was the right thing to do
and then she immediately, the same second, tried to trigger him into drinking her blood. and he kept telling her no and pushing her away and she was literally GRABBING him and slitting her wrist and then he caved, at great personal cost, which she didn't care about
fine
then we get her going after him again, and raphael, again, being the caring and selfless bastard that he is, does something so monumentally kind and dangerous that it still blows me away: he tells her about his addiction
and i know that ppl in this fandom love to act as if every single thing raphael did for the sake of other characters, particularly the shadowhunters and simon, is just, like, expected and no big deal. but raphael didn't owe izzy that. he didn't have to tell izzy that. hell, he didn't even have to save izzy's life when she went to the den, for all he knew it was all a trick or something. and telling her, someone he doesn't even know, a shadowhunter, not only one of his greatest secrets, not only one of his greatest vulnerabilities, but the single hardest and most painful moment of his life, a whole can of worms about his past that he just bared to her just like that, was just. so much. it was such a huge thing that he did for her, okay. and let's not forget that raphael is a private person, both for survival and because he just is
he basically opened up his biggest wound and showed it to her only because it could bring her some sort of comfort. it wouldn't even help her greatly. it wouldn't even change anything about her situation. it would bring just maybe a little bit of comfort and advice, at great personal cost, way greater than the good it would bring her. and he still did it, because raphael cares, especially when he sees someone going through something he went through as well. just so he could tell her that it gets better, that she's not alone. that he understands
and she fucking!! immediately!!!! uses that against him!!!!!! and continues to try to trigger his addiction again and again and again and again!!!! may i just say, WHAT THE FUCK
EVERY SINGLE TIME she tries to get him to drink her blood, it's not consensual, it's forced. he always hesitates, always tries to push her away, always turns his head. and she just pushes him anyway. even after she knows that he's been through this before. that it almost destroyed him. she knows exactly what she's triggering and bringing on, and she! does! it! anyway!!
watching some of the rizzy scenes, particularly the one where they are cooking together, makes me want to cry for him, because it's so obvious that what he's looking for is a deeper connection, someone to trust, to love, and what she's looking for is someone to satisfy her need. and look, i know addiction is terrible. but he's ALSO addicted. and again, i've met plenty of ppl who struggled with addiction, and they were able of, you know, not treating others like this
it drives me crazy! raphael lets her into his home, teaches her how to cook, opens up about the SINGLE SECRET ABOUT HIM THAT NO ONE KNOWS ABOUT EXCEPT FOR MAGNUS, and generally tries to have a good time with her, and not only does she immediately make his attempt at having a meaningful bonding time about him drinking her blood, but does it RIGHT AFTER HE TELLS HER ABOUT HIS SISTER??? it literally goes "here is my deepest most important secret that pains me greatly and is destroying me inside. oh, i said too much. i should have kept my mouth shut" "i'd rather you didn't *slits own wrist and makes him drink her blood*". like, girl, at least a word of comfort first??? a "you can tell me whatever you like"? an "i'm fucking sorry for your loss" maybe???????????? SHE TREATED HIM LIKE AN OBJECT
and also SHOUT THE FUCK OUT to "i didn't take you for a community service kind of guy", which granted is a minor thing to be upset about in the middle of this shitstorm, but still makes me want to rip my hair off. girl!! he's been doing nothing ever since you first met but helping you selflessly and getting only PAIN in return. like is she for real??? he went out of his way SO many times to help her, when he had NO reason to, not a single one. and she's still like "oh wow raphael cares about others?? im shocked" UDBDIDNDKSMSOSNSOSNSISBSUSBDUDBDIDNDIDNDI ARE YOU SERIOUSSSS
it's really such a revealing moment to me because it really shows that she didn't give any thought about everything he'd done for her. all the endless kindness and care, in the literal sense of TAKING CARE OF, that he offered her without a second thought. she never stopped to think about what it cost him. the fact that he didn't OWE IT TO HER, and thus it says something about his CHARACTER, because he CHOSE to help her. over and over and over again!!! AFTER SHE BETRAYED HIM MORE THAN ONCE. it never even crossed her mind! she just took it for granted, like it's what he was supposed to do, or something
and then!!!!!!! even after they go their separate ways!! and raphael is STILL caring for her and making sure she's okay! she decides to betray him one last time and have simon threaten his sister!!! and ill be honest i dont remember the reason for this, but i do remember that it wasn't fucking life and death, so like!!! it was just unnecessarily cruel and shitty of her and the biggest FUCK YOU to him and his trust. AND IT WASN'T NECESSARY AT ALL. like. AAAAAAAAAAAAAAAAAAAAAAAA
and at this point izzy was recovering so it's just like. i get that before that we were literally seeing izzy at her ugliest, she even fought alec and said some shit that she definitely didn't mean at all and that was shitty and hurtful. so like obviously we were seeing izzy in her darkest, worst, most selfish, most hurt. which is why i can maybe cut her some slack for some shit (also i just realized i literally forgot that she straight up THREATENED HIM WITH A KNIFE god there is really So Much To Unpack Here), but at that point? at that point she had no excuse. she was recovering. this didn't even have anything to do with her addiction anyway. she was just proving that raphael's trust, his care, his fucking feelings, they meant nothing to her
like seriously! she could at least have the decency to go, after raphael was very obviously kind and considerate to me, maybe i should not conspire against him and bring forward his most important secret? i don't think i'm asking her for much here
and it also ends a circle of raphael opening up to her and trusting her and she betraying that trust EVERY SINGLE TIME! the literal single only thing he told her that she didn't use against him was his asexuality. which look, thank god, cuz that would have been way too ugly and uncalled for, but the bar is low here
(ok, maybe rizzy gets a shoutout for having raphael's asexuality be treated so naturally. especially coming from such an overtly sexual character like izzy. it was nice to have that. i also think that her whole line about how for the first time sex wasn't a big part of a relationship for her could have been explored in so many interesting ways. like it is obvious that izzy uses her sexuality as a way to gain confidence and prove her value and it would be cool to see that being addressed beyond throwaway lines, maybe talk a bit about hypersexualization of woc. but this is shadowhunters we're talking about so of course nah)
so like okay izzy gets a Not An Aphobe But Still Shitty badge for basically using raphael like he existed to provide her. and in short this is why i can't get into rizzy, not even in a very very alternate reality where it all went different and the way they met had nothing to do with addiction. because she really didn't care enough about him and he deserves so much better than this
and again, i know that izzy was at her damn lowest in that point, but i think that even if she weren't, ultimately their incompatibility still lies there - raphael is too selfless and izzy is not attuned to that. she would take what he offered and not really spare it a thought, even if she didn't mean to like, Use Him (cuz i dont think izzy meant to use him even in canon), like it was just expected. and he wouldn't point that out. and it would be. ugh
and yeah i think that summarizes my thoughts dudndjdn im sorry for the angry very long rant, i just started talking and it all was pouring out suddenly. i promise im not mad, i just...... have strong feelings about this whole thing
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[[ this is kinda rambly and piecemeal and out of order since its an edited convo off of discord from before cy’s heart got replaced, but i decided i wanted this Extra Large thalassemia infodump on my blog. go read this primer first for basic info on thal; cyrus’s form is beta thalassemia major. ]]
even with a perfectly healthy and functional heart, cy'd still have a too fast pulse and likely have arrhythmias; that comes with the territory of his anemia, and he could still develop heart failure again later in life. the problem with cy's current heart is that its been scarred to shit by the extra iron in his body from his blood transfusions and hes developed cardiomyopathy as a result, which at this point is virtually guaranteed to kill him before he turns 30, even if he takes perfect care of himself and never develops any other complications from his thalassemia ever (which aint fuckin likely). this failing heart just deals worse with arrhythmias he already has, especially under stress, and already struggles to keep up enough blood pressure.
bone marrow transplants are currently the closest thing to a cure for thalassemia we have and hellll no he has not had that done i doubt hes even on a waiting list. with his shit in the state hes in, its questionable if he'd even survive the process its pretty intense, nevermind the finances and healing and finding a match and even so much as qualifying to have it done.
cyrus goes in for a blood transfusion every three weeks. when transfusion dates get close, within a few days, hes more tired; he doesnt go out; he can be moodier; he can get headaches and dizzy spells. he feels best after a transfusion, then its just a slow decline till the date rolls around again. i tend to rp him within a week or two of being transfused most of the time simply bc its easier to get him out there interacting with people.
sometimes they coincide with transfusion dates, sometimes they don't, but he has longer appointments to check up on his other bodily functions every so often. theres general stuff, looking at his counts, then more specialized appointments to keep an eye specifically on his heart or check up on his liver and other organs as needed.
thalassemia by itself kills a person through not having enough blood to get oxygen around the body; this is solved through blood transfusions. chronic anemia means chronic transfusions. which would be fine! except chronic transfusions cause a build-up of iron in the body, and that shit is toxic and where the more fatal complications tend to stem from for thalassemia patients. also, being anemic means your body thinks it needs iron, so it's prone to absorb more from food than the average person, an added bonus. consequently, there are certain foods cyrus avoids. legumes, dark leafy greens, etc. look up any list of iron-rich foods, and thats a list of shit cyrus ought to be avoiding or indulging rarely. (funnily enough, these lists also are often advertised towards anemic people because those who arent transfused have the opposite problem.) part of his tea drinking habit is because tea inhibits iron absorption, along with he just likes it. coffee works too and he doesnt object to it, but he prefers tea.
another consequence of chronic transfusions is that you end up with a lot of old shitty dead blood cells in your system, and your spleen is left to clean it up. unfortunately, when faced with that much to clean, it can enlarge (splenomegaly) and become overactive (hypersplenism). so it starts removing healthy blood cells too quickly and too early, which can cause the anemic patient to need more blood when being transfused, which risks more iron, and not to mention its generally uncomfortable for the patient with the enlarged spleen. in short, this happened to cyrus, so his spleen has been removed. spleens, however, also play an important role in the immune system, so he was already kinda vulnerable as an anemic, but having no spleen makes him doubly at risk of infections. he takes antibiotics as part of his daily pharmaceutical regime.
during cold and flu season, docs tend to strongly suggest he wear surgical masks during school and whenever hes around a lot of people in public places, but he almost never does. he doesnt like the attention it gets him esp in school, but sometimes he'll do it when hes on public transit or anything. he does carry hand sanitizer with him a lot of the time tho
bc his immune system is fragile, he often goes in-patient for what would be minor sicknesses for us, esp if theres a fever. he tends to be hit hard by them, and being sick can make his counts plummet as his body tries to fight off the disease.
coming back around to iron related bullshit, iron overload is treated by iron chelation, for which there are mainly two medicines, deferoxamine and deferasirox, and cyrus uses the latter because i have never been able to find out enough goddamn information about deferoxamine. deferoxamine is the more common and cheaper of the two medicines; its injected subcutaneously over the course of 8-12 hours and has its own list of side effects and the process itself tends to be kinda painful from the accounts ive read. its done at home, often while the patient sleeps bc... well, when else are you gonna get a child to sit still for 8-12 hours. its definitely the one cyrus was on for a while, when he was younger. bc ive had a hellish time finding info on the pump used for deferoxamine and more about that medicine generally, cy’s currently on deferasirox. slightly different side effects, but otherwise does the same job in pill form.
thalassemia patients who've been cared for properly should be healthier than cyrus is. most patients his age havent had a heart attack already and arent dealing with heart failure, not yet. his parents have always struggled financially to keep up with his medical bills, but there was a time when he was still young that they still thought they could manage if they just worked hard enough. they were too proud to accept help, and he suffered for it. they eventually gave in but even then still struggled to keep up. sometimes a sudden unexpected change in insurance policy would fuck em for a while finanacially. so sometimes they'd not fill a perscription for a while or wait longer than they should to take him in-patient, hoping he might just tough out a cold or smth. sometimes he'd manage to do that and have abysmal blood counts next time he went in, and a couple of times he got so sick he was legit on death's doorstep by the time he got to the hospital and needed way longer to recover. sometimes cyrus would be too fussy about the deferoxamine and they didnt have the energy that night to force him to accept it or he'd turn off the machine himself after they left. not too often, he was pretty good about just accepting it and did most of the time, but it def happened more than a few times. and if it had already been activated, they couldnt reuse it and had to throw the dose out, in which case that was it he skips it no replacement they cant afford it not in the budget.
and because the effects of iron overload are long-term ones for the most part, it was easy to be like "ehh he seems fine for now". like, they knew the risks, but it was hard to see them as anything but so far in the distance as to be irrelevant. cyrus himself isnt great about the whole self-care thing either; his depression has helped nothing. he's been known to just flush or toss pills in a small spiteful act of rebellion, all his parents care about is that hes still alive and their money, and medicine's expensive, so wouldnt it just piss em off to throw it all away. he'll eat foods he shouldnt for similar reasons, along with just the pleasure of it. and sometimes he hits the sort of suicidal low where he just.... doesnt see the point. each dose he takes is a choice to keep living, and sometimes that choice isnt one he wants to make.
no one quite realized how bad he was tho till his first heart attack. he was so young; the docs dont rly know when hes skipping, so they werent watching too closely for the effects of it. and the damage his body took over time was amplified by his frequent stress. the heart and liver are the ones most affected by iron overload; his liver is somewhat damaged too, but thats not too bad yet, not as bad as his heart.
other little thal things: hormone levels can get super fucked. cy's puberty was a bit delayed, and his testosterone levels remain kinda low compared to average, so hes not as hairy as his genetics might otherwise dictate. he will never be able to grow a proper beard; it'll always be way too patchy and uneven. and despite what his touch aversion and other factors like stress and said low testosterone might lead you to believe, hes got a pretty strong sex drive, though he suppresses the hell out of it.
he was homeschooled for his first few years of elementary bc health concerns, but that couldnt be sustained bc of cost. so he rejoined public school since then. i wouldnt be surprised if his peers used his puberty delays against him, but i'd expect they were making fun of him less bc he was a late bloomer and more at his general girlishness, esp since this would also be around the time he was growing out his hair.
he has had people do the "lookit me ive befriended the sad disabled kid arent i good <3" schtick (which esp pisses him off bc its similar to shit melinda pulls) and hes met the people who try to be nice to him for three days then turn a 180 on him when he doesnt immediately cheer up and get all buddy buddy with them. and hence he now treats kindness from strangers with extreme skepticism, suspicion, and aggression. (thomas also feeds into this but ye) it scares off plenty of legitimately nice people who he could have befriended, buuut.
Oh, a couple Fun Facts I forgot to mention. bc anemia, he bruises easy and injuries generally take longer than normal to heal. And in part bc depression and in part bc meds are prone to fucking with his appetite, either killing it entirely or just making him nauseated, he tends to not eat enough and is kind of underweight. Melinda put him in charge of dinner most nights as part of a genuine good faith effort to ensure he's getting at least one good meal and get him home when he's supposed to be.
#meta#fun fact#medical#there are so many little ways his disorder has shaped his life#even if they dont appear too obviously when im writing him in actual threads#suicide mention#thalassemia
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