I hereby pledge to smile every day despite having an ileostomy, G & J tubes in my belly and intestine , and IV port in my chest. I also state my refusal to wear hospital gowns during my frequent hospitalizations- roughly 200 days a year and 17 surgeries to date. Because being sick is not an excuse to be or look anything less than...
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What I would do for ONE apology from ANY doctor, ever.
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When I tell the nurse what vein to use and they don't listen only to end up using the vein I suggested.
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I’m so tired of being spoken to like it’s my fault that I’m sick.
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the next time someone tells me "it could be worse, at least you don’t have cancer" i’m just gonna stare at them for a really long time and say something like..
"can you even pronounce my condition? do you even know the treatment protocol? do you know anyone with a chronic condition? or what it’s…
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vine
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Some days I debate my decision to wait until I get a little healthier before seeking a relationship. The sicker I become, the more I think it be nice to not to go this journey alone. It also prompts the panic attack-inducing question of what happens if I never get better? Or, the crippling, all too possible reality that my health will continue to spiral out of control. To feel like a burden or not feel like a burden to those closest to me, that is the question.
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Sick girl style goal inspo right now. Oversized sunnies to hide my sleep-deprived, tear-ridden eyes- check Fuzzy jacket to roam the ever-frozen hospital hallways- check Gold necklace to remind me of my self worth (hell ya, I’m more than just an ill patient, I’m freaking fabulous) - double check Resting bitch face pout that says I’m sick of being sick- yes, yes, yes
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Doctors ask (or at least silently wonder) the same thing after I tell them I have Chronic Intestinal Pseudo Obstruction disorder. My short answer: it’s an illness you should be thanking your lucky stars you don’t have, foolz.
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I mean, I would hate it if my parents forgot to take me with them to all the extended family holiday celebrations this year. The last thing anyone wants to do when they’re feeling their worst is put on a happy face while being drilled about how you’re doing and if you finally are bringing a boy around this year. No, I’m not feeling any better. Actually, this is the worst I’ve ever felt. Eating bark won't cure me. And no, I don’t have a boyfriend unless you count my illness as one, because that’s all I have time for. My disease and I are taking our unhealthy relationship to the next level and we will each be putting on an eternal band to flaunt our commitment- for better or for worse- emphasis on the worst. We’re less than thrilled envisioning a lifetime consumed by each other. Being chronically sick was the worst decision of my life that I had no say in.
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I’m the definition of “hot mess” today. Minus the hot. Extra mess.
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